Parental Perceptions, Attitudes and Involvement in Interventions for
                        Autism Spectrum Disorders in Sarawak, Malaysia

Teo, Jing Xin

doi:10.5463/dcid.v29i1.664

Cited by 4 publications

(9 citation statements)

References 46 publications

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“…The prevalence we found was lower compared to other studies (ranging from 72 to 93.7%) in children with ASD ( 4 , 6 , 63 ). This difference may be due to higher stigma and limited awareness about ASD and mental illness in Malaysia ( 59 , 60 , 64 ), causing caregivers to report fewer symptoms their child might be having.…”

Section: Discussionmentioning

confidence: 99%

Problem behaviours and caregiver burden among children with Autism Spectrum Disorder in Kuching, Sarawak

Chua,

Abd Rahman,

Ratnasingam

2023

Front. Psychiatry

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ObjectiveCaregivers of children with Autism Spectrum Disorder (ASD) often experience emotional and psychological distress, as well as disruptions to family life and employment due to the challenges of caring for children with ASD. This study examines the relationship between problem behaviours and caregiver burden among children with ASD.MethodA cross-sectional study using convenience sampling recruited 230 caregivers of children with ASD aged 4 to 18 years from selected autism centres in Kuching, Sarawak. The caregivers completed the Aberrant Behaviour Checklist-2 and the Zarit Burden Interview.ResultsUnivariate analysis revealed a significant difference in caregiver burden for children with ASD receiving medications (p = 0.013), registered with the Social Welfare Department (p = 0.036), and having siblings with ASD (p = 0.046). About 40% of the children exhibited at least one domain of problem behaviour. More than half of the caregivers (53.9%) experienced burden, with the majority experiencing mild burden. Positive associations were seen between irritability (r = 0.458, p < 0.01), social withdrawal (r = 0.439, p < 0.01), stereotypic behaviour (r = 0.392, p < 0.01), hyperactivity/non-compliance (r = 0.467, p < 0.01), and caregiver burden. Child factors, including the duration of problem behaviour (r = 0.182, p = 0.007), medication use (eta = 0.187, p = 0.005), Social Welfare Department registration (eta = 0.138, p = 0.036), and the presence of siblings with ASD (eta = 0.130, p = 0.046) were associated with caregiver burden. Multiple linear regression showed that hyperactivity/noncompliance significantly predicted caregiver burden.ConclusionSpecific problem behaviours in children with ASD were associated with caregiver burden. These results highlight the need for interventions for the child with ASD and their caregivers.

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Section: Discussionmentioning

confidence: 99%

Problem behaviours and caregiver burden among children with Autism Spectrum Disorder in Kuching, Sarawak

Chua,

Abd Rahman,

Ratnasingam

2023

Front. Psychiatry

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“…Both parents and children faced time constraints to commit to the CFT as they always have a packed schedule. This challenge of the time constraint is supported by Teo and Lau’s [ 47 ] study and Moroz’s [ 48 ] research. It is an issue commonly faced by parents with special needs children in Malaysia and the USA.…”

Section: Discussionmentioning

confidence: 99%

“…It is also noticeable that their weekly CFT homework is impeded by children’s packed schedule of after-school activities and the emphasis on academic-related activities. Parents’ emphasis on the academic performance of their children reflects the collectivist culture, where children’s ability to compete with others is often highlighted [ 47 ]. This speaks to the different value practices in the macro-system of the family members that impact the special needs children’s functioning in interventions as proposed in the Bronfenbrenner Ecological Framework [ 53 ].…”

Section: Discussionmentioning

confidence: 99%

A Mixed-Methods Evaluation of Parent-Assisted Children’s Friendship Training to Improve Social Skills and Friendship Quality in Children with Autism in Malaysia

