Parental concerns towards children and adolescents with epilepsy in Sri Lanka—Qualitative study

Murugupillai, Roshini; Wanigasinghe, Jithangi; Muniyandi, Ravi; Arambepola, Carukshi

doi:10.1016/j.seizure.2015.10.016

Cited by 37 publications

(59 citation statements)

References 29 publications

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“…It also affects how people living with epilepsy react to these treatments and behave as well as how much their families are impacted by the person with epilepsy. These results (summarized in Table 4) highlight the focus that is put on misconceptions regarding knowledge and awareness of epilepsy (n= 11) [8, 11, 13, 16, 20, 21, 26 -28, 31, 37], the impact of epilepsy (n= 11) [8, 13, 22 -24, 29 -33, 36] and less on awareness programs and guidelines (n= 4) [2,23,32,38] that can sufficiently correct misconceptions and empower people with epilepsy. The co-authors of the study verified the themes and subthemes, presented in Table 4, before proceeding with the writing of the article for quality assurance.…”

Section: Resultsmentioning

confidence: 99%

“…From these, themes were created as illustrated in Table 4, named and reviewed by the primary author and co-authors, which later led to writing of the article. The thematic analysis yielded three themes including the impact of epilepsy (n=11) [11, 14, 19 -27], the level of knowledge and awareness (n=11) [8, 13, 22 -24, 29 -33, 36] and available epilepsy awareness guidelines (n=4) [2,23,32,38]. From these three themes, seven subthemes emerged.…”

Section: Thematic Analysis Of Selected Studiesmentioning

confidence: 99%

“…This section is composed of developing an awareness guide for public education (n= 4) [2,23,32,38]. Generally, there are guidelines made for professional training, and guidelines used to develop campaign content are not made available to the public.…”

Section: Awareness Guidementioning

confidence: 99%

“…There are eight key messages recommended for educational content as prescribed by England et al [2]. In their study, they highlight different campaigns for education that has been centralized around information from the Centre for Disease Control and Prevention [2,32].…”

Section: Developing An Awareness Guide For Public Educationmentioning

confidence: 99%

See 3 more Smart Citations

How Much Do We Know? Assessing Public Knowledge, Awareness, Impact, and Awareness Guidelines for Epilepsy: A Systematic Review

Musekwa¹,

Makhado²,

Maphula³

et al. 2020

TOPHJ

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Background: Epilepsy misconceptions are widespread; these influence the quality of life of people living with epilepsy (50 million people worldwide) and their families. Objective: The review’s objective was to highlight the public knowledge and awareness of epilepsy with an emphasis on its impact, gaps, and available guidelines for public awareness. Methods: The search databases included PubMed, EBSCOhost, Google Scholar using keywords, index terms as well as the Boolean search. Twenty-seven studies were included, which yielded three themes and six sub-themes. Results: Three themes emerged from the data: knowledge, beliefs, and awareness of epilepsy, the impact of epilepsy, and epilepsy awareness guide. From these themes, six sub-themes were established. Implications: Generally, people in Africa continue to hold misconceptions about epilepsy. This study shows that there is a need for further research examining the level of knowledge and awareness held in different contexts to develop a means to educate the general public as it has been revealed that there is generally inadequate knowledge and awareness of epilepsy. Furthermore, this study gathers knowledge that is now accessible as a threshold to much-needed research on epilepsy education, awareness and knowledge in Africa.

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Section: Resultsmentioning

confidence: 99%

Section: Thematic Analysis Of Selected Studiesmentioning

confidence: 99%

Section: Awareness Guidementioning

confidence: 99%

Section: Developing An Awareness Guide For Public Educationmentioning

confidence: 99%

See 2 more Smart Citations

How Much Do We Know? Assessing Public Knowledge, Awareness, Impact, and Awareness Guidelines for Epilepsy: A Systematic Review

Musekwa¹,

Makhado²,

Maphula³

et al. 2020

TOPHJ

View full text Add to dashboard Cite

show abstract

“…There are reports showing that there is an association between the anxiety, stress and fear experienced by parents and the quality of their child’s life [ 34 ]. In their paper on parental concerns towards children with epilepsy, Murugupillai et al [ 35 ] noted that these concerns are multidimensional and relate to such areas as the child’s physical, behavioural, psychological and social functioning, and education as well as treatment with anti-epileptic medications. The parents studied were also concerned that epilepsy would affect their children’s prospects for continuing education, securing a good job and getting married.…”

Section: Discussionmentioning

confidence: 99%

The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning

Rozensztrauch

Kołtuniuk

2022

IJERPH

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Epilepsy is a neurological chronic disease, which negatively affects physical, psychological and social functioning of children and their families. The main objective of this study was to assess the quality of life (QoL) in children with diagnosed epilepsy and the impact of a child’s disease on the functioning of the family. Method: A cross-sectional survey involved a total of 103 legal guardians of children with diagnosed epilepsy. QoL was measured by PedsQL 4.0, with appropriate forms for specific age groups, the impact of a child’s condition on the functioning of the family was measured by PedsQL 2.0 Family Impact Module, and the authors’ own questionnaire was used to collect sociodemographic and medical data. Results: Subjects reported a decreased level of family daily activities (total score: 32.4 out of 100, SD = 26.5) and relationships (total score: 55.63 out of 100, SD = 24.03). QoL in children aged 5–7 years is lower by an average of 11.956 points as compared with children aged 2–4 years. Comorbidities had a significant impact (p < 0.05) on QoL in all domains. The overall QoL has reported a low score of 46.42 out of 100, respectively (SD ± 20.95), with the highest mean scores reported for the social functioning (total score: 49.4, SD = 27.3) and the physical functioning (total score: 49.4, SD = 28.4) and with the lowest mean score reported for the work/school functioning (total score: 42.3, SD = 27.8). Conclusions: Child’s epilepsy shows a considerable negative impact on the QoL of children and family functioning.

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Stigma, seizure self-efficacy, and quality of life in children with epilepsy

AYDIN,

ÖZ TUNÇER,

GENÇ

et al. 2024

Childs Nerv Syst

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Parental concerns towards children and adolescents with epilepsy in Sri Lanka—Qualitative study

Abstract: Parental concerns towards their children and adolescents show a multidimensional construct. Unpredictability of seizures, fear of stigma and unawareness of epilepsy were identified as key influential factors in moulding the parental concerns.

Cited by 37 publications

References 29 publications

How Much Do We Know? Assessing Public Knowledge, Awareness, Impact, and Awareness Guidelines for Epilepsy: A Systematic Review

How Much Do We Know? Assessing Public Knowledge, Awareness, Impact, and Awareness Guidelines for Epilepsy: A Systematic Review

The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning

Stigma, seizure self-efficacy, and quality of life in children with epilepsy

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