Parental Assessment of Status of Congenital Upper Limb Differences: Analysis of the Pediatric Outcomes Data Collection Instrument

Wall, Lindley B.; Shen, Tony S.; Roberts, Summer; Goldfarb, Charles A.

doi:10.1016/j.jhsa.2015.12.004

Cited by 14 publications

(4 citation statements)

References 14 publications

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“… Hypotheses testing for construct validity: discriminative validity Adequate PEDI self-care domain Ho et al [ 52 ] Hypotheses testing for construct validity: discriminative validity OBPP versus peers Doubtful 1-/1 + OBPP with hand impairment versus OBPP without hand impairment Adequate PODCI Huffman et al [ 53 ] Hypotheses testing for construct validity: discriminative validity Doubtful 5 + Bae et al [ 54 ] Hypotheses testing for construct validity: convergent validity Doubtful ?/6 + Hypotheses testing for construct validity: discriminative validity Doubtful Dedini et al [ 24 ] Responsiveness: construct approach Before and after intervention Inadequate 2-/4 + Squitieri et al [ 50 ] Hypotheses testing for construct validity: discriminative validity Inadequate ? Wall et al [ 55 ] Hypotheses testing for construct validity: discriminative validity Inadequate ? PODCI (v2.0; Original version) Kunkel et al [ ...…”

Section: Resultsmentioning

confidence: 99%

“… Construct validity No hypotheses were defined a priori ? PEDI self-care domain [ 52 ] Construct validity 1 out of 2 hypotheses confirmed ± PODCI [ 24 , 50 , 53 – 55 ] Construct validity 11 out of 11 predefined hypotheses confirmed; for several analyses hypotheses could not be defined a priori ± Responsiveness 4 out of 6 hypotheses confirmed ± PODCI (v2.0; Original version) [ 25 ] Internal consistency Cronbach’s alpha range = 0.82–0.93 ? Construct validity No hypotheses were defined a priori ?…”

Section: Resultsmentioning

confidence: 99%

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Quality of patient- and proxy-reported outcomes for children with impairment of the upper extremity: a systematic review using the COSMIN methodology

Kalle

Saris

Sierevelt

et al. 2022

J Patient Rep Outcomes

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Background As patient-reported outcome measures (PROMs) have become of significant importance in patient evaluation, adequately selecting the appropriate instrument is an integral part of pediatric orthopedic research and clinical practice. This systematic review provides a comprehensive overview of PROMs targeted at children with impairment of the upper limb, and critically appraises and summarizes the quality of their measurement properties by applying the COnsensus-based Standards for selection of health Measurement INstruments (COSMIN) methodology. Methods A systematic search of the MEDLINE and EMBASE databases was performed to identify relevant publications reporting on the development and/or validation of PROMs used for evaluating children with impairment of the upper extremity. Data extraction and quality assessment (including a risk of bias evaluation) of the included studies was undertaken by two reviewers independently and in accordance with COSMIN guidelines. Results Out of 6423 screened publications, 32 original articles were eligible for inclusion in this review, reporting evidence on the measurement properties of 22 self- and/or proxy-reported questionnaires (including seven cultural adaptations) for various pediatric orthopedic conditions, including cerebral palsy (CP) and obstetric brachial plexus palsy (OBPP). The measurement property most frequently evaluated was construct validity. No studies evaluating content validity and only four PROM development studies were included. The methodological quality of these development studies was either ‘doubtful’ or ‘inadequate’. The quantity and quality of the evidence on the other measurement properties of the included questionnaires varied substantially with insufficient sample sizes and/or poor methodological quality resulting in significant downgrading of evidence quality. Conclusion This review provides a comprehensive overview of currently available PROMs for evaluation of the pediatric upper limb. Based on our findings, none of the PROMs demonstrated sufficient evidence on their measurement properties to justify recommending the use of these instruments. These findings provide room for validation studies on existing pediatric orthopedic upper limb PROMs (especially on content validity), and/or the development of new instruments.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Quality of patient- and proxy-reported outcomes for children with impairment of the upper extremity: a systematic review using the COSMIN methodology