Ong

Roslan

Ahmad

et al. 2021

IJERPH

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Background: This study evaluates the effectiveness of parent-assisted children’s friendship training intervention for enhancing friendship quality and social skills among children with autism spectrum disorders (ASD). We conducted a quasi-experimental study to investigate the effective outcomes of social skills and friendship quality in the pre-and post-parent-assisted CFT intervention phases; Methods: to conduct a 12-week field session, 30 children with their parents were selected. The Social Skills Improvement System Rating Scales and the Quality of Play Questionnaire-Parent were used to assess the effectiveness of the parent-assisted children’s friendship training during pre-and post-intervention. A semi-structured interview with parents was conducted at the end of the session; Results: findings revealed that intervention improved the social skills of these children. Additionally, the friendship quality of children with ASD improved before and after the intervention, however, engagement remained unchanged. Parents also showed some sort of improvement after the session as they reported a heightened sense of fear and resistance, awareness, learning and adjustment, change is not easy, and identifying support; Conclusions: there was clear evidence that children with ASD benefitted from parent-assisted CFTs in terms of social skills and friendship quality. However, larger and controlled studies are required to draw firm conclusions about this kind of intervention.

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“…First, both parents (participants or guests) or both parties’ children were pressed for time to commit to the CFT because their schedules were always full. Both studies by [ 30 ] and [ 31 ] supported the time constraint problem. It is a problem that parents of special needs children in Malaysia and the United States often confront.…”

Section: Discussionmentioning

confidence: 99%

“…This demonstrated that the parents placed a high value on their children’s academic performance. This mindset is mirrored in East Asian culture, where parents value their children’s ability to compete with others [ 30 ]. This demonstrates the various values practised by family members in the macro-system, which can impact the functioning of special needs children in the intervention, as proposed by Bronfenbrenner’s Ecological Framework [ 36 ].…”

Section: Discussionmentioning

confidence: 99%

Parents’ Experience in Children’s Friendship Training Programme for Their Children with Autism Spectrum Disorder: A Qualitative Inquiry

et al. 2021

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Background: Children’s Friendship Training (CFT) is a parent-assisted intervention programme that introduces children to basic sets of social rules to help them understand social contexts with specific guidance from their parents. It has been reported in several empirical studies that the friendship skills of children with autism spectrum disorder were enhanced after participating in CFT. However, previous studies only focused on the effectiveness of the training without exploring it from the parent’s perspective. As such, the objective of this study is to highlight the parents’ experience in assisting in the implementation of CFT. Purpose: To explore the parents’ experiences with autism spectrum disorder (ASD) in CFT and examine the experiences using the CFT as a theoretical framework. Methodology: In this study, eight parents and their school-aged children with ASD participated in 12 CFT sessions. Upon completing the CFT, the parents participated in a focus group interview. The interview session was video recorded and transcribed with the parents’ consent. Thematic analysis was employed in analysing the collected data as outlined in six different phases. Results: The generated data revealed the similarities and differences in parents’ experiences in the CFT. The current study has identified four main themes: (1) fear and resistance; (2) awareness, learning, and adjustment; (3) change is hard; and (4) identifying support. Conclusions: The findings highlighted the processes that these parents experienced and encountered while attending the CFT programme, it is important to consider these processes based on how they might impact the effectiveness of the programme. The programme’s effectiveness is reliant on the ability to work closely with parents to understand their challenges and explore the type of support they need. This study has analysed the crucial factors that provide an overview of parents’ encounters in their participation in CFT.

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Parental Perceptions, Attitudes and Involvement in Interventions for Autism Spectrum Disorders in Sarawak, Malaysia

Cited by 4 publications

References 46 publications

Problem behaviours and caregiver burden among children with Autism Spectrum Disorder in Kuching, Sarawak

Problem behaviours and caregiver burden among children with Autism Spectrum Disorder in Kuching, Sarawak

A Mixed-Methods Evaluation of Parent-Assisted Children’s Friendship Training to Improve Social Skills and Friendship Quality in Children with Autism in Malaysia

Parents’ Experience in Children’s Friendship Training Programme for Their Children with Autism Spectrum Disorder: A Qualitative Inquiry

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