Parental perception of cold extremities and other accompanying symptoms in children with cerebral palsy

Svedberg, Lena; Englund, Erling; Malker, Hans; Stener-Victorin, Elisabet

doi:10.1016/j.ejpn.2007.06.004

Cited by 30 publications

(23 citation statements)

References 32 publications

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“…Children with CP in this study were mostly males. This observation is similar to the reports of previous studies by Lena et al [14] and Wang et al [4] in which male to female ratio of CP was high. The children were more in the age range < 1−3 years compared to older children aged 4−9 years in the study.…”

Section: Characteristics Of Children With Cp In the Studysupporting

confidence: 93%

Psychosocial impact of caring for children with cerebral palsy on the family in a developing country

2015

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Having a child with cerebral palsy (CP) in developing countries of the world is particularly burdensome. This study investigated psychosocial impact on the family caring for a child with CP, examined possible association of severity of gross motor function impairment on the psychosocial impact and compared impact scores of families with CP child with that of families with no CP child. Participants consisted of 117 parents/caregivers of children with CP and 117 parents/caregivers of children without CP whose children attended purposively selected secondary and tertiary health institutions in South-West region of Nigeria. Impact on family (IOF) scale was used to assess psychosocial impact while gross motor function classification system for CP was used to rate severity of motor function impairment in children with CP. Participants were mostly of low income 59 (25.2%) and middle income 85 (36.3%) categories. Children were mostly in the 1?3 year age range 116 (49.6%). Birth asphyxia was most reported cause of CP and no social support service was reported. Significantly higher mean subscale and total IOF scores were observed in families with CP child (37.4 ? 8.91) compared with families with no CP child (20.8 ? 4.98) P = 0.000. Significant differences did not exist in mean total IOF scores and severity of motor function impairment in children with CP (P = 0.16). Presence of a child with CP imposes tremendous psychosocial challenges on the family irrespective of severity of motor function impairment. Implementation of an effective and accessible social support system by Nigerian policy makers is imperative.

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Section: Characteristics Of Children With Cp In the Studysupporting

confidence: 93%

Psychosocial impact of caring for children with cerebral palsy on the family in a developing country

2015

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“…5 Non-ambulatory adults with CP report more pain than ambulatory adults (79% vs 48%). 6 Studies in these adults show similar pain locations; low back, hip, and legs are the most common. The specific aetiology for pain in adults with CP include dislocated hips, osteoarthritis, fractures with osteoporosis, and obesity-related arthritis.…”

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confidence: 96%

“…Predictors for pain in adults with CP include increasing age, as in the general population; however, overall incidence is higher in these adults . Non‐ambulatory adults with CP report more pain than ambulatory adults (79% vs 48%) . Studies in these adults show similar pain locations; low back, hip, and legs are the most common.…”

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confidence: 99%

Spasticity and pain in adults with cerebral palsy

Flanigan

Gaebler‐Spira

Kocherginsky

et al. 2019

Develop Med Child Neuro

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AIM To evaluate whether spasticity measures are related to pain in adults with cerebral palsy (CP). METHOD This cross-sectional study recruited individuals aged 16 to 89 years with a diagnosis of CP. Participants completed the Penn Spasm Frequency Scale (PSFS), Brief Pain Inventory (BPI), and PROMIS Pain Interference measures. The Modified Ashworth Scale (MAS) and Tardieu spasticity angles of six joints were rated and summed to composite MAS and Tardieu scores for each participant. Associations between spasticity and pain measures were evaluated.RESULTS Forty-seven participants (27 females, 20 males) with a mean age of 35 years 7 months (range 18-77y) spanning all Gross Motor Function Classification System (GMFCS) levels were included. Twenty-six participants reported their average pain level on BPI as greater than 0 over the past week (median pain level 4.0). Median PSFS was 1.0 (range 0.0-1.0) and this correlated with average BPI and Pain Interference T scores (median 40.7; q=0.33 and q=0.31 respectively [both p=0.01]). When adjusted for pain medication use and age, MAS correlated with BPI (q=0.30; p=0.04). Other pain and spasticity measures, or GMFCS level, were not significantly related with pain interference or BPI rating. Age was weakly associated with BPI (slope=0.10; p<0.01).INTERPRETATION PROMIS Pain Interference was lower than population-based norms. Patientrated spasm frequency demonstrated better association with pain levels and interference than physician-rated MAS and Tardieu.

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“…Moreover, it may worsen with the increase in severity of the disorder, presence of mental retardation, and the decrease in physical activity level. 3,[5][6][7][8][9] Numerous studies indicate that in children with intellectual and neurologic problems, the percentage of constipation is much greater than healthy ones. 2,3,10,11 In a study, Giudice et al 1 found that in children with CP, the percentage that had constipation was 74%.…”

mentioning

confidence: 99%

The Effects of Osteopathic Treatment on Constipation in Children With Cerebral Palsy: A Pilot Study

Şimşek

Bol

Şimşek

et al. 2009

Journal of Manipulative and Physiological Therapeutics

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Parental perception of cold extremities and other accompanying symptoms in children with cerebral palsy

Cited by 30 publications

References 32 publications

Psychosocial impact of caring for children with cerebral palsy on the family in a developing country

Psychosocial impact of caring for children with cerebral palsy on the family in a developing country

Spasticity and pain in adults with cerebral palsy

The Effects of Osteopathic Treatment on Constipation in Children With Cerebral Palsy: A Pilot Study

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