Parental Experiences of Continuous Glucose Monitoring in Danish Children with Type 1 Diabetes Mellitus

Haslund-Thomsen, Helle Lønstrup; Hasselbalch, Line Aagaard; Laugesen, Britt

doi:10.1016/j.pedn.2020.03.010

Cited by 12 publications

(20 citation statements)

References 33 publications

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“…Research suggests that newer technologies, such as continuous glucose monitors and closedloop systems, are likely to help further ease the burden of diabetes management. For example, use of continuous glucose monitors may lessen parental anxiety due to the device alerting them to hypo-and hyperglycaemia [41], while those able to monitor their child's glucose data remotely may experience improved sleep and greater lifestyle freedoms [42,43]. Similarly, while user evaluations of closed-loop systems have mainly involved older participant groups with type 1 diabetes and/or their parents [44][45][46][47][48], preliminary trials involving very young children suggest that this technology can help parents feel less burdened by diabetes management tasks and facilitate better sleep [49].…”

Section: Discussionmentioning

confidence: 99%

Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

et al. 2021

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Aims To synthesise the qualitative evidence on parents’ experiences of caring for a child aged ≤8 years with type 1 diabetes to identify: the challenges they encounter; their views about support received; ways in which support could be improved; and, directions for future research. Methods We searched Medline, EMBASE, CINAHL, PsycINFO and Web of Science databases to identify qualitative studies reporting parents’ views and experiences of caring for a child with type 1 diabetes aged ≤8 years. Key analytical themes were identified using thematic synthesis. Results Fourteen studies were included. The synthesis resulted in the generation of two overarching themes. Monopolisation of life describes the all-encompassing impact diabetes could have on parents due to the constant worry they experienced and the perceived need for vigilance. It describes how parents’ caring responsibilities could affect their wellbeing, relationships and finances, and how a lack of trusted sources of childcare and a desire to enable a ‘normal’ childhood constrained personal choices and activities. However, use of diabetes technologies could lessen some of these burdens. Experiences of professional and informal support describes how encounters with healthcare professionals, while generally perceived as helpful, could lead to frustration and anxiety, and how connecting with other parents caring for a child with type 1 diabetes provided valued emotional and practical support. Conclusions This synthesis outlines the challenges parents encounter, their views about support received and ways in which support might be improved. It also highlights significant limitations in the current literature and points to important areas for future research, including how sociodemographic factors and use of newer diabetes technologies influence parents’ diabetes management practices and experiences. PROSPERO: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019128710

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Section: Discussionmentioning

confidence: 99%

Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

et al. 2021

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“…3,4 Children with T1D often depend on the assistance of caregivers to help them implement their diabetes care tasks. 5,6 A caregiver's knowledge on T1D in particular, nutritional management is crucial in helping children maintain good metabolic control and ensure proper healthy development. 7 However, in many economically disadvantaged countries such as Uganda access to structured nutrition education can be limited, contributing to poorly controlled diabetes in children with T1D.…”

Section: Introductionmentioning

confidence: 99%

Caregivers’ Nutrition Knowledge and Dietary Intake of Type 1 Diabetic Children Aged 3–14 Years in Uganda

Ndahura¹,

Munga²,

Kimiywe³

et al. 2021

DMSO

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This study aimed to assess the association between caregiver's level of type 1 diabetes (T1D) nutrition knowledge with children's dietary diversity score (DDS), mean intake of macronutrients, nutrient adequacy ratios (NARs) and mean adequacy ratio (MAR). Research Design and Methods: A cross-sectional analytical study design was used. The study was conducted at 6 diabetes clinics in Uganda among 59 caregivers and 61 children. T1D nutrition knowledge survey (NKS) was used to assess the caregiver's nutrition knowledge, and the 24-hour dietary recall and dietary diversity score (DDS) questionnaires were used to collect data on the child's dietary intake. Results: Majority (93.2%) of the caregivers had low T1D nutrition knowledge. Carbohydrate counting was the least performed nutrition knowledge domain. The children's mean DDS, calorie intake and MAR were 5.7 ± 1.6, 666.7 ± 639.8 kcal and 0.7 ± 0.3, respectively. The mean NARs of carbohydrate, protein, and fat were 0.9 ± 0.3, 0.9 ± 0.4, 0.5 ± 0.5, respectively. There was a significant association between DDS with NARs of carbohydrate, protein, fat, vitamins A, B2, B3, B5, B12, folic acid, zinc and MAR. No formal education was significantly associated with a lower mean NKS score among caregivers (p = 0.039). Caregivers' T1D nutrition knowledge, age and family size explained 14% of variation in the child's dietary diversity (p = 0.041). Conclusion: Despite poor nutrition knowledge among caregivers especially on carbohydrate counting, dietary diversity among children with T1D remained favorable. Excess carbohydrate intake was observed with inadequate intake of proteins, fats and micronutrients (vitamin A, B vitamins and calcium). Caregivers with low education were more likely to register poor nutrition knowledge; therefore, there is need to develop and tailor nutrition education programmes to enhance comprehensive learning among caregivers for improved outcomes.

