Parent relationships and compliance in cystic fibrosis

Eddy, Martha; Carter, Bryan D.; Kronenberger, William G.; Conradsen, Susan; Eid, Nemr; Bourland, Stacey L.; Adams, Garrett

doi:10.1016/s0891-5245(98)90046-3

Cited by 51 publications

(39 citation statements)

References 21 publications

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“…3,10,11,20,[22][23][24][25][27][28][29][31][32][33][34][35][36][37][38][39] Eighteen papers were of low quality, and 2 were of moderate quality. The categories of medications are summarized below (Table 3).…”

Section: Medicationmentioning

confidence: 99%

“…Seven studies were of low quality, and 2 were of moderate quality. Six studies used participant questionnaires 3,25,27,29,31,37 ; 3 used parent questionnaires 3,22,31 ; one used participant interviews 38 ; one used 7-d recordings 22 ; and one used pharmacy refill records, daily telephone diaries, and electronic monitoring via the Medication Event Monitoring System (MEMS SmartCap, AARDEX, Richmond, Virginia). 3 Mean adherence ranged from 27.4 Ϯ 22.9% by daily telephone diary 3 to 96.5% by patient report.…”

Section: Pancreatic Enzyme Replacement Therapymentioning

confidence: 99%

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Adherence of Subjects With Cystic Fibrosis to Their Home Program: A Systematic Review

O'Donohoe

Fullen

2014

Respir Care

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BACKGROUND: The management of cystic fibrosis (CF) includes adherence to a home management program (airway clearance, medication, nutritional advice, and exercise). This has led to an increase in life expectancy, although the benefits depend greatly on a patient's level of adherence to daily treatments at home. To date, no systematic review has established adherence rates to all World Health Organization guidelines in the home setting; hence, this review was undertaken. METHODS: The review comprised 3 phases. A methodological assessment of databases (Embase, CINAHL, PsychINFO, PEDro, PubMed, Cochrane Central Register of Controlled Trials) identified potentially relevant papers. These papers were screened for inclusion criteria by 2 independent reviewers, data were extracted, and the internal validity was rated using a valid and reliable scale. Results were categorized into 4 themes: medication, nutrition, airway clearance techniques, and exercise. RESULTS: The search generated a total of 26 papers, 24 of which were rated as being poor quality. Adherence to a treatment program for CF patients is generally low (from 22% for nutritional guidelines to 130% for oral antibiotics), and it varies greatly depending on the type of treatment and the method of assessment employed (objective tool vs self-reported questionnaires). CONCLUSIONS: Consensus on how to measure adherence is lacking, and the quality of studies addressing adherence in this population is generally poor. Overall, studies using self-reported measures yielded higher adherence scores than those that used objective measures, suggesting that current efforts to improve methods of adherence are appropriate. The prevalence of non-adherence remains unclear due to these limitations.

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Section: Medicationmentioning

confidence: 99%

Section: Pancreatic Enzyme Replacement Therapymentioning

confidence: 99%

Adherence of Subjects With Cystic Fibrosis to Their Home Program: A Systematic Review

O'Donohoe

Fullen

2014

Respir Care

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“…In childhood, a high level of compliance is frequently observed, which is probably explained due to the fact that during this period of life the responsibility lies with the parents (Battistini et al, 1998;Foster et al, 2001). Family cohesion and adequate social support have both been associated with better adherence to treatment (Eddy et al, 1998;Foster et al, 2001;Hamutcy et al, 2002;Teichman 20009). In addition, the ways of coping with the disease by the mechanisms of denial and avoidancewhich have been described as negative predictors of adherence to treatment -tend to increase with age amongst these chronically ill patients as they facilitate their emotional adjustment into adulthood (Kettler et al, 2002;Lask, 1994).…”

Section: Discussionmentioning

confidence: 99%

“…Strong family cohesion and adequate social support have been associated with better adherence to treatment. A special importance is attached to the family in the care of patients during childhood, where the burden of treatment compliance during this time of life is maintained by the parents (Battistini et al, 1998;Eddy et al, 1998;Foster et al, 2001;Moise et al, 1987).…”

Section: Social and Family Relationshipsmentioning

confidence: 99%

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The Importance of Adherence and Compliance with Treatment in Cystic Fibrosis

Arias-Llorente¹,

García²,

Martín³

2012

Cystic Fibrosis - Renewed Hopes Through Research

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Depressive symptoms in children with cystic fibrosis and parents and its effects on adherence to airway clearance

Smith

Modi

Quittner

et al. 2010

Pediatric Pulmonology

164

135

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A large percentage of youth with CF and their parents reported elevated symptoms of depression. Children scoring in the depressed range on a standardized screening measure and those with less secure parent-child relationships were at greatest risk for poor adherence. Thus, depressive symptoms and family relationships are appropriate targets for adherence promotion interventions, which may ultimately improve health outcomes.

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Parent relationships and compliance in cystic fibrosis

Cited by 51 publications

References 21 publications

Adherence of Subjects With Cystic Fibrosis to Their Home Program: A Systematic Review

Adherence of Subjects With Cystic Fibrosis to Their Home Program: A Systematic Review

The Importance of Adherence and Compliance with Treatment in Cystic Fibrosis

Depressive symptoms in children with cystic fibrosis and parents and its effects on adherence to airway clearance

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