Parent-mediated interventions for promoting communication and language development in young children with Down syndrome

O’Toole, Ciara; Lee, Alice S‐Y; Gibbon, Fiona; Bysterveldt, Anne K. van; Hart, Nicola

doi:10.1002/14651858.cd012089.pub2

Cited by 42 publications

(49 citation statements)

References 122 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Such prompting should eventually help promote children's spontaneous talk about mental states. Although we do not yet have evidence for caregiver-implemented shared storybook interventions increasing mental state language in children with DS (see O'Toole et al 52 ), results from interventions with other populations, such as fragile X syndrome, are particularly promising. For example, a caregiver-implemented shared storybook intervention for school-age children with fragile X syndrome has been successful in increasing children's mental state and inferential language use.…”

Section: Talk About Mental Statesmentioning

confidence: 92%

Mental State Language Use in Children with Down Syndrome and the Role of Caregivers

Channell

Bosley

2021

Semin Speech Lang

View full text Add to dashboard Cite

Children with Down syndrome (DS) have both strengths and difficulties in speech, language, and social communication. Mental state language—the ability to discuss others' perspectives such as their thoughts, feelings, and intentions—represents a foundational social communicative skill that is delayed in many children with DS, even into the school-age years. The purpose of this article is to review the evidence base on mental state language development in school-age children with DS, focusing in particular on assessment and intervention. We discuss assessment procedures that are both age appropriate and developmentally appropriate for this population. We also present preliminary data highlighting the role of caregivers in supporting mental state language development in school-age children with DS through shared storytelling. We propose that interventions aimed at supporting mental state language development in DS should include a focus on caregiver–child shared storybook reading, even in the school-age years. Therefore, we discuss key considerations for clinicians when teaching caregivers strategies for supporting mental state language and social communication in children with DS.

show abstract

Section: Talk About Mental Statesmentioning

confidence: 92%

Mental State Language Use in Children with Down Syndrome and the Role of Caregivers

Channell

Bosley

2021

Semin Speech Lang

View full text Add to dashboard Cite

show abstract

“…However, apart from the more common genetic syndromes, there is a paucity of information about this. 17 18 The American Heart Association reviewed the literature on children with CHD and concluded that they are at an increased risk of developmental delay, even once the frequent occurrence of genetic syndromes has been taken into account, particularly for neonates or infants requiring open heart surgery. 19 Wehby et al also showed that children with isolated orofacial clefts were at a much greater risk of low achievement at school than their classmates.…”

Section: Open Accessmentioning

confidence: 99%

EUROlinkCAT protocol for a European population-based data linkage study investigating the survival, morbidity and education of children with congenital anomalies

et al. 2021

View full text Add to dashboard Cite

IntroductionCongenital anomalies (CAs) are a major cause of infant mortality, childhood morbidity and long-term disability. Over 130 000 children born in Europe every year will have a CA. This paper describes the EUROlinkCAT study, which is investigating the health and educational outcomes of children with CAs for the first 10 years of their lives.Methods and analysisEUROCAT is a European network of population-based registries for the epidemiological surveillance of CAs. EUROlinkCAT is using the EUROCAT infrastructure to support 22 EUROCAT registries in 14 countries to link their data on births with CAs to mortality, hospital discharge, prescription and educational databases. Once linked, each registry transforms their case data into a common data model (CDM) format and they are then supplied with common STATA syntax scripts to analyse their data. The resulting aggregate tables and analysis results are submitted to a central results repository (CRR) and meta-analyses are performed to summarise the results across all registries. The CRR currently contains data on 155 594 children with a CA followed up to age 10 from a population of 6 million births from 1995 to 2014.EthicsThe CA registries have the required ethics permissions for routine surveillance and transmission of anonymised data to the EUROCAT central database. Each registry is responsible for applying for and obtaining additional ethics and other permissions required for their participation in EUROlinkCAT.DisseminationThe CDM and associated documentation, including linkage and standardisation procedures, will be available post-EUROlinkCAT thus facilitating future local, national and European-level analyses to improve healthcare. Recommendations to improve the accuracy of routinely collected data will be made.Findings will provide evidence to inform parents, health professionals, public health authorities and national treatment guidelines to optimise diagnosis, prevention and treatment for these children with a view to reducing health inequalities in Europe.

show abstract

“…Infantile spasms Infant [26] Learning, memory and speech problems Childhood [3] A publication by Dr. Jean-Étienne D. Esquirol in 1838 on mental conditions included a description of persons with DS [29]. Dr. Edouard Seguin, who studied psychiatry under Dr. Esquirol, went on to publish a book on the physiological method of teaching individuals with DS [30], believing DS was caused by weakness in the nervous system to be A publication by Dr. Jean-Étienne D. Esquirol in 1838 on mental conditions included a description of persons with DS [29].…”

Section: Comorbidity Age Referencesmentioning

confidence: 99%

“…Background Down Syndrome (DS) is caused by a complete or segmental triplication of human chromosome 21 (HSA21) [1] and is the most frequent genetic cause of intellectual disability (ID) [2]. People with DS present with developmental abnormalities [3], systemic alterations in the peripheral system, as well as neurological and cognitive deficits (Table 1) [2,[4][5][6]. The most common causes for emergency room (ER) visits in children with DS are ear, nose, and throat issues [7].…”

mentioning

confidence: 99%

Aging with Down Syndrome—Where Are We Now and Where Are We Going?

Alldred

Martini

Patterson

et al. 2021

JCM

View full text Add to dashboard Cite

Down syndrome (DS) is a form of accelerated aging, and people with DS are highly prone to aging-related conditions that include vascular and neurological disorders. Due to the overexpression of several genes on Chromosome 21, for example genes encoding amyloid precursor protein (APP), superoxide dismutase (SOD), and some of the interferon receptors, those with DS exhibit significant accumulation of amyloid, phospho-tau, oxidative stress, neuronal loss, and neuroinflammation in the brain as they age. In this review, we will summarize the major strides in this research field that have been made in the last few decades, as well as discuss where we are now, and which research areas are considered essential for the field in the future. We examine the scientific history of DS bridging these milestones in research to current efforts in the field. We extrapolate on comorbidities associated with this phenotype and highlight clinical networks in the USA and Europe pursuing clinical research, concluding with funding efforts and recent recommendations to the NIH regarding DS research.

show abstract

Parent-mediated interventions for promoting communication and language development in young children with Down syndrome

Abstract: Parent-mediated interventions for promoting communication and language development in young children with Down syndrome.

Cited by 42 publications

References 122 publications

Mental State Language Use in Children with Down Syndrome and the Role of Caregivers

Mental State Language Use in Children with Down Syndrome and the Role of Caregivers

EUROlinkCAT protocol for a European population-based data linkage study investigating the survival, morbidity and education of children with congenital anomalies

Aging with Down Syndrome—Where Are We Now and Where Are We Going?

Contact Info

Product

Resources

About