Parental coping following childhood acquired brain injury

Benn, Kelly; McColl, Mary Ann

doi:10.1080/02699050310001617343

Cited by 45 publications

(31 citation statements)

References 45 publications

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“…In addition to weakened bodily functions, the patient also has a variety of cognitive, emotional, and communicative disturbances (Lane-Brown & Tate, 2009;Ö hman et al, 2008;Thompson et al, 2009). The patient's symptoms cause suffering, fear, anxiety, and depression to relatives (Hawley & Joseph, practical support (Benn & McColl, 2004). The purpose of this study was to identify what in healthcare constitutes support for TBI patients' family members.…”

Section: Introductionmentioning

confidence: 99%

Support for Traumatic Brain Injury Patients’ Family Members in Neurosurgical Nursing

Coco

Tossavainen

Jääskeläinen

et al. 2011

Journal of Neuroscience Nursing

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This systematic literature review describes how adult traumatic brain injury (TBI) patients' family members received support. The research question was "What in healthcare constitutes support for a TBI patient's family members?" The data for this review were based on 22 empirical studies published in scientific journals in 2004-2010, which were found in the Cinahl, PsychINFO, and ISI Web of Knowledge databases. The review includes the study design, sample, method, and main results. The data were analyzed using content analysis. Social support for brain injury patients' family members was divided into 3 main categories: informational, emotional, and practical support. The subcategories of informational support were information about the patient's symptoms, information about care, quality of information, and information about the prognosis. The subcategories of emotional support were taking emotions into account, caring, listening, and respecting. The subcategories of practical support were support in decision making, promoting the welfare of the family, encouraging family members to participate in care, cooperation with the family members, and counseling services. The results are available for nurses in practical work. The review offers nurses a structure for supporting TBI patients' families, and according to this review, supporting TBI patients' families appears to have many dimensions. The results suggest that nurses should be informed that it is important for family members to know the facts about TBI to understand the condition and to receive practical advice on how to help their significant other with TBI with daily activities. In addition, the results provide a basis for further research and development of interventions that support brain injury patients and their family members.

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Section: Introductionmentioning

confidence: 99%

Support for Traumatic Brain Injury Patients’ Family Members in Neurosurgical Nursing

Coco

Tossavainen

Jääskeläinen

et al. 2011

Journal of Neuroscience Nursing

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“…The process of loss experienced by family members has led to consideration of the applicability of stage models of grief (Groveman & Brown, 1985) and the importance of different coping styles (Benn & McColl, 2004). Systemic models of interconnected family functioning (Curtiss et al, 2000), family structure (Laroi, 2000) and life cycle change (Hartman, 1987) have also been applied to explain the family system's response to TBI.…”

mentioning

confidence: 99%

An Exploration of the Experience of Mothers Whose Children Sustain Traumatic Brain Injury (TBI) and Their Families

Alex

Stedmon

Margison

2008

Clin Child Psychol Psychiatry

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This study aims to describe and explore the lived experience of mothers whose children, aged 0-16 years, have sustained a traumatic brain injury (TBI). Mothers were interviewed between 2 and 10 years following the TBI. The study employed a qualitative method, interpretative phenomenological analysis (IPA), following semi-structured interviews with 10 mothers. Validity measures included independent audit of the analysis. The analysis generated themes of ;changes to and loss of the past child', ;effects on mother's health', ;mother's process of coping and support', ;changed roles', ;effects on the whole family' and ;contact with services'. Discussion of the links between participants' accounts and grief and attachment theories is provided, with a view to informing assessment and rehabilitative practice with children and families. The clinical implications of mothers' descriptions for psychological intervention and service delivery are explored.

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“…This is particularly true in paediatric neurorehabilitation where small patient numbers have traditionally meant that patients with severe disability often must travel across the country to access specialist services 9. The disruption that this can cause a family and the possibility of this disruption worsening the patient’s outcome have become a growing concern 15. There is a growing understanding of the effects that even ‘mild’ neurological trauma can have on a child, which has led to an appreciation of the importance of longer-term specialist follow-up of the larger number of children who appear functionally able 16.…”

Section: Discussionmentioning

confidence: 99%

Paediatric neurorehabilitation: finding and filling the gaps through the use of the Institute for Manufacturing strategic roadmapping method

et al. 2017

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IntroductionAcquired brain injury (ABI) is a major cause of morbidity and mortality in childhood. Specialist rehabilitation services are often situated far from families and local services may be non-standardised and fragmented. A strategic level of understanding is needed to improve patient care and outcomes. Roadmapping techniques are commonly used in industry settings to discover and present a systematic understanding of structures; however, they are rarely used in the healthcare setting. With continuing pressures on healthcare systems worldwide, they provide an effective method for examining services.MethodsThe Institute for Manufacturing (IfM) strategic roadmapping method was used to identify areas of difficulty and opportunities in paediatric neurorehabilitation. Participants included stakeholders from a wide range of professions and sectors who have input with children after ABI.ResultsDelegates identified a range of ‘layers’ covering trends, drivers, current experience and unmet needs. From these layers, four priorities were identified and further expanded.These included: ‘access to medical and therapy expertise close(r) to home’, ‘shared understanding across family, school and health’, ‘family and professional awareness of resources and support’ and ‘establishing a centre for rehabilitation technology evaluation, advice and co-ordination of services and research’.ConclusionThe IfM strategic roadmapping method identified and developed key areas for development in the field of paediatric neurological rehabilitation. Healthcare professionals looking at strategic level difficulties should strongly consider the use of such systematic tools when evaluating areas of practice.

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Parental coping following childhood acquired brain injury

Abstract: Recognizing parental coping styles, enhancing the development of positive strategies, and underscoring the importance of social support and the family environment will assist parents to cope positively with their child's acquired brain injury.

Cited by 45 publications

References 45 publications

Support for Traumatic Brain Injury Patients’ Family Members in Neurosurgical Nursing

Support for Traumatic Brain Injury Patients’ Family Members in Neurosurgical Nursing

An Exploration of the Experience of Mothers Whose Children Sustain Traumatic Brain Injury (TBI) and Their Families

Paediatric neurorehabilitation: finding and filling the gaps through the use of the Institute for Manufacturing strategic roadmapping method

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