Kalle

Saris

Sierevelt

et al. 2022

J Patient Rep Outcomes

View full text Add to dashboard Cite

show abstract

“…Our data did not support that family history was protective in terms of the impact of PROMIS Peer Relation, Anxiety and Depression nor PODCI Happiness subscales. Wall et al 33 had previously studied a cohort of nontraumatic pediatric UE conditions and demonstrated an association between family history and improved PODCI scores, which was hypothesized to be secondary to a sense of a commonly shared condition and family support for the child. The prior population studied was predominantly comprised of individuals with malformations, which do not typically cause pain.…”

Section: Discussionmentioning

confidence: 99%

The Impact of Isolated Versus Multiple Osteochondromas: Analysis of the CoULD Registry

Wessel¹,

Goldfarb²,

Vuillermin³

et al. 2022

Journal of Pediatric Orthopaedics

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Purpose: The burden of upper extremity (UE) osteochondromas on function and self-perception among pediatric patients is unclear. The purpose of our study was to study the impact of osteochondromas in comparison to population norms and to evaluate solitary versus multiple osteochondromas on subjective UE function as measured by patient rated outcomes. Methods: We utilized the CoULD (Congenital Upper Limb Differences) Registry to review all pediatric patients presenting with osteochondromas between January 2014 and February 2021. Demographic information was collected and patients were classified as having either single or multiple osteochondromas. Patient-Reported Outcome Measurement Information System (PROMIS) and Pediatric Outcomes Data Collection Instrument (PODCI) tools were utilized for assessment. Scores for PODCI subscales of UE function, Pain/comfort, and Happiness and PROMIS domains of UE Function, Pain, Depression, Anxiety, and Peer Relations were reviewed. Differences between groups were analyzed using the Student t test. Results: Ninety-nine patients met inclusion criteria for the study with an average age of presentation of 9.3 years and 61 patients (62%) were male. Overall, patients demonstrated worse UE Function as well as greater Anxiety and Depression in comparison to the population normals on PROMIS assessment. Patients also demonstrated worse patient and parent reported PODCI UE, Sports and Physical Functioning, Pain/Comfort and Global Functioning scores compared with population norms but demonstrated better than average happiness scores. Patients with multiple osteochondromas demonstrated greater PROMIS pain interference and more disability in PODCI Sports and Physical Functioning, Pain/Comfort and Global Functioning compared with those with solitary osteochondromas. Conclusion: Patients with UE osteochondromas have worse overall function in comparison to population norms, exceeding established minimally clinically important difference values. In addition, patients with multiple osteochondromas reported more pain and poorer physical function than those with solitary osteochondromas. Physicians should be alert to the physical and psychosocial burden of this disease. Level of Evidence: Level II—prognostic.

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“…(4) Web server side The collected data is uploaded to the Web site server, and the data can be queried through the Internet [11].…”

Section: ) Transmission Communication Terminalmentioning

confidence: 99%

Data Collection Function of Ferroelectric Memory in Intelligent High-speed Vehicle Monitoring System

2021

DPS

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With the rapid development of information science and technology, the application of high-speed data acquisition and storage systems has become more and more extensive, and the development of China's highways also provides a good opportunity for high-speed data acquisition. At the same time, along with the improvement of manufacturing technology and manufacturing capacity, the speed and capacity of collection have been improved to varying degrees. However, due to a late start in China, the development is relatively backward. Therefore, the research on a high-performance data collection and storage system is Very necessary. This article aims to study the development and design of a monitoring system for high-speed vehicles. To this end, this paper proposes a method for the data acquisition function of ferroelectric memory, which improves the monitoring capability of the high-speed vehicle monitoring system through the selection of the large-capacity storage capacity of the ferroelectric memory and the selection of the data acquisition method. Simultaneously, a simulation experiment is designed to analyze and compare the data collection and storage function of the system. The experimental results in this article show that the improved system has a 95% increase in data collection and storage capacity compared with the previous method. The nearly 2 times increase can effectively improve China's The ability to monitor high-speed vehicles.

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Parental Assessment of Status of Congenital Upper Limb Differences: Analysis of the Pediatric Outcomes Data Collection Instrument

Cited by 14 publications

References 14 publications

Quality of patient- and proxy-reported outcomes for children with impairment of the upper extremity: a systematic review using the COSMIN methodology

Quality of patient- and proxy-reported outcomes for children with impairment of the upper extremity: a systematic review using the COSMIN methodology

The Impact of Isolated Versus Multiple Osteochondromas: Analysis of the CoULD Registry

Data Collection Function of Ferroelectric Memory in Intelligent High-speed Vehicle Monitoring System

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