Parental Response to the Medical Ambiguities of Congenital Deafness

Meadow, Kathryn P.

doi:10.2307/2948538

Cited by 38 publications

(7 citation statements)

References 9 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Diagnostic funneling. When the physician expands the diagnostic possibilities, the parents enter what Meadow (1968) has labeled the diagnostic funnel. As some medical hypotheses are discarded and the diagnostic possibilities narrow, uncertainty decreases for the physician.…”

Section: Expanding Competing Hypotheses (Path B)mentioning

confidence: 99%

The stages of the prediagnostic period in chronic, life‐threatening childhood illness: A process analysis

Cohen

1995

Research in Nursing & Health

View full text Add to dashboard Cite

This is one of a series of articles explicating a theory of family behavior under conditions of sustained uncertainty brought about by the diagnosis of a chronic, life-threatening illness of a child. The procedures of the grounded theory method were used to collect and analyze data. The analysis illuminated a perceptual-interpretive-behavioral process that made visible the emergence and intensification of the uncertain state during the prediagnostic period. This process, which may consist of up to three stages, most frequently began with the parents' initial awareness of the child's illness cues and terminated with the diagnostic announcement. The stages were categorized as Lay Explanatory (I), Legitimating (II), and Medical Diagnostic (III). The duration of stage III was found to be a significant factor in explaining the variation in parental response to the diagnosis.

show abstract

Section: Expanding Competing Hypotheses (Path B)mentioning

confidence: 99%

The stages of the prediagnostic period in chronic, life‐threatening childhood illness: A process analysis

Cohen

1995

Research in Nursing & Health

View full text Add to dashboard Cite

show abstract

“…Although this age represents an improvement over the picture of a decade earlier, when the average age at diagnosis was 24 months (Williams &c Darbyshire, 1982), it means that most parents of infants with possible hearing loss continue to experience delays and ambiguous responses to their questions. In this respect, parents of children who are D/HH have a burden that is different from that of parents whose child's disability is apparent at birth, and who thus do not experience the ambiguity and frustration of delayed diagnosis (Meadow, 1968). Mothers participating in the Gallaudet study whose infants' deafness was discovered before the age of 9 months reported lower levels of parenting stress (Meadow-Orlans, 1994) compared to Canadian mothers whose children were identified later (Quittner, 1991;Quittner, Glueckauf, & Jackson, 1990).…”

Section: Age At Diagnosis: Early Versus Latementioning

confidence: 99%

Support Services for Families with Children Who Are Deaf

Meadow-Orlans¹,

Lee²,

Sass-Lehrer

1995

Topics in Early Childhood Special Education

View full text Add to dashboard Cite

Public Law 99–457, reauthorized as Public Law 101–476, the Individuals with Disabilities Education Act of 1990 (IDEA), mandates the participation of families in educational planning for all young children with disabilities. Family support services have become an accepted part of educational planning for infants and toddlers who are deaf or hard of hearing (D/HH), but professionals continue to search for the most effective support models. In this article, we outline broad categories and principles of support that cut across group differences and that might be incorporated in effective intervention programs for families. We then describe selected characteristics of parents of children who are D/HH (gender, hearing status, socioeconomic status, cultural/linguistic status) as well as characteristics of their children (age at diagnosis, hearing level, additional disabilities) that help to shape and define the dimensions of individualized family plans.

show abstract

“…Another common theme in this research is the problematic nature of the relationship between the sick person, his or her family and medical personnel (Ablon 1990;Davis 1982;DeMeyer 1979;Meadow 1968). As previously indicated, one reason for this is that medical personnel often cannot give an accurate prognosis for many forms of chronic illness and may lack successful therapies for the disease.…”

Section: Introductionmentioning

confidence: 97%

Coping with autism: stresses and strategies

Gray

1994

Sociology Health & Illness

View full text Add to dashboard Cite

This paper presents the results of a qualitative study of coping stresses and strategies among a sample of parents with autistic children. The most serious stresses that parents faced included problems with the lack of normal language, dismptive and violent behaviour, inappropriate eating and toileting and inappropriate sexual expression. Most parents used a variety of coping strategies, the most common of which included the use of service agencies, family support, social withdrawal, religion, normalisation, individualism and activism. Although no single coping strategy seemed to provide a definitively better outcome for the parents' adjustment, the use of services and family support appeared to provide the most successful strategy of coping for a substantial number of parents.

show abstract

Parental Response to the Medical Ambiguities of Congenital Deafness

Cited by 38 publications

References 9 publications

The stages of the prediagnostic period in chronic, life‐threatening childhood illness: A process analysis

The stages of the prediagnostic period in chronic, life‐threatening childhood illness: A process analysis

Support Services for Families with Children Who Are Deaf

Coping with autism: stresses and strategies

Contact Info

Product

Resources

About