Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention

Frey, Rosemary; Barham, Sophia; Balmer, Deborah; Boyd, Michal; Robinson, Jackie; Gott, Merryn

doi:10.1186/s12904-020-00633-x

Cited by 7 publications

(4 citation statements)

References 45 publications

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“…This suggests that NHs must create an open environment in which staff, residents and FCs feel safe and comfortable sharing their feeling and thoughts. Indeed, FCs have reported that they experienced higher‐quality communication and felt more involved in care planning when a team‐based approach to end‐of‐life communication was employed (Frey et al, 2020). NH staff experienced end‐of‐life communication as a socio‐cultural space, in which both staff and FCs felt some resistance to frank communication about death.…”

Section: Discussionmentioning

confidence: 99%

Lived experiences of end‐of‐life communication among nursing home staff: An interpretive phenomenological study

Gonella

Conti²,

Albanesi³

et al. 2022

Journal of Advanced Nursing

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Aims:To explore and understand lived experiences of end-of-life communication among nursing home staff.Design: Interpretive phenomenological study. Methods:In-person, semi-structured, in-depth interviews were conducted from May to August 2021 with 21 nursing home staff members involved in end-of-life communication (four managers, four chief nurses, three chief medical officers, three nurses, three psychologists, two occupational therapists, one chief nurse aide and one nurse aide). Data were analysed by van Manen's hermeneutic approach, which uses the lifeworld existentials of spatiality, corporeality, temporality and relationality to guide reflection on the human experience. Data were reported according to the Consolidated Criteria for Reporting Qualitative Research.Results: Thirteen categories were identified and framed within the four existentials.Regarding spatiality, end-of-life communication took place in a physical, mental, socio-cultural and professional competence space. With regard to corporeality, interviewees reported difficulties in managing their own feelings and those of family caregivers. For temporality, interviewees reported delays in end-of-life communication due to staffing issues and an increase in urgent and temporary relief admissions to nursing homes. To compensate, they tried to assure that all interactions that did take place were of high quality. Finally, with regard to relationality, interviewees lived end-of-life communication through their relationships with family caregivers and colleagues. The supportive role of colleagues was expressed as teamwork, which helped promote reflexivity about how to tailor communication, manage challenging emotions and situations, set aside time for communication, and prepare family caregivers for death. Conclusion:End-of-life communication was an all-encompassing experience for nursing home staff. The supportive role of colleagues was stressed across all existentials, suggesting that teamwork is essential in delivering effective communication at the end-of-life.

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Section: Discussionmentioning

confidence: 99%

Lived experiences of end‐of‐life communication among nursing home staff: An interpretive phenomenological study

Gonella

Conti²,

Albanesi³

et al. 2022

Journal of Advanced Nursing

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“…When a team-based approach is employed, family caregivers report higher quality communication and feel more involved in care planning that allows for a better-perceived death for their relative. 76 Therefore, it is the role of all healthcare professionals to create an environment of openness so that patients and their family caregivers feel comfortable to voice their concerns regarding end-of-life issues and can be involved in planning end-of-life care.…”

Section: Discussionmentioning

confidence: 99%

Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review

Gonella¹,

Mitchell

Bavelaar

et al. 2021

Palliat Med

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Background: Most people with dementia transition into nursing homes as their disease progresses. Their family caregivers often continue to be involved in their relative’s care and experience high level of strain at the end of life. Aim: To gather and synthesize information on interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes and provide a set of recommendations for practice. Design: Mixed-Methods Systematic Review (PROSPERO no. CRD42020217854) with convergent integrated approach. Data sources: Five electronic databases were searched from inception in November 2020. Published qualitative, quantitative, and mixed-method studies of interventions to support family caregivers of people with advanced dementia at the end of life in nursing home were included. No language or temporal limits were applied. Results: In all, 11 studies met the inclusion criteria. Data synthesis resulted in three integrated findings: (i) healthcare professionals should engage family caregivers in ongoing dialog and provide adequate time and space for sensitive discussions; (ii) end-of-life discussions should be face-to-face and supported by written information whose timing of supply may vary according to family caregivers’ preferences and the organizational policies and cultural context; and (iii) family caregivers should be provided structured psychoeducational programs tailored to their specific needs and/or regular family meetings about dementia care at the end of life. Conclusion: The findings provide useful information on which interventions may benefit family caregivers of people with advanced dementia at the end of life and where, when, and how they should be provided.

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“…Numerous models have been proposed and trialled to promote optimal palliative and end of life care in care homes, and have been helpful in improving knowledge, skills and some aspects of care such as documentation of advance care plans, improved communication and support for families [15][16][17] and reduced deterioration in quality of life. 18 While these models are multifaceted they do not provide a detailed and structured assessment and response protocol to guide day-to-day palliative and end of life care nor the systems to facilitate data driven decision-making and organisational improvements.…”

Section: Pcoc Wicking Model For Residential Aged Carementioning

confidence: 99%

The experience of Australian aged care workers during a trial implementation of a palliative care outcomes programme

Davis,

Mullan,

Johnson

et al. 2023

Health Planning & Management

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End of life care is an essential part of the role of Australian aged care homes (ACHs). However, there is no national framework to support aged care staff in systematically identifying residents with palliative care needs or to routinely assess, respond to, and measure end of life needs. The Palliative Care Outcomes Collaboration (PCOC) is a national outcomes and benchmarking programme which aims to systematically improve palliative care for people who are approaching the end of life, and for their families and carers. The PCOC Wicking Model for Residential Aged Care was developed and piloted in four Australian ACHs. This paper reports on the qualitative findings from semi‐structured interviews and focus groups conducted with ACH staff (N = 37) to examine feasibility. Thematic analysis identified three overarching themes about the pilot: (i) processes to successfully prepare and support ACHs; (ii) appropriateness of PCOC tools for the ACH setting; and (iii) realised and potential benefits of the model for ACHs. The lessons presented valuable insights to refine the PCOC Wicking Model and enrich understanding of the potential challenges and solutions for implementing similar programs within ACHs in future. The results suggest that key to successfully preparing ACHs for implementation of the PCOC Wicking Model is an authentic and well‐paced collaborative approach with ACHs to ensure the resources, structures and systems are in place and appropriate for the setting. The PCOC Wicking Model for Residential Aged Care is a promising prototype to support ACHs in improving palliative and end of life care outcomes for residents and their carers.

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Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention

Cited by 7 publications

References 45 publications

Lived experiences of end‐of‐life communication among nursing home staff: An interpretive phenomenological study

Lived experiences of end‐of‐life communication among nursing home staff: An interpretive phenomenological study

Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review

The experience of Australian aged care workers during a trial implementation of a palliative care outcomes programme

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