Palliative care needs of patients with gynaecologic cancer

Seven, Memnun; Şahin, Eda; Yılmaz, Sakine; Akyüz, Aygül

doi:10.1111/jocn.13280

Cited by 13 publications

(10 citation statements)

References 23 publications

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“…Two recent Turkish studies reported on the needs of women with gynaecological cancer, revealing a high prevalence of symptoms and unmet palliative care needs (Akkuzu et al, 2018; Seven, Sahin, Yilmaz, & Akyuz, 2016). Akkuzu et al (2018) also identified that women required knowledge on pain management, daily living activities and psychological support.…”

Section: Introductionmentioning

confidence: 99%

Gaining insight into the supportive care needs of women experiencing gynaecological cancer: A qualitative study

Williams

Griffin

Farrell

et al. 2020

Journal of Clinical Nursing

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Aim and objectives: To gain insight into the supportive care needs of Western Australian women experiencing gynaecological cancer. Background: Meeting the supportive care needs of people living with cancer is becoming increasingly important as advances in cancer treatment contribute to growing numbers of survivors. International evidence suggests between 24%-56% of women with gynaecological cancer have unmet supportive care needs and that psychological challenges, information provision and holistic care are priorities. No qualitative investigation has previously explored women's journey of gynaecological cancer within the Australian setting. Design: A qualitative descriptive design was used. Methods: Women treated for gynaecological cancer were recruited from a tertiary public women's hospital in Western Australia. Thematic analysis was conducted on qualitative data collected from 190 women over 12 months through written openended survey responses and telephone interviews. The COnsolidated criteria for REporting Qualitative research (COREQ) guided presentation of results. Results: Analysis yielded five themes and four subthemes: (a) Communication style directs the experience (subthemes: feeling supported; absence of empathy); (b) It's not just about the disease (subthemes: life has changed; holistic care); (c) A desire for information; (d) Drawing upon resilience; and (e) Navigating the system. Discussion: Exploration of the women's needs leads to the discussion of three concepts. Communication styles, harnessing women's resilience and alternative models of care are evaluated for their capacity to improve care and women's quality of life into survivorship. Recommendations are made for further research and possible interventions that can be translated into the clinical setting. Conclusion: Women with gynaecological cancer described complex often unmet supportive care needs and interactions with the healthcare system. Insight gained directs suggestions for improved service provision. | 1685 WILLIAMS et AL. S U PP O RTI N G I N FO R M ATI O N Additional supporting information may be found online in the Supporting Information section. How to cite this article: Williams N, Griffin G, Farrell V, Hauck YL. Gaining insight into the supportive care needs of women experiencing gynaecological cancer: A qualitative study. J Clin

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Section: Introductionmentioning

confidence: 99%

Gaining insight into the supportive care needs of women experiencing gynaecological cancer: A qualitative study

Williams

Griffin

Farrell

et al. 2020

Journal of Clinical Nursing

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“…Two recent Turkish studies also investigated the needs of women with gynaecological cancer using other tools. For example, the Three Levels of Needs Questionnaire (3LNQ) measured the intensity and burden of symptoms of 134 gynaecological cancer patients revealing a high prevalence of symptoms and unmet palliative care needs [ 15 ]. The second Turkish study from 2016 also reported the learning needs of 92 women with gynaecological cancer using the Patient Learning Needs Scale (PLNS) suggesting that women required knowledge on subjects such as pain management, daily living activities, and psychological support [ 16 ].…”

