2021
DOI: 10.1111/dme.14731
|View full text |Cite
|
Sign up to set email alerts
|

Parental experiences of short term supported use of a do‐it‐yourself continuous glucose monitor (DIYrtCGM): A qualitative study

Abstract: Aims:To investigate the experiences of parents caring for young children with type 1 diabetes type 1 diabetes using a do-it-yourself continuous glucose monitor (DIYrtCGM) in a supported setting.Methods: Exit interviews were conducted with parents from 11 families at the end of the MiaoMiao study: a randomised cross-over trial focusing on parental fear of hypoglycaemia. Technical support was provided to participants while using DIYrtCGM during the trial. A convenience sampling approach was used to recruit paren… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
1
1

Citation Types

0
6
0

Year Published

2022
2022
2024
2024

Publication Types

Select...
4
1

Relationship

1
4

Authors

Journals

citations
Cited by 6 publications
(6 citation statements)
references
References 36 publications
0
6
0
Order By: Relevance
“…Along with the positive features of the new sensors, users also reported some negative aspects. One of these was alarm fatigue, which is a common reason for discontinuing use of AID and RT-CGM (15)(16)(17). Many users felt restricted by the device alerts for both hyperglycaemia and hypoglycaemia and felt that the former impaired sleep.…”
Section: Discussionmentioning
confidence: 99%
See 1 more Smart Citation
“…Along with the positive features of the new sensors, users also reported some negative aspects. One of these was alarm fatigue, which is a common reason for discontinuing use of AID and RT-CGM (15)(16)(17). Many users felt restricted by the device alerts for both hyperglycaemia and hypoglycaemia and felt that the former impaired sleep.…”
Section: Discussionmentioning
confidence: 99%
“…They cited the ability to trust that the closed loop was working in the background, as the calibration-free CGM was providing accurate sensor glucose information without the need to calibrate. Parents (4/5 parents interviewed) noted that the combination of having a calibration-free device and remote data monitoring allowed them to spend less time focussing on diabetes and more time focussing on other aspects of life (quotes [14][15][16][17].…”
Section: Remote Monitoring Experiencementioning
confidence: 99%
“…Themes outlined here are taken up again in this special issue, in particular, the discussion of what role and significance should be given to real‐world data in attempts to evaluate the efficacy and safety of open‐source AID 11 . Although there is a growing body of real‐world evidence some of which is presented here indicating both the relative benefits of user‐driven open‐source solutions 12 and the reasons why users are drawn to them 13 there remain many caveats attached to the status of real‐world evidence. As Knoll et al suggest, however, it may be necessary to re‐evaluate the status of real‐world data in the future in which the pace of technological development presents practical challenges for the ongoing reliance on the clinical trial as the gold standard for evidence.…”
mentioning
confidence: 97%
“…Research on CGM experiences has primarily studied parents of children with type 1 diabetes (T1DM) [20][21][22][23] or adolescents and young people. 24 These studies reported positive experiences for participants, including reduced parental anxiety and improved sleep quality, sense of safety, and parent-child relationships.…”
mentioning
confidence: 99%
“…24 These studies reported positive experiences for participants, including reduced parental anxiety and improved sleep quality, sense of safety, and parent-child relationships. [20][21][22][23] However, few studies have focused on adults' CGM experiences, although research has suggested that adults with diabetes report positive experiences and improved quality of life. 12,25 The number of people with diabetes using CGMs is expected to increase.…”
mentioning
confidence: 99%