Palliative Care Experience in the Last 3 Months of Life: A Quantitative Comparison of Care Provided in Residential Hospices, Hospitals, and the Home From the Perspectives of Bereaved Caregivers

Bainbridge, Daryl; Seow, Hsien

doi:10.1177/1049909117713497

Cited by 26 publications

(26 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Across care settings, pain management was significantly associated with overall care satisfaction. A previous national study in Canada found that pain management tended to be the highest‐rated domain by caregivers regardless of setting (Bainbridge & Seow, 2017). The delivery of care that reflected dignity and respect, as well as maintained privacy, were significantly related to overall care satisfaction.…”

Section: Discussionmentioning

confidence: 96%

Factors associated with overall satisfaction with care at the end‐of‐life: Caregiver voices in New Zealand

Frey

Robinson

Old

et al. 2020

Health Soc Care Community

View full text Add to dashboard Cite

In New Zealand, as in other industrialised societies, an ageing population has led to an increased need for palliative care services. A cross-sectional postal survey of bereaved carers was conducted in order to describe both bereaved carer experience of existing services in the last 3 months of life, and to identify factors associated with overall satisfaction with care. A self-complete questionnaire, using a modified version of the Views of Informal Carers-Evaluation of Services (VOICES) instrument was sent to 4,778 bereaved carers for registered deceased adult (>18yrs) patients in one district health board (DHB) for the period between November 2015 and December 2016. Eight hundred and twenty-six completed questionnaires were returned (response rate = 21%). The majority of respondents (83.8%) rated their overall satisfaction with care (taking all care during the last 3 months into account), as high. However, satisfaction varied by care setting. Overall satisfaction with care in hospice was significantly higher compared to other settings. Additionally, patients who died in hospice were more likely to be diagnosed with cancer and under 65 years of age. The factors associated with overall satisfaction with care in the last 2 days of life were: caregiver perceptions of treatment with dignity and respect; adequate privacy; sufficient pain relief and decisions in line with the patient's wishes. A more in-depth exploration is required to understand the quality of, and satisfaction with, care in different settings as well as the factors that contribute to high/low satisfaction with care at the end-of-life.

show abstract

Section: Discussionmentioning

confidence: 96%

Factors associated with overall satisfaction with care at the end‐of‐life: Caregiver voices in New Zealand

Frey

Robinson

Old

et al. 2020

Health Soc Care Community

View full text Add to dashboard Cite

show abstract

“…The use of retrospective data is a common approach in palliative care research, with the last 3-month of life commonly used 31–35. The data used in this analysis were reported by LTCF staff, rather than retrieved from medical records, increasing the likelihood of measurement error and recall bias.…”

Section: Discussionmentioning

confidence: 99%

Length of stay in long-term care facilities: a comparison of residents in six European countries. Results of the PACE cross-sectional study

et al. 2020

View full text Add to dashboard Cite

ObjectivesThis paper aims to investigate resident, facility and country characteristics associated with length of stay in long-term care facilities (LTCFs) across six European countries.SettingData from a cross-sectional study of deceased residents, conducted in LTCFs in Belgium, England, Finland, Italy, the Netherlands and Poland.ParticipantsAll residents aged 65 years and older at admission who died in a 3-month period residing in a proportional random sample of LTCFs were included.Primary and secondary outcome measuresThe primary outcome was length of stay in days, calculated from date of admission and date of death. Resident, facility and country characteristics were included in a proportional hazards model.ResultsThe proportion of deaths within 1 year of admission was 42% (range 32%–63%). Older age at admission (HR 1.04, 95% CI 1.03 to 1.06), being married/in a civil partnership at time of death (HR 1.47, 95% CI 1.13 to 1.89), having cancer at time of death (HR 1.60, 95% CI 1.22 to 2.10) and admission from a hospital (HR 1.84, 95% CI 1.43 to 2.37) or another LTCF (HR 1.81, 95% CI 1.37 to 2.40) were associated with shorter lengths of stay across all countries. Being female (HR 0.72, 95% CI 0.57 to 0.90) was associated with longer lengths of stay.ConclusionsLength of stay varied significantly between countries. Factors prior to LTCF admission, in particular the availability of resources that allow an older adult to remain living in the community, appear to influence length of stay. Further research is needed to explore the availability of long-term care in the community prior to admission and its influence on the trajectories of LTCF residents in Europe.

show abstract

“…1 Patients with cancer who receive hospice care have reported reductions in pain intensity, 2 symptom burden, 3 and distress 3 and receive less burdensome aggressive care compared with patients not enrolled in hospice care. 4,5 Personal (ie, informal, unpaid) caregivers of patients who receive hospice care are more likely to report that the patient received high-quality care 6 and that the patient had a good death compared with caregivers of patients who do not receive hospice care. 7,8 Furthermore, caregivers of patients who receive hospice care have a lower risk of death in the 18 months after the patient's death than caregivers of patients who do not receive hospice care.…”

Section: Introductionmentioning

confidence: 99%

Association between advanced cancer patient‐caregiver agreement regarding prognosis and hospice enrollment

Trevino

Prigerson

Shen

et al. 2019

Cancer

View full text Add to dashboard Cite

BACKGROUND: Patients with advanced, incurable cancer who understand their illness is incurable are more likely to prefer hospice care at the end of life compared with patients who believe their illness is curable. To the authors' knowledge, it is unclear whether patient-caregiver agreement regarding perceived prognosis is associated with hospice enrollment. METHODS: The current study examined the prospective relationship between patient-caregiver agreement concerning perceived prognosis and hospice enrollment in the last 30 days of life. Data were collected during a cluster randomized controlled trial examining a communication intervention for oncologists and patients with advanced cancer and their caregivers. At the time of study entry, patients and caregivers (141 dyads) were categorized as endorsing a "good" prognosis if they: 1) reported a >50% chance of surviving ≥2 years; or if they 2) predicted that the patient's quality of life 3 months into the future would be ≥7 on an 11-point scale. RESULTS: Approximately one-fifth of dyads agreed on a poor prognosis whereas approximately one-half disagreed regarding prognosis. In approximately one-third of dyads, patients and caregivers both believed the patient's future quality of life would be good (34%) and that the patient would live for ≥2 years (30%). Patients in these dyads were less likely to enroll in hospice compared with patients in dyads who disagreed and those who agreed on a shorter life expectancy and poor future quality of life. CONCLUSIONS: Dyadic understanding of patients' projected life expectancy and future quality of life appears to be predictive of care received at the end of life. Improving rates of hospice enrollment may be best achieved with dyadic interventions. Cancer 2019;125:3259-3265.

show abstract

Palliative Care Experience in the Last 3 Months of Life: A Quantitative Comparison of Care Provided in Residential Hospices, Hospitals, and the Home From the Perspectives of Bereaved Caregivers

Cited by 26 publications

References 38 publications

Factors associated with overall satisfaction with care at the end‐of‐life: Caregiver voices in New Zealand

Factors associated with overall satisfaction with care at the end‐of‐life: Caregiver voices in New Zealand

Length of stay in long-term care facilities: a comparison of residents in six European countries. Results of the PACE cross-sectional study

Association between advanced cancer patient‐caregiver agreement regarding prognosis and hospice enrollment

Contact Info

Product

Resources

About