Parent Perceptions of Infant Symptoms and Suffering and Associations With Distress Among Bereaved Parents in the NICU

Clark, Olivia E.; Fortney, Christine A.; Dunnells, Zackery D.O.; Gerhardt, Cynthia A.; Baughcum, Amy E.

doi:10.1016/j.jpainsymman.2021.02.015

Cited by 24 publications

(27 citation statements)

References 40 publications

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“…In total 35 studies, published in 41 records, involving 3,380 parents. Eleven studies, published in 14 records, involved mothers and fathers; 46 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 , 56 , 57 , 58 , 59 one study involved fathers only [60] and the remaining 23 studies, reported in 26 records, involved mothers. 27 , 28 , 30 , 31 , 32 , 34 , 38 , 39 , 60 , 61 , 62 , 63 , 64 , 65 , 66 , 67 , 68 , 69 , 70 , 71 , 72 , 73 , 74 , 75 , 76 , 77 , 78 …”

Section: Resultsmentioning

confidence: 99%

“… 28 , 46 , 54 , 61 , 68 , 78 Birthweight was an inclusion criterion across eleven studies, published in twelve records, but specific birthweight criteria differed across studies: < 1500g; 28 , 30 , 31 , 46 , 64 , 70 , 71 , 72 < 1750g; 34 <1000g. 76 One study, 58 included only parents of deceased babies. Common exclusion criteria were parents with existing mental health problems and parents of babies who were less likely to survive and/or who had congeniality anomalies.…”

Section: Resultsmentioning

confidence: 99%

“…Clinical interview was used in two studies, 46 , 54 clinical review of self-report scales was used in one study, published in three records, 38 , 39 , 62 and self-report scales were used in 32 studies, published in 36 records. 27 , 28 , 30 , 31 , 32 , 34 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 , 56 , 57 , 58 , 59 , 60 , 61 , 63 , 64 , 65 , 66 , 67 , 69 , 70 , 71 , 72 , 73 , 74 , 75 , 76 , 77 , 78 Seven different self-report scales were used, most commonly the Perinatal Post-traumatic Stress Disorder Questionnaire (PPQ). Cut-off points varied across studies, even when the same measure was used.…”

Section: Resultsmentioning

confidence: 99%

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Prevalence of anxiety and post-traumatic stress (PTS) among the parents of babies admitted to neonatal units: A systematic review and meta-analysis

et al. 2022

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Background Parents of babies admitted to neonatal units (NNU) are exposed to a range of potentially distressing experiences, which can lead to mental health symptoms such as increased anxiety and post-traumatic stress (PTS). This review aimed to describe how anxiety and PTS are defined and assessed, and to estimate anxiety and PTS prevalence among parents of babies admitted to NNU.Method Medline, Embase, PsychoINFO, Cumulative Index to Nursing and Allied Health literature were searched to identify studies published prior to April 14, 2021. Included studies were assessed using Hoy risk of bias tool. A random-effects model was used to estimate pooled prevalence with 95% CIs. Potential sources of variation were investigated using subgroup analyses and meta-regression. The review is registered with PROSPERO (CRD42020162935).Findings Fifty six studies involving 6,036 parents met the review criteria; 21 studies assessed anxiety, 35 assessed PTS, and 8 assessed both. The pooled prevalence of anxiety was 41.9% (95%CI:30.9, 53.0) and the pooled prevalence of PTS was 39.9% (95%CI:30.8, 48.9) among parents up to one month after the birth. Anxiety prevalence decreased to 26.3% (95%CI:10.1, 42.5) and PTS prevalence to 24. 5% (95%CI:17.4, 31.6) between one month and one year after birth. More than one year after birth PTS prevalence remained high 27.1% (95%CI:20.7, 33.6). Data on anxiety at this time point were limited. There was high heterogeneity between studies and some evidence from subgroup and meta-regression analyses that study characteristics contributed to the variation in prevalence estimates.Interpretation The prevalence of anxiety and PTS was high among parents of babies admitted to NNU. The rates declined over time, although they remained higher than population prevalence estimates for women in the perinatal period. Implementing routine screening would enable early diagnosis and effective intervention.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Prevalence of anxiety and post-traumatic stress (PTS) among the parents of babies admitted to neonatal units: A systematic review and meta-analysis

