Parental wellbeing after diagnosing a child with biliary atresia: A prospective cohort study

Rodijk, Lyan H; Kleine, Ruben H de; Verkade, Henkjan J.; Alizadeh, Behrooz Z.; Witvliet, M.; Hulscher, Jan B F; Bruggink, Janneke L M

doi:10.1016/j.jpedsurg.2021.05.026

Cited by 6 publications

(2 citation statements)

References 23 publications

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“…Future studies could also examine indirect markers of quality of life in BA, for example, parental quality of life. This was studied in a 2021 paper by Rodijk et al (49), who described that in particular maternal anxiety was higher than reference values up to three years after diagnosis, but that quality of life was not greatly affected.…”

Section: Discussionmentioning

confidence: 99%

Social and Educational Outcomes in Patients With Biliary Atresia

Alexander

Greaves

Vaidya

et al. 2021

J. pediatr. gastroenterol. nutr.

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Section: Discussionmentioning

confidence: 99%

Social and Educational Outcomes in Patients With Biliary Atresia

Alexander

Greaves

Vaidya

et al. 2021

J. pediatr. gastroenterol. nutr.

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“…Studies show that parents, especially mothers, report high anxiety when dealing with a child diagnosed with biliary atresia. High levels of anxiety and stress have a significant correlation with lower quality of life for both mothers and fathers (Rodijk et al, 2022).…”

Section: Disscussionmentioning

confidence: 99%

Quality of Life of Parents and Patients with Biliary Atresia in Native Liver

Flynn,

Prihaningtyas,

Octariyandra

et al. 2024

IJPBMS

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Children with chronic conditions such as biliary atresia may experience several issues that affect their quality of life (QoL). Childhood chronic disease impacts family members and leads to family health impairment. Objective: This study aims to asses the QoL of parents and patients with biliary atresia. Methods and material: The assessment of parent and patient quality of life with biliary atresia was conducted using the Pediatric Quality of Life (PedsQL) parent report and the World Health Organization Quality of Life (WHOQoL).Multivariate linear regression was used for associated factors. This case-control study involved 38 children (0-24 months) with biliary atresia at the Dr. Soetomo General Academic Hospital Surabaya, which was conducted from June to July 2023. Data obtained showed that male and female prevalence was equal (50%). Age <6 months, mothers with high school education, family income >3 million rupiahs, normal nutritional status were frequently in patients with biliary atresia. Based on the WHOQoL questionnaire, the environment was the only domain that impacted the quality of life of the parents significantly (P= 0.005). However, no significant association with patients' QoL was found for the five domains of the PedsQL. The environment factor had a significant impact on the QoL of the patient's parents according to the results of the WHOQoL questionnaire (P= 0.005).

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Comparing five‐factor personality traits and psychological distress between dysphonic patients and individuals with vocally healthy voices

Aghajanzadeh,

Dabirmoghaddam,

Soleimani

et al. 2024

Brain and Behavior

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IntroductionIt was reported that voice can carry information about personality and psychological distress. In the current study, the relationship between five‐factor personality traits and psychological distress with voice was enlightened from diverse aspects.MethodsA total of 119 participants (55 with and 64 without dysphonia) sustained vowels /a/ and /i/, read six standard sentences, and answered a question. Three raters auditory–perceptually evaluated the vocal samples using the Persian version of CAPE‐V. The participants were distributed into four groups (vocally healthy, mild, moderate, and severe dysphonia). They completed two questionnaires: NEO Five‐Factor Inventory (NEO‐FFI) and Depression, Anxiety, and Stress Scale‐21.ResultsResults showed that the conscientiousness (U = 1146.500, z = −3.27, p = .001) in the dysphonia group was significantly less than the vocally healthy group. Depression (U = 1381.000, z = −2.03, p = .042) and anxiety (U = 1181.000, z = −3.10, p = .002) in the dysphonia group were significantly higher than in the vocally healthy group. In comparing different abnormal overall voice qualities, the mild dysphonia group revealed significantly lower conscientiousness (p = .001) and significantly higher anxiety (p = .002) relative to the vocally healthy group.ConclusionsFindings indicated that the conscientiousness trait could play an influential role in persons with dysphonia and its psychological status. The voice care team should consider conscientiousness and psychological distress during the assessment and treatment of dysphonic patients.

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Parental wellbeing after diagnosing a child with biliary atresia: A prospective cohort study

Cited by 6 publications

References 23 publications

Social and Educational Outcomes in Patients With Biliary Atresia

Social and Educational Outcomes in Patients With Biliary Atresia

Quality of Life of Parents and Patients with Biliary Atresia in Native Liver

Comparing five‐factor personality traits and psychological distress between dysphonic patients and individuals with vocally healthy voices

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