Parenting Adolescent Girls with Type 1 Diabetes: Parents' Perspectives

Mellin, Alison E.; Neumark‐Sztainer, Dianne; Patterson, Joän M.

doi:10.1093/jpepsy/jsh023

Cited by 75 publications

(117 citation statements)

References 28 publications

Supporting

Mentioning

102

Contrasting

Unclassified

Order By: Relevance

“…While many parents recognized the need for their adolescent to assume more responsibility, some (30%) described frustrations over not knowing how much help to provide. (Mellin, 2002) Parents' experiences of their child's transition Whilst most parents valued independence and believed that letting go was the right thing to do, many described this as a difficult process, particularly if they perceived that their child was not managing their condition as well as they had been when it was under greater parental control. (Allen, 2011) Mothers described being anxious and uncertain about how much responsibility to give their children… They experienced a sense of risk in letting the child act independently.…”

Section: Providing Effective Transitional Carementioning

confidence: 99%

Parenting a child with chronic illness as they transition into adulthood: A systematic review and thematic synthesis of parents’ experiences

Heath

Farré

Shaw

2017

Patient Education and Counseling

168

116

View full text Add to dashboard Cite

Highlights Parents view young person progression to self-care as an incremental process.  Parent perceptions of child readiness and wellness impact on healthcare autonomy.  Parents are concerned about a lack of transitional healthcare.  Parents can adjust their behaviour to support their child's independence.  Healthcare professionals can support parents to facilitate adolescent autonomy. AbstractObjective: To understand how parents view and experience their role as their child with a long-term physical health condition transitions to adulthood and adult healthcare services. Methods: Five databases were systematically searched for qualitative articles examining parents' views and experiences of their child's healthcare transition. Papers were quality assessed and thematically synthesised. Results: Thirty-two papers from six countries, spanning a 17-year period were included. Long-term conditions were diverse. Findings indicated that parents view their child's progression toward self-care as an incremental process which they seek to facilitate through up-skilling them in self-management practices. Parental perceptions of their child's readiness, wellness, competence and long-term condition impacted on the child's progression to healthcare autonomy. A lack of transitional healthcare and differences between paediatric and adult services served as barriers to effective transition. Parents were required to adjust their role, responsibilities and behaviour to support their child's growing independence. Conclusion: Parents can be key facilitators of their child's healthcare transition, supporting them to become experts in their own condition and care. To do so, they require clarification on their role and support from service providers. Practice

show abstract

Section: Providing Effective Transitional Carementioning

confidence: 99%

Parenting a child with chronic illness as they transition into adulthood: A systematic review and thematic synthesis of parents’ experiences

Heath

Farré

Shaw

2017

Patient Education and Counseling

168

116

View full text Add to dashboard Cite

show abstract

“…8,28 The presence of emotional support is encouraging because parental warmth, empathy, and adherence have been linked in the literature. 2,5,7,14,29 Children have also demonstrated some empathy, which can contribute to smooth relationships by increasing tolerance of caregivers' unwelcome behavior. 15,28 However, it is also clear that conflict was an ever-present threat and frequent reality for some families.…”

Section: 26mentioning

confidence: 99%

“…Close monitoring can facilitate adherence, 2,38 but it can also feel like an intrusion. 14,15,17,28 Nonetheless, some Jamaican caregivers, just like caregivers elsewhere, were sceptical of their child's selfcare abilities. 13,14 They were aware of what studies have reported: that maturity, not age, is key to successful self-care.…”

Section: 26mentioning

confidence: 99%

“…They managed their expectations by allowing occasional indulgences and rewarding and incentivizing good behavior, thus removing potential sources of conflict. 10,14 The mother who tested her son's blood glucose communicated with him in a way that allowed frictionless completion of an important task.…”

Section: 26mentioning

confidence: 99%

“…[8][9][10][11] At the root of tensions are the negotiation of children's autonomy as adolescents; differing opinions on each party's role; children's irritation at parents' frequent reminders, lack of knowledge, and scepticism of their ability to manage diabetes; and parents' frustration with nonadherence. 5,9,[11][12][13][14][15] These struggles have serious repercussions; conflict compromises family cohesion, adherence and control, intra-family communication, and the quality of life (QOL) and physical and psychosocial functioning of parents and children. 5,7,[16][17][18] There are limited data on Jamaican youth living with diabetes.…”

mentioning

confidence: 99%

See 2 more Smart Citations

“She's Trying Her Best, Even Though She Gets on My Nerves”: Diabetes and the Caregiver-Child Relationship in Jamaica

Anderson¹,

Tulloch‐Reid²

2013

Diabetes Spectrum

View full text Add to dashboard Cite

Family Meals and Disordered Eating in Adolescents

Neumark‐Sztainer

Eisenberg²,

Fulkerson³

et al. 2008

Arch Pediatr Adolesc Med

185

160

View full text Add to dashboard Cite

Setting: Participants from 31 Minnesota schools completed in-class assessments in 1999 (time 1) and mailed surveys in 2004 (time 2). Participants: Adolescents (N=2516) who completed Project EAT (Eating Among Teens)-I (time 1) and-II (time 2) assessments. Main Outcome Measures: Time 1 family meal frequency and time 2 disordered eating behaviors, including extreme weight control behaviors (self-induced vomiting and use of laxatives, diet pills, or diuretics), less extreme unhealthy weight control behaviors (eating very little, fasting, using food substitutes, skipping meals, or smoking), binge eating, and chronic dieting. Results: Among adolescent girls, time 1 regular family meals (Ն5 meals/wk) were associated with lower prevalences of time 2 extreme weight control behaviors (odds ratio, 0.71; 95% confidence interval, 0.52-0.97), even after adjusting for sociodemographic characteristics, body mass index, family connectedness, parental encouragement to diet, and extreme weight control behaviors at time 1. Associations with other disordered eating behaviors were also suggestive of a protective effect of family meals in unadjusted analyses but were not statistically significant in adjusted analyses. Among adolescent boys, regular family meals did not predict lower levels of disordered eating behaviors. Conclusions: The high prevalence of disordered eating behaviors among adolescent girls and the protective role of family meals suggest a need for interventions aimed at promoting family meals. Further exploration of predictors of disordered eating behaviors in adolescent boys and the role of family meals is warranted.

show abstract

Parenting Adolescent Girls with Type 1 Diabetes: Parents' Perspectives

Cited by 75 publications

References 28 publications

Parenting a child with chronic illness as they transition into adulthood: A systematic review and thematic synthesis of parents’ experiences

Parenting a child with chronic illness as they transition into adulthood: A systematic review and thematic synthesis of parents’ experiences

“She's Trying Her Best, Even Though She Gets on My Nerves”: Diabetes and the Caregiver-Child Relationship in Jamaica

Family Meals and Disordered Eating in Adolescents

Contact Info

Product

Resources

About