Palliative Care in the Global Setting: ASCO Resource-Stratified Practice Guideline

Osman, Hibah; Shrestha, Sudip; Temin, Sarah; Ali, Zipporah; Corvera, Rumalie A; Ddungu, Henry; Lima, Liliana De; Estevez-Diz, Maria Del Pilar; Ferris, Frank D.; Gafer, Nahla; Gupta, Harmala; Horton, Susan; Jacob, Graciela; Jia, Ru; Lu, Frank Leigh; Moşoiu, Daniela; Puchalski, Christina M.; Seigel, Carole; Soyannwo, Olaitan; Cleary, James F.

doi:10.1200/jgo.18.00026

Cited by 65 publications

(82 citation statements)

References 53 publications

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“…The WHO and UNICEF's Astana 2018 Declaration states that "palliative care must be accessible to all", and in order to build sustainable primary healthcare, all member states have committed to "prioritize disease prevention and health promotion and will aim to meet all people's health needs across the life course through comprehensive preventive, promotive, curative, rehabilitative services and palliative care" [5]. Thus, providing palliative care is increasingly recognized as a universal responsibility [6].…”

Section: Introductionmentioning

confidence: 99%

An EAPC white paper on multi-disciplinary education for spiritual care in palliative care

et al. 2020

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Background: The EAPC White Paper addresses the issue of spiritual care education for all palliative care professionals. It is to guide health care professionals involved in teaching or training of palliative care and spiritual care; stakeholders, leaders and decision makers responsible for training and education; as well as national and local curricula development groups. Methods: Early in 2018, preliminary draft paper was written by members of the European Association for Palliative Care (EAPC) spiritual care reference group inviting comment on the four core elements of spiritual care education as outlined by Gamondi et al. (2013) in their paper on palliative care core competencies. The preliminary draft paper was circulated to experts from the EAPC spiritual care reference group for feedback. At the second stage feedback was incorporated into a second draft paper and experts and representatives of national palliative care organizations were invited to provide feedback and suggest revisions. The final version incorporated the subsequent criticism and as a result, the Gamondi framework was explored and critically revised leading to updated suggestions for spiritual care education in palliative care. Results: The EAPC white paper points out the importance of spiritual care as an integral part of palliative care and suggests incorporating it accordingly into educational activities and training models in palliative care. The revised spiritual care education competencies for all palliative care providers are accompanied by the best practice models and research evidence, at the same time being sensitive towards different development stages of the palliative care services across the European region. Conclusions: Better education can help the healthcare practitioner to avoid being distracted by their own fears, prejudices, and restraints and attend to the patient and his/her family. This EAPC white paper encourages and facilitates high quality, multidisciplinary , academically and financially accessible spiritual care education to all palliative care staff.

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Section: Introductionmentioning

confidence: 99%

An EAPC white paper on multi-disciplinary education for spiritual care in palliative care

et al. 2020

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“…The literature suggests that the palliative care guidelines can be developed through the Delphi technique of research with participation of specialist and review studies (109-112). These guidelines should include the following items; a model of palliative care provision, time management, knowledge, skills, human resources, pain management, nurse's role, spiritual care, consultant, social worker, and access to opioids (110). Given the increasing number of postgraduate students in nursing, it might be possible to enlist universities to participate in the development of guidelines as well.…”

Section: Recommended Solutions For Process-based Challenges: 1-provismentioning

confidence: 99%

Challenges of palliative care for children with cancer in Iran: a review

Rassouli

Salmani

Mandegari

et al. 2019

IJPHO

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Pediatric palliative care is a holistic caring approach for children and families that begins with diagnosis of a life-threatening illness and continues until death; it aimed to relieve pain and other symptoms in physical, mental, social and spiritual aspects. In spite of available evidence concerning optimal outcomes of the provision of palliative care, establishment of a palliative care system for children has hardly been feasible so far due to a number of challenges. Therefore, this review study aimed at identifying the challenges of the provision of pediatric palliative care along with the relevant solutions. The identified challenges were classified into two categories including structure-based challenges (i.e. lack of a clear structure in the health system and classification of services, shortage of specialized staff, insufficient home care services, absence of health care tariffs along with insurance coverage of palliative care services) and process-based challenges (i.e. absence of guidelines, lack of educational programs for family, family attitudes and beliefs, communication barriers, and lack of access to opioids). Thereafter, the solutions for each challenge are provided in accordance with the available literature separately. Given the significance of palliative care for children with cancer and in order to improve the quality of life of the children and the families, it appears necessary that policymakers and managers take account of the challenges as well as the feasibility and the implementation of provided solutions.

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“…As previously highlighted by the Breast Health Global Initiative, as well as by the National Comprehensive Cancer Network and the American Society of Clinical Oncology, a key component of the integration of resource‐stratified PC services (ie, PC services that are aligned with local needs and resources to provide a strategy that is culturally and resource appropriate 15 ) is provider education and training 16‐19 . Several studies assessing pediatric PC in LMICs also have prioritized provider education and training, 2,20,21 as have several landmark guidance documents addressing the integration of PC into existing health care services 22 .…”

Section: Introductionmentioning

confidence: 99%

The central role of provider training in implementing resource‐stratified guidelines for palliative care in low‐income and middle‐income countries: Lessons from the Jamaica Cancer Care and Research Institute in the Caribbean and Universidad Católica in Latin America

Stoltenberg

Spence

Daubman

et al. 2020

Cancer

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Individuals in low‐income and middle‐income countries (LMICs) account for approximately two‐thirds of cancer deaths worldwide, and the vast majority of these deaths occur without access to essential palliative care (PC). Although resource‐stratified guidelines are being developed that take into account the actual resources available within a given country, and several components of PC are available within health care systems, PC will never improve without a trained workforce. The design and implementation of PC provider training programs is the lynchpin for ensuring that all seriously ill patients have access to quality PC services. Building on the Breast Health Global Initiative's resource‐stratified recommendations for provider education in PC, the authors report on efforts by the Jamaica Cancer Care and Research Institute in the Caribbean and the Universidad Católica in successfully developing and implementing PC training programs in the Caribbean and Latin America, respectively. Key aspects of this approach include: 1) fostering strategic academic partnerships to bring additional expertise and support to the effort; 2) careful adaptation of the curriculum to the local context and culture; 3) early identification of feasible metrics to facilitate program evaluation and future outcomes research; and 4) designing PC training programs to meet local health system needs.

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Palliative Care in the Global Setting: ASCO Resource-Stratified Practice Guideline

Cited by 65 publications

References 53 publications

An EAPC white paper on multi-disciplinary education for spiritual care in palliative care

An EAPC white paper on multi-disciplinary education for spiritual care in palliative care

Challenges of palliative care for children with cancer in Iran: a review

The central role of provider training in implementing resource‐stratified guidelines for palliative care in low‐income and middle‐income countries: Lessons from the Jamaica Cancer Care and Research Institute in the Caribbean and Universidad Católica in Latin America

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