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“…Commissariat et al (2020) 19 Sullivan-Bolyai et al (2003) 5 Pimentel et al (2017) 3 Haslund-Thomsen et al (2020) 20 Povlsen et al (2009) 21 Martins et al (2014) 22 Kratzer (2012) 23 Seppänen et al (1999) 24 Lawton et al (2015) 25 Wennick et al (2007) 26 Wennick et al (2006) 27 Barone et al (2019) 28 Lowes et al (2014) 29 Sand et al (2017) 30 Nurmi et al (2012) 31 Symons et al (2015) 4 Pierce et al (2017) 1 Smaldone et al (2011) 32 Rifshana et al (2017) 33 Sullivan-Bolyai et al (2006) 34 Lowes et al (2005) 35 Spencer et al (2012) 36 Hatton et al (1995) 37 Khandan et al (2018) 38 Lowes et al (2004) 39 Marshall et al (2009) 40 Sparud-Lundin et al (2013) 41 Smith et al (2010) 42 Wennick et al (2009) 43 'Y' total for each question Albolhassani et al (2013) 18 Anderson et al (2018) 2 Commissariat et al (2020) 19 Sullivan-Bolyai et al (2003) 5 Pimentel et al (2017)…”

Section: Change Of Life Routine After Diagnosismentioning

confidence: 99%

“…Haslund-Thomsen et al (2020) 20 Povlsen et al (2009) 21 Martins et al (2013) 22 Kratzer (2012) 23 Seppänen et al (1999) 24 Lawton et al (2014) 25 Wennick et al (2007) 26 Wennick et al (2006) 27 Barone et al (2019) 28 Lowes et al (2015) 29 Sand et al (2017) 30 Nurmi et al (2012) 31 Crawford et al (2015…”

Section: Change Of Life Routine After Diagnosismentioning

confidence: 99%

A systematic review of parents’ experiences of raising a child with type 1 diabetes

2021

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Background: There are currently 1.1 million young people estimated to have type 1 diabetes (T1D) across the world. A diagnosis of T1D impacts not only the children’s lives but also those of the parents.Aim: To understand the experiences of parents raising a child with T1D.Methods: For inclusion, studies had to report qualitative data on parents' experiences of raising a child with a diagnosis of T1D. Parents included mothers, fathers or any other primary caregivers. Eleven databases were systematically searched for relevant articles. Studies were quality assessed and study characteristics extracted. The data were thematically synthesised.Results: Thirty-two studies met the inclusion criteria. Thematic synthesis yielded two analytical themes: ‘adjusting to a new reality’ and ‘navigating appropriate T1D support’. The five descriptive themes that contributed to these were ‘distressing diagnostic experience’, ‘change of life routine’, ‘enablers and barriers to support from others’, ‘reconstruction of family dynamics’ and ‘psychological impact over time’.Conclusions: Difficulties parents encounter in support received from school and healthcare professionals are highlighted. Parents’ mental health needs should be attended to throughout T1D clinic appointments. Future research should explore fathers' experiences, as well as characteristics (such as employment status, education, relationship status and underlying mental health issues) which may affect parental experience, given the paucity of existing evidence.

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Parental Experiences of Continuous Glucose Monitoring in Danish Children with Type 1 Diabetes Mellitus

Cited by 12 publications

References 33 publications

Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

Caregivers’ Nutrition Knowledge and Dietary Intake of Type 1 Diabetic Children Aged 3–14 Years in Uganda

A systematic review of parents’ experiences of raising a child with type 1 diabetes

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