Palliative care interventions in advanced dementia

Walsh, Sharon; Murphy, Edel; Devane, Declan; Sampson, Elizabeth L; Connolly, Sheelah; Carney, Patricia A.; O’Shea, Eamon

doi:10.1002/14651858.cd011513.pub3

Cited by 21 publications

(8 citation statements)

References 101 publications

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“…Lo anterior es lo que autores como Walsh et al (2021) y Maroto-Martinez et al (2023) refieren como voluntades anticipadas, piedra angular de los cuidados paliativos, pues a partir de esto se determina y se guia a los profesionales sanitarios y a los familiares, sobre, no solo el respeto de las preferencias de los pacientes, sino que además se convierte en una decisión de cumplimiento irrestricto en terminos de la ética que se persigue desde los cuidados paliativos.…”

Section: Resultados Y Discusiónunclassified

Aproximación a la Intervención de la Demencia desde los Cuidados Paliativos

Cisneros Orozco,

De La O Diaz,

Mata Brenes

2024

Ciencia Latina

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This research explores dementia and its characteristics, along with an approach from the perspective of palliative care intervention. The theoretical framework is structured from the elements that characterize dementia, the differential diagnosis with respect to dementia whose origin is of another etiology, together with a general vision of palliative care and the intervention models that are developed from this. . The methodology used was a bibliographic review, focused on studies that had a close relationship with the topic under study and that also allowed us to have an updated vision of the topic. Among the discussion elements, the importance of having a holistic perspective in the treatment of the dementia patient is highlighted, which covers the clinical, emotional, social and spiritual aspects. Also, the importance of respect for the patient's autonomy is emphasized, this being a key aspect for the decisions that will be made in the therapeutic process.

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Section: Resultados Y Discusiónunclassified

Aproximación a la Intervención de la Demencia desde los Cuidados Paliativos

Cisneros Orozco,

De La O Diaz,

Mata Brenes

2024

Ciencia Latina

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“…It is clear that soliciting care values is an important part of the decision-making process. Other prior studies have focused on learning about the preferences of persons with dementia and incorporating them in end-of-life decisions (Dening et al, 2013; Hill et al, 2017; Winter & Parker, 2007), and working with clinicians to optimize person-centered palliative care (Eisenmann et al, 2020; Harrison Dening et al, 2019; Walsh et al, 2021). In the current study, although individual values were a key aspect of decision making, contextual factors such as environment and community were also identified as essential to decision making.…”

Section: Discussionmentioning

confidence: 99%

“…The spectrum of supported decisions to be made in the context of dementia ranges from everyday choices (e.g. regarding activities of daily living, physical activity, intimacy and socialization) (Miller et al, 2016(Miller et al, , 2019Reamy et al, 2013;Whitlatch et al, 2005) to more complex decisions regarding advance care planning and end-of-life care (Browne et al, 2021;Harrison Dening et al, 2019;Jimenez et al, 2018;Walsh et al, 2021). In between these two ends of the decision-making spectrum, there are a variety of decisions that may need to be made about higher levels of supportive care such as hiring formal caregivers or other types of in-home help (e.g., use of cleaning or meal services, medical transport), using adult day care services, or seeking an appropriate care facility.…”

Section: Introductionmentioning

confidence: 99%

Supportive care decision-making processes of persons with dementia and their caregivers

Taylor,

Child,

Sharma

et al. 2023

Dementia

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Little is known about the decision-making processes around seeking more supportive care for dementia. Persons with dementia are often left out of decision-making regarding seeking more supportive care as their dementia progresses. This paper provides a description of findings from the Decision-making in Alzheimer’s Research project (DMAR) investigating the process of decision-making about transitions to more supportive care. We conducted 61 qualitative interviews with two stakeholder groups: 24 persons with dementia, and 37 informal caregivers to explore supportive care decisions and associated decision-making factors from the perspectives of persons with dementia and their caregivers. We identified four main decisions that persons with dementia and their informal caregivers played a role in: (1) sharing household responsibilities; (2) limiting routine daily activities; (3) bringing in formal support; and (4) moving to a care facility. Based on our findings we developed a schematized roadmap of decision-making that we used to guide the discussion of our findings. Four crosscutting themes emerged from our analysis: unknowns and uncertainties, maintaining life as you know it, there’s no place like home and resource constraints. These results will be incorporated into the development of instruments whose goal is to identify preferences of persons with dementia and their caregivers, in order to include persons with dementia in care decisions even as their dementia progresses.

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“…For example, they risk medical overtreatment 29 and undertreatment of symptoms and that the demen-30 tia is not always recognized as a progressive, terminal 31 condition [1]. Specialized residential dementia pal-32 liative care has been introduced in the 1980 s in the 33 US [2][3][4]. However, other than such residential, or 34 advance care planning programs, few services based 35 on the current, growing evidence base on the spe-36 cific needs in dementia at the end of life have been described and evaluated [5,6].…”

Section: Introductionmentioning

confidence: 99%

Implementing Palliative Care Teams Specialized in Dementia in Two Countries: Experiences of Failure and Success

Steen

Leussen²,

Ballentine³

et al. 2023

JAD

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Much is known about palliative care needs of persons with dementia and their family. Less is known about how to successfully implement models that address those needs. We present specialist models in the Netherlands (2017-2018) and Northern Ireland (2016-2017) contrasting its evaluations. From implementation failure in the Netherlands compared with successful implementation in Northern Ireland, we learn that recognizing roles and competencies among all involved is essential in developing effective partnership relationships. All of this is facilitated by referral before the end of life and offering various training programs and in-patient and out-patient services and therapies to show benefits early.

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Palliative care interventions in advanced dementia

Cited by 21 publications

References 101 publications

Aproximación a la Intervención de la Demencia desde los Cuidados Paliativos

Aproximación a la Intervención de la Demencia desde los Cuidados Paliativos

Supportive care decision-making processes of persons with dementia and their caregivers

Implementing Palliative Care Teams Specialized in Dementia in Two Countries: Experiences of Failure and Success

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