Palliative care in children with cancer: implications for general practice

Geest, Ivana M. van der; Bindels, Patrick J E; Pluijm, Saskia M. F.; Michiels, Erna; Heide, Agnes van der; Pieters, Rob; Darlington, Anne‐Sophie; Heuvel‐Eibrink, Marry M. van den

doi:10.3399/bjgp16x688009

Cited by 7 publications

(4 citation statements)

References 16 publications

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“…Independentemente da idade, sexo ou raça, o câncer em crianças demanda cuidados e atenção específicos, pois devido a doença avançar rápido e o tratamento ser muito agressivo, a criança experimenta uma mudança brusca de sentimentos e emoções, relacionadas ao diagnóstico pode causar importante impacto na estrutura familiar 12 .…”

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Perfil do câncer infantil em um estado da Amazônia Ocidental em 2018

et al. 2020

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OBJETIVO: Identificar o perfil do câncer infantil em um estado da Amazônia Ocidental em 2018. MATERIAIS E MÉTODO: Trata-se de um estudo transversal, exploratório e descritivo, realizado na unidade de assistência de alta complexidade de um hospital de grande porte do Acre. A população de estudo foi formada por 49 crianças de 0 a 10 anos com diagnóstico de câncer e atendidas no local de estudo no ano de 2018. RESULTADOS: Os dados apontam que a maioria das crianças (38,8%), encontrava-se na faixa etária entre 05 a 07 anos, do sexo masculino (57,0%), de cor/raça parda (34,7%), e a maior parte delas eram procedentes do município de Rio Branco (39,0%). Os tipos de cânceres mais frequentes foram leucemias (48,0%), seguido do câncer do sistema nervoso central (18,0%) e do sarcoma de partes moles (10,0%). Frente ao ano do diagnóstico prevaleceu o ano de 2018 com 19 casos e observa-se ainda que o número de ocorrências apresentou uma tendência de crescimento a partir do ano de 2015. Quanto ao desfecho dos casos, a maioria das crianças seguem em acompanhamento 40 (82,0%), sendo que 6 (12,0%) evoluíram para óbito e 1(2,0%), para cura. CONCLUSÃO: Observou-se que o câncer infantil é problema atual e crescente, predominado em crianças de 2 a 7 anos, do sexo masculino, de cor/raça parda. A leucemia e a quimioterapia representaram o tipo de câncer e o tratamento, respectivamente, mais frequentes. Recomendam-se estratégias que contemple o diagnóstico e tratamento precoce para o enfrentamento do problema.

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Perfil do câncer infantil em um estado da Amazônia Ocidental em 2018

et al. 2020

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“…5 6 However, GPs have the potential to provide many vital aspects of palliative care, including the coordination of care from community and specialist teams, provision of prescriptions, holistic support for family members (including during bereavement) and support when children transition from paediatric to adult palliative care services. 7 Furthermore, frequent appointments with a GP and continuity of GP care for children with life-limiting and life-threatening conditions are associated with less frequent use of urgent and emergency secondary care services. 8 This study aimed to explore the role of general practice in the care of children with life-limiting and lifethreatening conditions and their families, from their perspective, and consider how this might be developed to more effectively support the delivery of care to these children in the future.…”

Section: Introductionmentioning

confidence: 99%

Experiences of general practice of children with complex and palliative care needs and their families: a qualitative study

et al. 2021

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ObjectivesTo investigate the views and experiences of general practice of children with life-limiting and life-threatening conditions, and their family members, through secondary analysis of a qualitative serial interview study. Thematic analysis was conducted on all interview data relating to experiences of primary care.SettingWest Midlands, UK.ParticipantsA total of 31 participants (10 children with life-limiting and life-threatening conditions and 21 family members) from 14 families.Study design and settingSecondary thematic analysis of qualitative interview data from a study carried out in the West Midlands, UK.Method41 serial interviews with 31 participants from 14 families: 10 children aged 5–18 years with life-limiting and life-threatening conditions, and 21 of their family members.ResultsThree key themes emerged: (1) poor experiences of general practice cause children and families to feel isolated, (2) children and families value support from general practice, and (3) there are practical ways through which general practice has the potential to provide important aspects of care. Children and families reported benefits from fostering their relationship with their general practice in order to access important aspects of care, including the assessment and management of acute illness, chronic disease and medication reviews, and holistic support.ConclusionChildren with life-limiting and life-threatening conditions and their families value the involvement of general practice in the care, alongside their paediatric specialists. Ways of developing and providing such support as part of an integrated system of care need to be developed.

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“…This type of care supports the family and those around the dying or deceased child (Pakseresht et al, 2018 ). Communication, continuity of care by caregivers, as well as child's physical and mental symptoms management, which are very important for parents in the later stages of a child's life, are aspects of parental care during the bereavement period before the child's death (van der Geest et al, 2016 ). Family support at the end of a child's life and after death contributes to the bereavement process in families, as well as providing an opportunity for the family to share their feelings with those who understand them (Pakseresht et al, 2018 ).…”

Section: Introductionmentioning

confidence: 99%

Explore the Bereavement Needs of Families of Children With Cancer From the Perspective of Health Caregivers: A Qualitative Study

et al. 2021

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Introduction: The experience of bereavement is associated with severe physical, psychological, social and spiritual reactions in the parents of children with cancer. Because of that, the families of these children need to receive bereavement services. The aim of this study was to explore the bereavement needs of families of children with cancer from the perspective of health caregiver as people who have a close relationship with the child and the family.Methods: This qualitative descriptive study design in. In total 15 semi-structured interviews were conducted using a purposive sampling in 2018. Interviews were recorded and transcribed and conventional content analysis was used to analysis the data. The Trustworthiness of the data were assessed according to the criteria of Lincoln and Guba.Results: From the data analysis, needs of the bereaved family were categorized in three dimension including “achieving peace,” “Abandoned family access to care,” and “continuing care.” The category of “achieving peace” includes spiritual and existential support, companionship with the family, contact with other bereaved families, support in passing and accepting the bereaved and continuing empathetic communication with the family, the category “Abandoned family access to care” includes the promotion of family self-control, awareness of end-of-life care to the family, and the category of “continuing care,” includes formal and informal family care and individualized care.Conclusion: It is necessary for the care team to pay special focus to family considering the needs of the family about the death of the patient and the challenges of the family bereavement period. It is recommended that members of the health care team should be trained in assessing family needs, identifying risks of adverse outcomes, continuing care, and providing resources during bereavement. The needs of the bereaved family should also be addressed in their care plan.

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Palliative care in children with cancer: implications for general practice

Cited by 7 publications

References 16 publications

Perfil do câncer infantil em um estado da Amazônia Ocidental em 2018

Perfil do câncer infantil em um estado da Amazônia Ocidental em 2018

Experiences of general practice of children with complex and palliative care needs and their families: a qualitative study

Explore the Bereavement Needs of Families of Children With Cancer From the Perspective of Health Caregivers: A Qualitative Study

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