Section: Introductionmentioning

confidence: 99%

The supportive care needs of women experiencing gynaecological cancer: a Western Australian cross-sectional study

et al. 2018

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BackgroundWomen diagnosed with gynaecological cancer experience supportive care needs that require care provision to reduce the impact on their lives. International evidence suggests supportive care needs of women with gynaecological cancer are not being met and provision of holistic care is a priority area for action. Knowledge on gynaecological cancer supportive care needs is limited, specifically comparison of needs and cancer gynaecological subtype.Our aim was to identify supportive care needs of Western Australian women experiencing gynaecological cancer, their satisfaction with help and explore associations between participant’s demographic characteristics and identified needs.MethodsA cross-sectional design incorporating a modified version of the Supportive Care Needs Survey – short form (SCNS-SF34) assessed 37 supportive care needs under five domains in conjunction with demographic data. Three hundred and forty three women with gynaecological cancer attending a tertiary public referral hospital completed the survey over 12 months. Statistical analysis was performed using the R environment for statistical computing. A linear regression model was fitted with factor scores for each domain and demographic characteristics as explanatory variables.ResultsThree hundred and three women (83%) identified at least one moderate or high level supportive care need. The five highest ranked needs were, ‘being informed about your test results as soon as feasible’ (54.8%), ‘fears about cancer spreading’ (53.7%), ‘being treated like a person not just another case’ (51.9%), ‘being informed about cancer which is under control or diminishing (that is, remission)’ (50.7%), and ‘being adequately informed about the benefits and side-effects of treatments before you choose to have them’ (49.9%). Eight of the top ten needs were from the ‘health system and information’ domain. Associations between supportive care items and demographic variables revealed ‘cancer type’, and ‘time since completion of treatment’ had no impact on level of perceived need for any domain.ConclusionsWestern Australian women with gynaecological cancer identified a high level of supportive care needs. The implementation of a supportive care screening tool is recommended to ensure needs are identified and care is patient-centred. Early identification and management of needs may help to reduce the burden on health system resources for managing ongoing needs.Electronic supplementary materialThe online version of this article (10.1186/s12885-018-4812-9) contains supplementary material, which is available to authorized users.

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“…However, it is emphasized in the literature that providing palliative care by a multidisciplinary team of specially trained nurses and healthcare workers is very important in terms of increasing the quality of life by meeting the need for effective care. 26,[29][30][31][32][33] In palliative care, it is emphasized that nurses must meet all physical and psychosocial needs of patients. 26,32,[34][35][36][37] In the study of Temelli 26 with nurses, it was determined that she expressed the ideal palliative care as providing psychological support and taking care of the patient with her loved ones painlessly, effectively, and happily.…”

Section: Discussionmentioning

confidence: 99%

“…Similarly, in our study, the fact that the majority of nurses agreed with the statement “the head of the palliative care team is a doctor” supports the previous study findings. However, it is emphasized in the literature that providing palliative care by a multidisciplinary team of specially trained nurses and healthcare workers is very important in terms of increasing the quality of life by meeting the need for effective care 26,29–33 …”

Section: Discussionmentioning

confidence: 99%

Nurses' views and applications on palliative care

Lafçı

Yıldız

Pehlıvan

2020

Perspect Psychiatr Care

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Purpose: This study was carried out descriptively to determine the view and applications about pallative care of nurses working in a university hospital.Design and Methods: The data were collected with the questionnaire form: "Individual Information Form" and "Views and Appllications on Palliative Care," created by the researchers in line with the literature.Findings: A total of 96.6% of the nurses evaluated the scope of palliative care as pain relief, and the most common difficulties in care were identified as bad news (88.1%). In all, 22.0% of the nurses talked to the patient and their family about death.Practice Implications: It is thought that the majority of nurses are not trained in palliative care and their opinions about palliative care are affected by this situation.

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Palliative care needs of patients with gynaecologic cancer

Abstract: Nurses trained in palliative care are needed to evaluate and meet cancer patients' needs regularly to improve quality of palliative care. Nurses should examine the underlying reasons for most prevalent problems and give nursing care accordingly.

Cited by 13 publications

References 23 publications

Gaining insight into the supportive care needs of women experiencing gynaecological cancer: A qualitative study

Gaining insight into the supportive care needs of women experiencing gynaecological cancer: A qualitative study

The supportive care needs of women experiencing gynaecological cancer: a Western Australian cross-sectional study

Nurses' views and applications on palliative care

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