et al. 2022

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“… The study showed that, shortly after the birth of a healthy child, women with a previous history of perinatal loss had low to moderate levels of grief intensity, activated grief, and difficulty in dealing with despair Emotional pain due to perinatal grief was negatively related to maternal affectivity with the child following perinatal loss. Fair Clark et al, 2021 https://doi.org/10.1016/j.jpainsymman.2021.02.015 USA Parent perceptions of infant symptoms and suffering and associations with distress among bereaved parents in the NICU. 40 mothers and 27 fathers of infants who died within the previous 5 years in a large NICU.…”

Section: Resultsmentioning

confidence: 99%

Complicated Grief After the Loss of a Baby: A Systematic Review About Risk and Protective Factors for Bereaved Women

2022

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This study sought to identify the factors associated with the development and prevention of complicated grief in women who have lost a baby. This is a systematic review of scientific articles in the main mental health databases: MEDLINE (PubMed), EMBASE, Latin American and Caribbean Health Sciences Literature (LILACS), and APA Databases (PsycINFO). The selection and data extraction processes occurred independently and blindly by two authors, considering the eligibility criteria. The analysis included publications from 2013 to 2021 of observational studies with adult women who had experienced losing a baby (during pregnancy up to 2 years of life) and that employed standardized instruments to evaluate grief. From the 8,200 records found, 23 articles were selected for analysis. As risk factors, we identified the presence of mother’s psychopathology, history of gestational loss, and social pressure for a new pregnancy, while as protective factors, we identified the presence of another child other than the deceased one, the quality of specialized healthcare, and the social support provided by either a partner, community, or spiritual activities. Furthermore, the studies pointed to the event of losing a baby as an opportunity for posttraumatic growth. Although complicated grief is often associated with other mental health conditions, such as anxiety, depression, or posttraumatic stress, it is necessary to differentiate it for a clearer understanding of the complicated grief as a singular condition, to enable access to appropriate care for bereaved mothers and families, as well as to promote public policies which provide support to them.

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“…found to have short-and long-term effects on parents' psychological outcomes. (4,(11)(12)(13) Financial difficulty is also often reported by families of children with serious illness, including work disruptions, income loss, and household material hardships (HMH) (14,15), adding further challenges to caring for a seriously ill child. (9,10,16) Little empirical evidence exists to quantify the relationship between parent psychological health, child symptomatology, and family financial difficulties.…”

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confidence: 99%

Pediatric Palliative Care Parents’ Distress, Financial Difficulty, and Child Symptoms

Boyden

Hill

Nye

et al. 2022

Journal of Pain and Symptom Management

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This is a PDF file of an article that has undergone enhancements after acceptance, such as the addition of a cover page and metadata, and formatting for readability, but it is not yet the definitive version of record. This version will undergo additional copyediting, typesetting and review before it is published in its final form, but we are providing this version to give early visibility of the article. Please note that, during the production process, errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain.

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Parent Perceptions of Infant Symptoms and Suffering and Associations With Distress Among Bereaved Parents in the NICU

Cited by 24 publications

References 40 publications

Prevalence of anxiety and post-traumatic stress (PTS) among the parents of babies admitted to neonatal units: A systematic review and meta-analysis

Prevalence of anxiety and post-traumatic stress (PTS) among the parents of babies admitted to neonatal units: A systematic review and meta-analysis

Complicated Grief After the Loss of a Baby: A Systematic Review About Risk and Protective Factors for Bereaved Women

Pediatric Palliative Care Parents’ Distress, Financial Difficulty, and Child Symptoms

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