Palliative care nursing involvement in end-of-life decision-making: Qualitative secondary analysis

Hernández-Marrero, Pablo; Fradique, Emília; Pereira, Sandra Martins

doi:10.1177/0969733018774610

Cited by 25 publications

(21 citation statements)

References 88 publications

(142 reference statements)

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“…4,[7][8][9][10] It requires the establishment of a dynamic caring relationship with the patient and family to reduce suffering, and also among nurses themselves and the multi-professional healthcare team. [11][12][13][14][15][16][17][18][19][20][21] Although nursing and palliative care share common roots, goals, and values, to advance palliative care nursing practice, it is essential to discern the unique contribution of nursing to the field of palliative care. The goal of palliative care is to prevent and relieve suffering, and to support the best possible quality of life for patients and their families, regardless of the stage of the disease or the need for other therapies.…”

Section: Introductionmentioning

confidence: 99%

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Nursing education on palliative care across Europe: Results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

et al. 2020

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Background: Nurses are the largest regulated group of healthcare professionals involved in palliative care. In 2004, a taskforce of the European Association for Palliative Care (EAPC) launched the ‘Guide for development of palliative nurse education in Europe’ (hereinafter, the EAPC 2004 Guide). No systematic evaluation of its impact in the development of palliative care education was undertaken. Aims: To describe current undergraduate and postgraduate nursing education across Europe; to identify the roles that nurses with different palliative care educational levels have in palliative care; and to assess the uptake of the EAPC 2004 Guide in the development of palliative care nursing in Europe. Design: Descriptive research involving an online survey among nursing experts, and the consultation of national representatives. Setting/participants: A total of 135 nurses (52% response rate) from 25 countries completed the online survey; representatives from 16 countries were consulted. Results: In 14 (56%) countries, palliative care was not identified as a mandatory subject within undergraduate nursing education. The EAPC 2004 Guide is widely known and was/is being used in many countries to promote palliative care nursing education. Large variations were found across and within country responses. Conclusions: Palliative care nursing education varies largely in Europe. The wide awareness and use of the EAPC 2004 Guide show how policy measures can influence the development of palliative care education. Recommendations are built and focus on both fostering the use of this guide and implementing policy measures to ensure that palliative care nursing is recognised and certified as a specialty in all European countries.

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Section: Introductionmentioning

confidence: 99%

“…4,7–10 It requires the establishment of a dynamic caring relationship with the patient and family to reduce suffering, and also among nurses themselves and the multi-professional healthcare team. 11–21…”

Section: Introductionmentioning

confidence: 99%

Nursing education on palliative care across Europe: Results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

et al. 2020

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“…In home care, community nurses often work alone and therefore often face ethical issues or ethical dilemmas by themselves. 9,18,19 While different terms are used to denote moral problems, for example, “moral issues” or “moral conflict,” moral problems are most frequently referred to as “ethical dilemmas” or “moral dilemmas.” 20 Dilemma as a concept refers to involvement with a situation, an awareness of alternatives, the need to make a decision, and uncertainty about the best solution. 21 Therefore, one may state that the concept of an ethical dilemma is linked to choices and conflicts between values, principles, and duties.…”

Section: Introductionmentioning

confidence: 99%

“…Ethical issues at the end of life may also concern questions about palliative sedation, 56 often mentioned as the most delicate and ethical issue in end-of-life care. 18 Ethical issues can be related to a lack of family understanding or relatives’ unrealistic treatment expectations and demands. 16,34,36,57 These demands give nurses experiences of powerlessness.…”

Section: Introductionmentioning

confidence: 99%

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Dealing with ethical and existential issues at end of life through co-creation

Hemberg

Bergdahl

2019

Nurs Ethics

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Background In research on co-creation in nursing, a caring manner can be used to create opportunities for the patient to reach vital goals and thereby increase the patient’s quality of life in palliative home care. This can be described as an ethical cornerstone and the goal of palliative care. Nurses must be extra sensitive to patients’ and their relatives’ needs with regard to ethical and existential issues and situations in home care encounters, especially at the end of life. Aim The aim of this study was to explore nurses’ experiences of dealing with ethical and existential issues through co-creation at the end of life in palliative home care. Research design, participants, and research context The material consisted of texts from interviews with 12 nurses in a home care context. A hermeneutical approach was used, and the method was inspired by a thematic analysis. Ethical considerations Informed consent was sought from the participants regarding study participation and the storage and handling of data for research purposes. Ethical permission to conduct the study was given from organizations that participated in this study. Findings A main theme and four subthemes emerged. The main theme was “Deep co-creative relationships are needed to manage ethical and existential issues at the end of life.” A model was created to display the findings and relations between ethical issues and situations and the need for a deep trustful caring relationship to solve problems in palliative home care. Discussion Together, the themes can be considered as a tool for learning and dealing with ethical and existential issues at the end of life in home care. The themes can also be seen as a part of nurses’ ethical competence within this context. Conclusion The quality of life at the end of life can be improved through co-creation, despite difficult ethical and existential issues. Future research should focus on co-creation from the patients’ perspective.

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Palliative Care und Total Pain – Bezugspunkte für ethisch begründete Entscheidungen in der stationären Langzeitpflege

Riedel

Lehmeyer

2022

Springer Reference Pflege – Therapie – Gesundheit

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Palliative care nursing involvement in end-of-life decision-making: Qualitative secondary analysis

Abstract: While the Guide does not explicitly mention nurses in its content, this study shows that nurses working in palliative care in Portugal are involved in these processes. Further research is needed on nurses' involvement and practices in end-of-life decision-making.

Cited by 25 publications

References 88 publications

Nursing education on palliative care across Europe: Results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

Nursing education on palliative care across Europe: Results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

Dealing with ethical and existential issues at end of life through co-creation

Palliative Care und Total Pain – Bezugspunkte für ethisch begründete Entscheidungen in der stationären Langzeitpflege

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