Parent experiences of a specialist intervention service for mental health difficulties in children with autistic spectrum disorder

Kingston, Cara; Hibberd, Charlotte; Ozsivadjian, Ann

doi:10.1111/j.1475-3588.2012.00667.x

Cited by 4 publications

(5 citation statements)

References 21 publications

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“…Although this belief may act as a buffer for parents to cope, it is important to note that there is no cure for autism. 12 These beliefs should not be left alone as it may lead to false hopes or a continuous denial of the diagnosis, possibly leading to maladaptation to the disorder and impairment in the family’s quality of life. Thus relevant health care professionals such as counselors need to ensure that parents are aware of this fact and help them overcome the psychological impact of the diagnosis while guiding them toward acceptance.…”

Section: Discussionmentioning

confidence: 99%

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A meta-synthesis on parenting a child with autism

Ooi¹,

Ong²,

Jacob³

et al. 2016

NDT

106

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BackgroundThe lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services.MethodsA systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included.ResultsA total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation.ConclusionHealth care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism.

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Section: Discussionmentioning

confidence: 99%

“… 10 , 11 Other core symptoms involve the lack of or poor language skills and repetitive speech. 9 ASD has no cure and is lifelong; 12 thus, currently available treatments are not directed for cure but are aimed at improving the overall functioning of the child with autism. 13 …”

Section: Introductionmentioning

confidence: 99%

A meta-synthesis on parenting a child with autism

Ooi¹,

Ong²,

Jacob³

et al. 2016

NDT

106

View full text Add to dashboard Cite

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“…The course, symptom severity, and behaviors can vary widely among individuals with ASD (Chang, Lung, Yen, & Yang, 2013). Services children with ASD may benefit from include supports for adaptive behavioral needs (Konst, Matson, Goldin, & Rieske, 2014), including social and communication skills (National Research Council, 2001) as well as for hyperactivity and inattention (Kingston, Hibberd, & Ozsivadjian, 2013; Konst et al, 2014; Ozonoff & Rogers, 2003). …”

mentioning

confidence: 99%

Family involvement and parent–teacher relationships for students with autism spectrum disorders.

Garbacz¹,

McIntyre²,

Santiago³

2016

School Psychology Quarterly

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Family educational involvement and parent-teacher relationships are important for supporting student outcomes and have unique implications for families of children with autism spectrum disorder (ASD). However, little research has examined child and family characteristics among families of children with ASD as predictors of family involvement and parent-teacher relationships. The present study examined child and family variables that may affect family involvement and parent-teacher relationships for families of children with ASD. Findings suggested (a) parents of children with higher developmental risk reported less family involvement and poorer relationships with their child's teacher and (b) family histories accessing services predicted family involvement and parent-teacher relationships. Limitations of the current study and implications for science and practice are discussed.

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“…The child’s disruptive behaviour is often attributed to the parents’ poor child rearing abilities, leaving them with feelings of being disrespected by health professionals when voicing their concerns. In a study conducted by Kingston, Hibberd, & Ozsivadjian, (2013) parents identified the need for improved access to the health service with increased support for children being hospitalised with autism spectrum disorder, and preferably with less of an institutionalised environment.…”

Section: Discussionmentioning

confidence: 99%

Navigating the care of families with a child or children with autistic spectrum disorder

Harvey

Willis

Brown

et al. 2022

J Intellect Disabil

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The aim of this project was to better understand nurse navigators work with children and families who are living with severe autism spectrum disorder to achieve improved health and wellbeing outcomes. Nurse navigators were introduced into the public health sector in Queensland in 2016, with 400 navigators currently working across 16 health services in diverse geographic and demographic settings. Narrative inquiry was used to explore one nurse navigator’s journey working with children and families living with severe Autism. The challenges of rigid health systems to adapt to the requirements of children with special needs, particularly in relation to care in the emergency department and where interventional procedures are necessary were apparent. Nurse navigators can effectively co-ordinate the care of an extremely vulnerable patient cohort and provide essential advocacy in a health system that is rigid and lacking the flexibility to deal with individual needs.

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Parent experiences of a specialist intervention service for mental health difficulties in children with autistic spectrum disorder

Cited by 4 publications

References 21 publications

A meta-synthesis on parenting a child with autism

A meta-synthesis on parenting a child with autism

Family involvement and parent–teacher relationships for students with autism spectrum disorders.

Navigating the care of families with a child or children with autistic spectrum disorder

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