Parent Perceptions of Initial Feeding Experiences of Children Born With Cleft Palate in a Rural Locale

Snyder, Meghan; Ruscello, Dennis M.

doi:10.1177/1055665618820754

Cited by 17 publications

(18 citation statements)

References 17 publications

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“…There is some evidence suggests that guidance specific to feeding can reduce rates of NICU admission, when feeding is the sole concern, among infants with CLP (Hubbard et al, 2012). However, there is some evidence that hospitals’ nursing staff have limited knowledge of the consequences of CLP and associated feeding issues (Snyder et al, 2019; Madhoun et al, 2020), resulting in mothers not receiving adequate training on adapted feeding approaches. Collectively, this reality has the possibility of contributing to a reduction in successful human milk feeding.…”

Section: Discussionmentioning

confidence: 99%

Early Nutrition among Infants Admitted to the NICU with Cleft Lip and Palate

Tahmasebifard

Briley

Ellis

et al. 2021

The Cleft Palate Craniofacial Journal

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Objective The objective of this study was to examine differences in human milk feeding outcomes among infants admitted to a neonatal intensive care unit (NICU) with and without cleft lip and palate (CLP). Method Data were used from a sample of infants admitted to the NICU with and without CLP from the 2018 National Vital Statistics System. For baseline comparisons, Chi-square tests of independence were used to compare categorical variables, and independent samples t tests were used for continuous variables. Logistic regression models were performed to determine the odds of human milk feeding at discharge in infants admitted to the NICU with CLP. Results The total sample included 345,429 infants admitted to the NICU, of which 660 had CLP. Significant differences were found among the following variables when baseline comparisons were made between infants admitted to the NICU with and without CLP: mother's race, mother's education, maternal smoking record, childbirth delivery method, presence of maternal pre-pregnancy diabetes, five-minute APGAR score, multiparity record (having more than one baby at birth), gestational age, and gestational weight. After controlling for baseline differences, results indicated reduced odds of human milk feeding at discharge in infants admitted to the NICU with CLP compared to those without CLP (OR = .543; 95% CI.455,.648). Conclusion Results suggest reduced odds of human milk feeding at discharge among infants admitted to the NICU with CLP compared to those without CLP. These findings emphasize the necessity of awareness and facilitation of human milk feeding in this population.

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Section: Discussionmentioning

confidence: 99%

Early Nutrition among Infants Admitted to the NICU with Cleft Lip and Palate

Tahmasebifard

Briley

Ellis

et al. 2021

The Cleft Palate Craniofacial Journal

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“…Feeding a CL/P infant can be time consuming and it can lead to maternal/parental stress and anxiety (Snyder & Ruscello, 2019), as well as communication, emotional, and social problems (Nelson et al, 2012). But mother–infant bonding is enhanced (Gailey, 2016) by the proximity of feeding at the breast.…”

Section: Discussionmentioning

confidence: 99%

“…Peer support groups for mothers with CL/P who have experience breastfeeding are essential (Santos et al, 2019), but lacking. Parents have reported gaps in health care providers’ (HCP) knowledge (Snyder & Ruscello, 2019). HCP who do not have enough breastfeeding clinical experience will provide inaccurate information to mothers (Lindberg & Berglund, 2013).…”

Section: Discussionmentioning

confidence: 99%

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Assisted Nursing: A Case Study of an Infant With a Complete Unilateral Cleft Lip and Palate

Lopez-Bassols

2020

J Hum Lact

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Background This case presents a mother’s feeding experience of an infant born with a complete unilateral cleft lip and palate from birth until both were repaired. She fed him directly at the breast with assistance, controlling the delivery of the mother’s own milk. The infant received only his mother’s own milk, no bottles, and the excess expressed milk was donated to a milk bank. Main issue The Cleft Team supported the mother’s wish to breastfeed but expressed realism that cleft lip and palate infants could not create suction. Success had never been observed in the unit. Instead, the team suggested expressing to deliver as much of the mother’s own milk. The mother had previously breastfed her three children and was keen on finding innovative ways to breastfeed. Management Several techniques were trialed with the help of an International Board Certified Lactation Consultant. The most sustainable and successful was the use of a nipple shield applied to the maternal nipple areola complex to cover the lip palate. Underneath, a nasogastric tube connected to a syringe delivered the mother’s own milk. Exclusive expressing protected maternal supply, the infant’s nutrition and growth were monitored carefully and this technique reinforced mother–infant bonding. Conclusion Feeding with the modifications was challenging at times. However, maternal satisfaction was high because the mother had achieved her goal of breastfeeding without assistance post cheiloplasty and palatoplasty. This case adds to the limited body of research about feeding infants with cleft lips and palates directly at the breast.

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“…In addition, there is evidence that information given to parents regarding feeding instruction is lacking due to hospital personnel having limited or no experience in the area of cleft palate feeding management. 18 Snyder and colleagues (2019) surveyed parents of infants with cleft lip and palate regarding perceptions of feeding experiences during the initial evaluation and found that 69% of parents received feeding information at the birth hospital, 4% received information prior to the birth of their child, and 15% received no information at all. 18 Additionally, course-based instruction for low-incidence disorders, such as cleft palate, receives less focus within training programs.…”

Section: Introductionmentioning

confidence: 99%

Current Practice Patterns and Training Pathways for Feeding Infants with Cleft Palate

Kotlarek

Benson

Williams

2023

The Cleft Palate Craniofacial Journal

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Objective To examine the current trends and practices across disciplines for feeding infants with cleft palate with or without cleft lip and to describe provider training within this area Design Prospective survey Setting ACPA approved cleft palate teams and healthcare providers in the United States and Canada Participants Interdisciplinary providers that regularly provide feeding services to infants with cleft palate Intervention 50-item survey designed and distributed electronically via the ACPA Main Outcome Measures Information on provider demographics and practice patterns Results 76 respondents included providers in North America that have either currently or previously served on a cleft palate team. The majority of respondents were in speech-language pathology (49%) or nursing (38%) disciplines, worked in an outpatient setting (70%), and received no information (68%) regarding cleft palate feeding in their academic training. While specific practice patterns were relatively consistent across the respondent cohort, provider characteristics were significantly associated with squeezing the Haberman ( p = .013) and likelihood of collaboration with other providers when counseling parents/caregivers ( p = .039). Conclusions While provider characteristics varied, there were similar practice patterns observed across disciplines. Future research is needed explore training related to feeding knowledge as well as practice patterns in locations with a lower patient volume.

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Parent Perceptions of Initial Feeding Experiences of Children Born With Cleft Palate in a Rural Locale

Cited by 17 publications

References 17 publications

Early Nutrition among Infants Admitted to the NICU with Cleft Lip and Palate

Early Nutrition among Infants Admitted to the NICU with Cleft Lip and Palate

Assisted Nursing: A Case Study of an Infant With a Complete Unilateral Cleft Lip and Palate

Current Practice Patterns and Training Pathways for Feeding Infants with Cleft Palate

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