Palliative care volunteer roles in Nordic countries: qualitative studies—systematic review and thematic synthesis

Stoelen, Karen Marie Sangild; Raunkiær, Mette; Winther, Kirstine; Grubert, M. V.; Bøgeskov, Benjamin Olivares

doi:10.1136/bmjspcare-2021-003330

Cited by 2 publications

(1 citation statement)

References 28 publications

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“…This research moves away from the academic tradition of large-scale volunteer surveys with average findings reported (Omoto and Snyder, 2002; Mowen and Sujan, 2005; Clary et al , 1996; Clary et al , 2015) to a more holistic understanding of personal choices around volunteering through qualitative investigation of real life in practice (Schatzki, 2001). Interestingly, this broadening of methodological approaches to understand volunteering has been prevalent in other disciplines such as medical studies (Stoelen et al , 2021), tourism (Magrizos et al , 2021) and recent responses to Covid (Lai and Wang, 2022).…”

Section: Volunteer Theory: Meeting Personal Needsmentioning

confidence: 99%

Reframing the practice of volunteering as a collective endeavour through a focal brand community

Mitchell

2023

EJM

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Purpose Nonprofit organisations (NPOs) are an increasingly fundamental part of our society. Meeting rising demand requires NPOs to attract enough resources, especially volunteers, to enable service delivery. This paper aims to adopt a novel theoretical lens to reframe this marketing challenge to inform practice and extend theory. Design/methodology/approach Practice-based exploration of a volunteer-enabled NPO, parkrun, through in-depth interviews and secondary source analysis. Findings The research identified that the brand community connects volunteers through three inter-connected levels. The big idea of parkrun, the focal brand, resonated with people through being “on their wavelength”, something they believed in. The local, physical event meant engagement was “on their patch”, anchored in place. Finally, the brand community enables people to volunteer “on their terms”, with fluid roles and flexible levels of commitment. Research limitations/implications Not all NPOs have service beneficiaries who are able to volunteer, services with different volunteering roles, or operate through a local physical presence. However, taking a focal brand approach to consider the brand community through which people volunteer for an NPO, the practices that reinforce that community, and how to offer volunteers significantly greater flexibility in both role and commitment presents an opportunity for NPOs to rethink how volunteering works for them in the future. Practical implications Clear recommendations for practice include the opportunity to integrate service beneficiary with service delivery enabler (volunteer) to strengthen the implicit social contract, increasing participation to deepen the social identity felt towards the brand, and key practices that reduce barriers to volunteering. Originality/value The paper extends volunteering theory from the traditional individual needs approach to a focal brand community perspective. The marketing challenge of attracting volunteer resources to NPOs is understood through rethinking the boundaries between service beneficiaries and service enablers, anchored in social identity theory. It provides clear recommendations for practice through reframing the recruitment challenge.

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Section: Volunteer Theory: Meeting Personal Needsmentioning

confidence: 99%

Reframing the practice of volunteering as a collective endeavour through a focal brand community

Mitchell

2023

EJM

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Unmet care needs of patients with advanced cancer and their relatives: multicentre observational study

Driessen¹,

Busschbach²,

Rijt³

et al. 2023

BMJ Support Palliat Care

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ObjectivesThe care needs of patients with advanced cancer and their relatives change throughout the disease trajectory. This study focused on the care-related problems and needs of patients with advanced cancer and their relatives. This was done from the perspective of centres for information and support.MethodsThis cross-sectional study used data from the eQuiPe study: an observational cohort study in which 40 Dutch hospitals participated. All adult patients with a diagnosis of a metastasised tumour and their relatives were eligible. Measures included information on the patients’ and relatives’ care problems and needs, assessed by the short version of the Problems and Needs in Palliative Care questionnaire. Socioeconomic demographics were also collected.Results1103 patients with advanced cancer and 831 relatives were included. Both patients (M=60.3, SD=29.0) and relatives (M=59.2, SD=26.6) experienced most problems in the domain of ‘psychological issues’. Both patients (M=14.0, SD=24.2) and relatives (M=17.7, SD=25.7) most frequently reported unmet needs within this domain. The most often reported unmet need by patients was ‘worrying about the future of my loved ones’ (22.0%); for relatives this was ‘fear for physical suffering of the patient’ (32.8%). There was no clear relationship between socioeconomic demographics and the experienced unmet needs.ConclusionsThe most often mentioned unmet needs consisted of fears and worries, followed by a broad range of topics within multiple domains. Centres for information and support may play a role in reducing the unmet needs of (potential) visitors as these centres provide support on a broad range of topics.

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Palliative care volunteer roles in Nordic countries: qualitative studies—systematic review and thematic synthesis

Cited by 2 publications

References 28 publications

Reframing the practice of volunteering as a collective endeavour through a focal brand community

Reframing the practice of volunteering as a collective endeavour through a focal brand community

Unmet care needs of patients with advanced cancer and their relatives: multicentre observational study

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