Parenting Experience of Mothers with Children with Autism Spectrum Disorder: An Analysis of the Mothers’ Diaries

Kang, Gyun Young; Choi, Cha Soon; Ju, Se Jin

doi:10.17485/ijst/2016/v9i20/94698

Cited by 6 publications

(2 citation statements)

References 8 publications

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“…Likewise, Canadian mothers presented poignant narratives about living with their autistic children. The study conducted in Korea showed that the autistic mothers face difficulty in accepting limits imposed by the disability's discouragement and suffering [ 10 ].…”

Section: Introductionmentioning

confidence: 99%

Lived Experiences of Mothers Raising Children with Autism in Chitwan District, Nepal

Acharya

Sharma

2021

Autism Research and Treatment

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Background. Autism is a neurodevelopmental problem that is increasing at an alarming rate worldwide. Rearing and caring for children with autism depends upon the perception of mothers and various factors associated with it. There is a gap in the literature regarding the detailed accounts of mother’s experiences regarding autism in Nepal. Hence, this study was undertaken to explore lived experiences of mothers raising children with autism. Materials and Methods. Qualitative phenomenological study design was used and nine mothers with autistic children were selected using purposive sampling technique. Data were collected using in-depth interview guidelines and analyzed using Colaizzi’s steps. Results. Findings of the study revealed that mothers raising children with autism encountered numerous problems in their life. They felt physically exhausted due to the continuous supervision of their child. Emotional problems such as denial, upset/sadness, and worry were also common among them. In addition, all mothers faced social problems such as social blame, social isolation, and ignorance from their relatives and society due to the atypical behavior of their child. Furthermore, the economic problem was also acute among mothers due to job loss, costly medical treatment, and therapies. So, to deal with the stressors they faced, mothers adopted various coping strategies such as respite care, problem-focused strategies, religious coping, and positive coping in their everyday life. Conclusion. In conclusion, to the authors’ knowledge, this is the first study documenting the experiences of Nepalese mothers having autistic children. Hence, health care professionals need to pay more attention to address the problems of mothers while treating their autistic children. The Government of Nepal also needs to formulate a policy for the rehabilitation of autistic children in society.

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Section: Introductionmentioning

confidence: 99%

Lived Experiences of Mothers Raising Children with Autism in Chitwan District, Nepal

Acharya

Sharma

2021

Autism Research and Treatment

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“…Kepuasan menjadi seorang ibu yang merawat ASD berhubungan dengan tantangan, pencapaian serta ekspektasi selama menjalani perannya sebagai ibu. Temuan ini selaras dengan penelitian Kang, Choi, & Ju (2016) yang menyebutkan bahwa ibu-ibu yang memiliki anak ASD merasakan kepuasan dan bersyukur atas perubahan sekecil apapun yang terjadi pada anaknya, dimana hal ini kemudian membangun harapan untuk masa depan anak-anak mereka. Partisipan dalam penelitian ini merasakan kehidupan yang berarti apabila mereka mencurahkan hidupnya untuk melayani keluarga dan anak-anak mereka.…”

Section: Pembahasanunclassified

Dinamika “Occupations” Dalam Perspektif Ibu-Ibu Yang Merawat Anak Dengan Autisme Dan Dampaknya Terhadap Kualitas Hidup (Life Quality) Sehari-Hari

Sumaryanto

Aziz²

2019

j.keterapian.fis.

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Background : As the challenges arise in raising children with autism, mothers experience changes with their occupations and also on how they define them. This later alters the overall wellbeing both psychosocially and physically as changing on health status determines the life quality. Parents, particularly mothers with autistic children may encounter dynamic to their life quality as they discover adjustment on meanings of occupations while fostering their children. Research purposes of the study are to discover and to explore the mothers interpretations on their current occupations related to their role as main caregivers of their autistic children. Methods: This is a qualitative study with phenomology approach to discover and to explore the meaning of occupations and the dynamic of perceived-life quality as the meanings of occupations might shifting along the nurturing processes. This study had selected four people as research participants. The data were then collected through in-depth interviews and followed with thematic analysis. Results: Based on the analysis process, this study highlighted three main themes as follow, the general changes in life, the values of roles, and the perceived-life quality. Mothers who foster their autistic children had reported various changes in their daily occupations and how they perceived the meanings of these occupations as the diagnoses have altered the familial hierarchy within their domestic environments; this later also has significant impacts on their perceived-quality of life while fulfilling their role as the main house keepers. Thus, all these changes enforce the mothers to always strive on their best as this effort will eventually deliver positive meanings, such as self-confidence, greater responsibilities related to the roles as a mother and the possitive supports received from their support systems. Conclusion: The respondents reported the overwhelming perceived-satisfactions when talking about their quality of life. This is the result from personal beliefs over the ability to devote their life for the children and the family despite the perceptions that they are still unable to enjoy their general life ideally.

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“Their Happiness, Not Neurotypical Success”: Autistic Adults Reflect on the Parenting of Autistic Children

Lee,

Whittingham,

Olson

et al. 2023

J Autism Dev Disord

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Parenting Experience of Mothers with Children with Autism Spectrum Disorder: An Analysis of the Mothers’ Diaries

Cited by 6 publications

References 8 publications

Lived Experiences of Mothers Raising Children with Autism in Chitwan District, Nepal

Lived Experiences of Mothers Raising Children with Autism in Chitwan District, Nepal

Dinamika “Occupations” Dalam Perspektif Ibu-Ibu Yang Merawat Anak Dengan Autisme Dan Dampaknya Terhadap Kualitas Hidup (Life Quality) Sehari-Hari

“Their Happiness, Not Neurotypical Success”: Autistic Adults Reflect on the Parenting of Autistic Children

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