Parental Perceptions of Service Access for Transition-Aged Youth With Autism During COVID-19

Burke, Meghan; Cheung, W. Catherine; Li, Chak; DaWalt, Leann Smith; Segal, Jordan; Taylor, Julie Lounds

doi:10.1352/1934-9556-60.5.369

Cited by 3 publications

(1 citation statement)

References 31 publications

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“…It may be that the COVID‐19 pandemic limited potential empowerment gains. Post‐test data was collected in late 2020/early 2021—during this time, many children were participating in virtual schooling, agencies administering disability‐related services were difficult to reach, and social distancing reduced opportunities for community integration (Burke et al, 2022; Jeste et al, 2020). Parents of children with disabilities particularly struggled during the COVID‐19 pandemic (Lee et al, 2021; Werner et al, 2022), and thus is it not surprising that there were minimal gains in empowerment.…”

Section: Discussionmentioning

confidence: 99%

Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial

et al. 2023

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Youth with autism face challenges accessing services as they transition to adulthood. Improving parents' ability to advocate for services on behalf of their youth may be an effective way to improve service access and ultimately transition outcomes in this group. In this study, we tested whether participating in an advocacy intervention improved parents' ability to advocate for services for their transition‐aged youth with autism. One hundred and eighty‐five parents of youth with autism ages 16–26, recruited across three states in the U.S., were randomized to one of two experimental conditions. The treatment condition received the ASSIST program, a 12‐week (24‐h) group‐based intervention. The control condition received the same written materials as the treatment condition. Primary outcomes for this report—parent advocacy ability—were collected at baseline (prior to randomization) and post‐test (immediately after the treatment group finished the 12‐week program) by survey. After taking ASSIST, the treatment condition had greater gains than controls in knowledge of adult services (B = −1.62, CI = −2.33 to −0.90) and perceived advocacy skills (B = −0.19, CI = −0.33 to −0.04). Participants who had less knowledge, lower perceived advocacy skills, and less active coping styles at baseline had the greatest treatment gains. Findings suggest that ASSIST is effective in improving parent advocacy ability and may be most beneficial for parents who experience greater challenges advocating for their son/daughter with autism. Future research will examine whether gains in parent advocacy ability leads to improvements in service access and post‐school outcomes for transition‐age youth with autism.

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Section: Discussionmentioning

confidence: 99%

Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial

et al. 2023

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Disabled people’s experiences accessing healthcare services during the COVID-19 pandemic: a scoping review

McBride‐Henry

Orakani

Good

et al. 2023

BMC Health Serv Res

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Background Disruptions to healthcare services during the COVID-19 pandemic are well-recognised problems. However, a dearth of research exists on disabled people’s experiences with accessing these services. A scoping review was undertaken to identify and explore research on the experience of disabled people in accessing healthcare services between 2020 and 6 February 2023. Methods PubMed, Web of Science, CINAHL, and OVID were employed to search for research that included the voice of disabled people, or their parents or caregivers. Over two distinct phases, a total of 2,201 articles were reviewed according to article titles, keywords, and abstracts. Eighty-one studies were identified that met the inclusion criteria; these were reviewed in full. Results Eighteen studies specifically described the experiences of accessing healthcare or disability services, and sixty-three raised healthcare challenges as a secondary consideration. Many disabled people struggled to access healthcare services and felt they were invisible; as a result, individuals’ mental health was negatively affected. Disabled people with compounding vulnerabilities were at the most risk of experiencing a lack of healthcare access. Conclusions There is an urgent need for research and policy that is responsive to disabled people’s access to healthcare during the pandemic; currently many health policies are ‘disability-blind’ and exclude these members of the global community. Furthermore, to assist in creating disability-responsive research, funding needs to prioritise researchers within the disabled community.

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Impact of the coronavirus disease 2019 (COVID-19) pandemic on children and youth with special needs and their families in Japan and support issues

Omura,

Hayashi,

Fujimoto

et al. 2025

JINR

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Parental Perceptions of Service Access for Transition-Aged Youth With Autism During COVID-19

Cited by 3 publications

References 31 publications

Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial

Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial

Disabled people’s experiences accessing healthcare services during the COVID-19 pandemic: a scoping review

Impact of the coronavirus disease 2019 (COVID-19) pandemic on children and youth with special needs and their families in Japan and support issues

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