Parallel Tracks

Goode, Tawara D.; Carter‐Pokras, Olivia; Horner‐Johnson, Willi; Yee, Silvia

doi:10.1097/mlr.0000000000000201

Cited by 25 publications

(2 citation statements)

References 35 publications

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“…Furthermore, the disability community and disability researchers have asserted that ethical tensions between academics and community members can be reduced when researchers with disabilities direct study design, analysis, and dissemination (Barnes, 2003;Zarb, 1992). Despite the philosophical recognition of the value of community engagement in research, there is need for additional direction for how to engage individuals with IDD in inclusive research (Goode et al, 2014). In this manuscript, we define inclusive research for individuals with IDD and discuss how Photovoice is one methodological tool that can be utilized to fulfill the criteria of inclusive research.…”

Section: Introductionmentioning

confidence: 99%

Photovoice with Individuals with Intellectual and/or Developmental Disabilities: Lessons Learned from Inclusive Research Efforts

Williamson

Heumen

Schwartz

2020

Collaborations: A Journal of Community-Based Research and Practice

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Inclusive research is an approach in which individuals with intellectual and/or developmental disabilities (IDD) are included as co-researchers throughout the research processes, and has demonstrated benefits for people with IDD. Because inclusive research is still not common within disability research, it is important for research teams to provide reflections and lessons learned to encourage future inclusive approaches. This paper provides case studies of two research projects completed in collaboration with adults with IDD using Photovoice as an approach that can increase access to the research process for co-researchers with IDD. Drawing upon previously defined inclusive research criteria, we reflect on lessons learned and challenges. Inclusive research requires time, flexibility, shared power, clear communication, and cultural humility. Across both studies, we discuss the importance of clear communication with Institutional Review Boards and collaboration with the extended support networks of individuals with IDD. We reflect on how the accessible nature of Photovoice supports inclusive research teams to combine the strengths of co-researchers with IDD and academically trained researchers, such that the knowledge production process is shifted to co-researchers with IDD.

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Section: Introductionmentioning

confidence: 99%

Photovoice with Individuals with Intellectual and/or Developmental Disabilities: Lessons Learned from Inclusive Research Efforts

Williamson

Heumen

Schwartz

2020

Collaborations: A Journal of Community-Based Research and Practice

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“…Understanding the impact of race and culture on health care delivery continues to be an ever-evolving concept that affects nursing practice (Horner-Johnson, Fujiura, & Goode, 2014). While nurses are taught to embrace language, race, ethnicity, customs, and beliefs, these elements of culture may affect care delivery in both hospital and clinic settings (Goode, Carter-Pokras, Horner-Johnson, & Yee, 2014). As such, cultural competence has been shown to be important in the delivery of care between the nurse and the patient (Garneau & Pepin, 2015).…”

Section: Introductionmentioning

confidence: 99%

Exploring Provider Cultural Competence and Patient Mood in an Outpatient Apheresis Unit

et al. 2019

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Introduction: Health care and culture are important to patient care. Theoretical frameworks, service delivery, and self-awareness are important to the provider/patient. Provider care varies, and studies are needed to understand the current interactions between providers, patients, and culture. Methodology: This was a prospective, descriptive correlational pilot study. Providers and patients completed a baseline assessment of culture, as well as a Brief Mood Introspection Scale at each visit at the patient’s standard of care visit (i.e., visit as part of clinical procedures). Results: The providers and baseline assessment of culture showed higher than average cultural awareness. All four mood subscales show no statistically significant differences in patient or providers’ mood. There were no significant differences in mood when considering differences and similarities between gender, race, and ethnicity. Discussion: There was no difference in patient or provider mood in this study when based on the differences or similarities in gender, race, and ethnicity.

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Social Work Practice and Disability Issues

Moro¹,

Brashler²

2019

Handbook of Health Social Work

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Parallel Tracks

Cited by 25 publications

References 35 publications

Photovoice with Individuals with Intellectual and/or Developmental Disabilities: Lessons Learned from Inclusive Research Efforts

Photovoice with Individuals with Intellectual and/or Developmental Disabilities: Lessons Learned from Inclusive Research Efforts

Exploring Provider Cultural Competence and Patient Mood in an Outpatient Apheresis Unit

Social Work Practice and Disability Issues

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