Parent experiences of inpatient pediatric care in relation to health care delivery and sociodemographic characteristics: results of a Norwegian national survey

Abstract

BackgroundThe national survey of parent experiences with inpatient pediatric care contribute to the Norwegian system of health care quality indicators. This article reports on the statistical association between parent experiences of inpatient pediatric care and aspects of health care delivery, child health status and health outcome as assessed by the parents, and the parents’ sociodemographic characteristics.Methods6,160 parents of children who were inpatients at one of Norway’s 20 pediatric departments in 2005 were contacted to take part in a survey that included the Parent Experience of Pediatric Care questionnaire. It includes 25 items that form six scales measuring parent experiences: doctor services, hospital facilities, information discharge, information about examinations and tests, nursing services and organization. The six scales were analyzed using OLS-regression.Results3,308 (53.8%) responded. Mean scores ranged from 62.81 (organization) to 72.80 (hospital facilities) on a 0–100 scale where 100 is the best possible experience. Disappointment with staff, unexpected waiting, information regarding new medication, whether the staff were successful in easing the child’s pain, incorrect treatment and number of previous admissions had a statistically significant association with at least five of the PEPC scale scores. Disappointment with staff had the strongest association. Most sociodemographic characteristics had weak or no associations with parent experiences.ConclusionsThe complete relief of the child’s pain, reducing unexpected waiting and disappointment with staff, and providing good information about new medication are aspects of health care that should be considered in initiatives designed to improve parent experiences. In the Norwegian context parent experiences vary little by parents’ sociodemographic characteristics.

Family members’ experience with in-hospital health care after severe traumatic brain injury: a national multicentre study

“…Additionally, 60% reported that their economic needs were not taken care of. One Norwegian study have explored the satisfaction and experience of patients or relatives including a question regarding the hospital facilities [ 3 ].They reported a good satisfaction with the hospital facilities. The family members in the present study found the facilities for the patients to be generally satisfying but the facilities supporting rest and accommodation for family members to be poor has not been previously reported.…”

“…Severe traumatic brain injury (TBI) is internationally recognized as a major public health problem causing death and disability [ 1 – 3 ]. For survivors of severe TBI, the most common disabilities are associated with cognitive and behavioural deficits, which can impact the injured, caregivers and other family members for a long period of time [ 4 , 5 ].…”

Cuidados Em Saúde: Sociabilidades Cuidadoras E Subjetividades Emancipadoras

“…Houve textos que estavam presentes em mais de uma temática. As temáticas e suas respectivas referências foram: (a) as limitações do cuidado biomédico: Pescosolido, 2006;Brown e Flores, 2011;Burkhart e Hogan, 2008;Bahar et al, 2005;Edwards, Staniszweska e Crichton, 2004;Smith, 2009;Zimmermann e Rodin, 2004; (b) a sociabilidade nas ações de cuidado: Pescosolido, 2006;Carpentier, 2013;Carpentier e Grenier, 2012;Farrant e Watson, 2004;Denier, 2008;Dovidio et al, 2008;Ferlander, 2007;Fine, 2005 ;Greenhalgh, Robb e Scambler, 2006;Noone e Stephens, 2008;Prior, 2003;Salvalaggio et al, 2013;Sorensen e Iedema, 2008;Spates, 2012;Andersen et al, 2011; (c) o entrelaçamento entre cuidado e subjetividade: Pescosolido, 2006; Brown e Flores, 2011; Edwards, Staniszweska e Crichton, 2004;Zimmermann e Rodin, 2004;Carpentier, 2013;Basu, 2006;Hudson et al, 2006 ;Levy, 2005;Lopez, 2006;Schouffoer et al, 2011;Solheim e Garratt, 2013;Turner et al, 2003;Weeber, 2005;Wajid, White e Karim, 2013; práticas integrativas e complementares: Daykin, McClean e Bunt, 2007;Freidin e Timmermans, 2008;Gyasi et al, 2011;Isola, 2013;…”

The family experiences of in-hospital care questionnaire in severe traumatic brain injury (FECQ-TBI): a validation study

“…To ensure the content validity in the questionnaire developmental process, items from previous questionnaires assessing the experience of in-hospital patients [12–14] and parents [22, 23] were consulted. Further, selection of items was based on interviews with family members and the expert knowledge of the authors (i.e., UMS, CA and AA) on rehabilitative care after severe TBI or other acquired brain injuries.…”

“…There are family satisfaction questionnaires for use in the intensive care units [2, 20, 21], and parents’ views have been increasingly used in the evaluation of care quality for children [22, 23]. Theoretically close relatives to surviving injured patients have comparable in-hospital experiences to parents with chronically ill children, so we searched for a suitable parent experience instrument covering multiple dimensions of care.…”