Parental Perceptions of the Importance and Effectiveness of Patient-Centered Care Delivery

Abstract

Integrative patient-centered care (PCC) models encompass all dimensions of the patient, including physical well-being, evidence-based shared decision making, and determinants of health as they relate to quality of life. The purpose of this study was to explore parental experiences with the principles of PCC, related to the healthcare of their dependent after interactions with a provider. Using an observational design, our results demonstrated that parents of adolescent athletes rated PCC concepts as “very important” and the care delivered in relation to PCC by providers as “very effective.” PCC is perceived as valuable to parents, and therefore, athletic trainers must continue to develop and integrate PCC in the delivery of care within their clinical practice.

Factors That Foster Therapeutic Alliance in Pediatric Sports and Orthopedics: A Systematic Review

“…Seven of the eleven included studies are cross-sectional study designs [ 19 , 20 , 21 , 22 , 23 , 24 , 25 ], one study is a qualitative study [ 26 ], one is a case report [ 27 ], one study is a randomized prospective design [ 28 ], and one is a prospective cohort design [ 29 ]. Table 1 and Table 2 includes data extracted from these included studies.…”

“…There were no differences reported among younger adolescents (10–14 years old) compared to older adolescents (15–18 years old), so results are representative of adolescent patients as a whole. The top two most important attributes to adolescents were shared decision making and understanding patients’ sports and goals [ 20 , 22 , 24 , 27 , 29 ]. Additionally, the highest valued physician characteristic from adolescent patients in a study by Beck et al, 2021 [ 29 ], was being a good listener and the lowest reported was “physician does not involve them in decision making”.…”

“…Additionally, in Peng et al’s study [ 22 ], the factors most predictive of satisfaction from parents were “staff working together as a team” (r = 0.82), “friendliness of provider” (r = 0.80), “cheerfulness of practice” (r = 0.80), and “likelihood of recommending provider” (0.80). In Adado et al’s study [ 24 ], parents reported the most important qualities were factors involved in patient-centered care which included shared decision making, respect of patient’s needs and goals, being a coordinator of care, being an effective communicator and educator, making the child feel safe and comfortable, providing emotional support to the child, involving the child’s support system in the plan of care, and setting up a continuing care plan after each visit. Overall, parents cared most about the staff being team players and providing a safe and comfortable environment for their child.…”

“…No studies examined the differences of therapeutic alliance factors among healthcare providers in the pediatric sports and orthopedics population. Two of the articles focused on factors associated with physical therapists [ 26 , 27 ], two were focused on the orthopedic care team as a whole [ 22 , 24 ], five focused on factors associated with physicians [ 19 , 21 , 23 , 28 , 29 ], and two focused on factors associated specifically with surgeons [ 20 , 25 ]. Very few differences were found among healthcare disciplines.…”

“…Out of our included studies, only VanEtten et al [ 27 ] focused on adolescents’ perspectives and five studies [ 20 , 21 , 26 , 28 , 29 ] discussed the differences between both adolescent and parent perspectives. Although shared decision making was the top reported attribute [ 20 , 22 , 24 , 27 , 29 ] and overall, 92–95% of patients wanted to be involved in the decision-making process [ 20 , 29 ], physician selection was determined by the parent 65% of the time, by the patient 2% of the time, and by both parent and patient together only 6–33% of the time [ 20 , 29 ]. It is surprising that although the vast majority of adolescents wish to be a part of the decision-making process, very few report having a say in choosing their provider.…”