Parent and Provider Perspectives on Procedural Care for Children with Autism Spectrum Disorders

Davignon, Meghan N.; Friedlaender, Eron; Cronholm, Peter F.; Paciotti, Breah; Levy, Susan E.

doi:10.1097/dbp.0000000000000036

Cited by 53 publications

(82 citation statements)

References 20 publications

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“…Recent empirical research has supported this link between sensory processing and dental care difficulties in children with ASD (Stein et al, 2011; Stein et al, 2013; Stein et al, 2014). Likewise, sensory challenges have been reported to occur in other healthcare environments, such as the hospital (Davignon et al, 2014; Muskat et al, 2014), primary care (Pfeiffer & Stein, 2016), and the emergency room (Giarelli et al, 2014). If dental professionals are aware of and understand the potential impact of sensory sensitivities on children with ASD, there are many adaptations that can be made to help the child and their family feel more comfortable with care.…”

Section: Discussionmentioning

confidence: 99%

Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration

Duker

Henwood

Bluthenthal

et al. 2017

Research in Autism Spectrum Disorders

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Background Many children with autism spectrum disorders (ASD) experience barriers to oral care in the dental office setting. The purpose of this study was to provide an increased understanding of these challenges experienced during oral care in the dental office by children with ASD. Method This study was part of a larger mixed methods design and builds on quantitative results from a survey of parents of children with ASD ages 2–18 in which parents reported difficulties with access to care, sensory processing, and uncooperative behaviors. For this study, we conducted two, three hour, focus groups of parents of male children with ASD age 5–18 years in order to explore the survey results in greater depth. Focus group transcripts were analyzed using a template coding approach based on the three domains of office-based oral care challenges identified in the first phase (survey). Results Several related themes emerged including: (1) Access: “Difficult to find the right dentist”, (2) Sensory sensitivities: “All the sensory devices just make him so uncomfortable”, (3) Restraint: “It looked like they were torturing him”, and (4) Drugs: “A mixed bag”. Conclusions The qualitative findings from this study both confirmed our previous survey findings and expanded upon them. These findings can help professionals better understand the challenges experienced by children with ASD and their parents as well as help identify priorities for planning efforts to address the oral health-related needs of this population.

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Section: Discussionmentioning

confidence: 99%

Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration

Duker

Henwood

Bluthenthal

et al. 2017

Research in Autism Spectrum Disorders

View full text Add to dashboard Cite

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“…Put simply, when unaware to the child's disability, the nurses did not have the chance to specifically prepare for the child. Previous research has revealed that the absence of any structure in place for preparation, the knowledge and the attitude of the nurse can only help a child with ASD to a limited extent (17,24,29,30). This study's findings occasionally revealed special and experienced staff working with these children in certain departments.…”

Section: Discussionmentioning

confidence: 79%

“…This would help to prevent noncompliant behavior from the child (17,33,34). Davignon et al (2014) found that alterations in the organization and administration of healthcare services is essential for the successful care of children with ASD (24).…”

Section: Discussionmentioning

confidence: 99%

“…Other researchers have found that general knowledge about autism by practitioners (as well as knowing the specific child with ASD) in advance of the procedure can enhance the possibility for a calm anesthesia induction, thus relieving (or at least mitigating) any suffering for the child (17,21,22). Routinely, parents have reported frustration with the healthcare system for its lack of proper routines, and the lack of understanding about the impact of the disorder or its effects on their children's behavior (17,23,24). A child with ASD has communications problems including difficulty reading social cues and understanding symbols.…”

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confidence: 99%

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Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Berglund

Huus

Enskär

et al. 2016

J Dev Behav Pediatr

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Perioperative and anesthesia guidelines for children with autism: A nationwide survey from Sweden. Developmental and Behavioral Pediatrics, 37(6) The overall aim of this study was to describe the current set of guidelines for the preparation and care for children with Autism spectrum disorder (ASD) in the perioperative setting across Sweden and explore the content of these guidelines in detail. Method: An online questionnaire was distributed to the chairpersons of all anesthesia departments (n= 68) and pediatric departments (n= 38) throughout Sweden. Follow-up phone calls were made to those departments that did not return the questionnaire. The presence of guidelines was analyzed via descriptive statistics. These guidelines and comments on routines used in these departments were analyzed inspired by conventional content analysis. Results: Seven out of the 68 anesthesia departments and none out of the 38 pediatric departments across Sweden have guidelines for preparing and/or administering care to children with ASD within the perioperative setting. From the guidelines and routines used, 3 categories emerge: "lacking the necessary conditions," "no extra considerations needed" and "care with specific consideration for children with ASD." These 3 categories span a continuum in the care. In the first category, the anesthesia induction could result in the child with ASD being physically restrained. In the last category, the entire encounter with the health care service would be adapted to the specific needs of the child. Conclusion: There is a lack of evidence-based guidelines specifically designed to meet the needs of children with ASD in the preoperative period in Sweden. Further research is needed to understand if children with ASD would benefit from evidence-based guidelines. Journal of

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“…Autism spectrum disorders occur in 1 of 68 children, and children with autism spectrum disorders have a higher likelihood of needing medical services than do normally developing children . Many medical services such as radiologic imaging, neurophysiologic studies, phlebotomy, and other procedures require procedural sedation . Children with autism spectrum disorders pose challenges for sedationists and anesthesiologists because of a variety of behavioral, sensory, and communication issues .…”

Section: Introductionmentioning

confidence: 99%

Procedural sedation in children with autism spectrum disorders: A survey of current practice patterns of the society for pediatric sedation members

Kamat

Bryan

Simon

et al. 2018

Pediatric Anesthesia

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Parent and Provider Perspectives on Procedural Care for Children with Autism Spectrum Disorders

Cited by 53 publications

References 20 publications

Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration

Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration

Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Procedural sedation in children with autism spectrum disorders: A survey of current practice patterns of the society for pediatric sedation members

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