Parenting Success and Challenges for Families of Children with Disabilities: An Ecological Systems Analysis

Algood, Carl L.; Harris, Cynthia; Hong, Jun Sung

doi:10.1080/10911359.2012.747408

Cited by 59 publications

(43 citation statements)

References 64 publications

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“…Those who were able to arrange appointments to take place at their child's school spoke of the benefits of this approach, though not all schools offered the opportunity for this to happen. A family centred approach in disability services that considers the needs of the family unit, as well as individual needs, is understood to be the most appropriate practice framework to address competing time demands (Resch 2010;Algood & Harris 2013). One of the crucial approaches noted by participants to working well was to prioritise which appointments they felt were most important for their child, and where possible to schedule multiple appointments concurrently.…”

Section: Discussionmentioning

confidence: 99%

The experience of sole mothers balancing paid work with care for a child with a disability

Cole¹,

Crettenden²,

Roberts³

et al. 2016

Aust J Social Issues

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There are increasing numbers of families in Australia headed by sole parents, but little is known about the experiences of those who also care for a child with a disability. Additional caring responsibilities have previously been shown to impact on the work participation of parents. This study involved qualitative analyses of interview data conducted with sole mothers with school-aged children with disability (N = 11). Thematic analysis revealed four themes that enabled and supported participation in the workforce: social support; managing appointments; characteristics of the workplace; and the role of the school. Results suggest the importance of practical help from family and friends in facilitating participation in paid employment. Additionally, the importance of flexible appointment scheduling on the part of service providers was highlighted, as well as the importance of workplace flexibility and supportive workplace cultures. Such factors were important in supporting sole mothers to balance work with care, with important implications for personal and family wellbeing.

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Section: Discussionmentioning

confidence: 99%

The experience of sole mothers balancing paid work with care for a child with a disability

Cole¹,

Crettenden²,

Roberts³

et al. 2016

Aust J Social Issues

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“…These multiple factors are typically organized as nested systems doi: 10.7243/2054-992X-1-1 from the individual ("microsystem") interacting with family (or school) outward and expanding through the mesosystem, and to the macrosystem level of social and cultural influences and factors. The ecological model is presented in greater detail by Algood et al, [1] in their examination of factors associated with parenting success for caregivers of children with disabilities. They conclude that successful intervention programs and services will achieve greater efficacy if multiple-level influences are considered and supported.…”

Section: Grounding Autism Participatory Research In the Ecological Modelmentioning

confidence: 99%

“…In essence, the ecological framework facilitates organizing information about people and their environments in order to understand their interconnections [1]. Voegtle [83] noted that ecological approaches to research acknowledge the resources and barriers at both the individual and community level and that health status is the result of multiple factors, including social, political, and economic systems that can influence behavior.…”

Section: Grounding Autism Participatory Research In the Ecological Modelmentioning

confidence: 99%

“…The ecological model has application when using family-centered approach for working with parents with children with disabilities [1], children and adolescents in mental health family-centered or school settings [21], social communication interventions for children with ASD [64], and school-based behavioral interventions in families with children with ASD [74]. A family-centered care model also examines the perceived challenges of parents with children with ASD [66].…”

Section: Grounding Autism Participatory Research In the Ecological Modelmentioning

confidence: 99%

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Autism spectrum disorder and the applied collaborative approach: a review of community based participatory research and participatory action research

Wright¹,

Wright²,

Diener³

et al. 2014

J Autism

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The quest to understand ASD is monumental, dramatic and paradigmatically shifting. Research advances in ASD challenge the traditional understanding of autism and call for a "reconceptualization" of autism given the revolutionary impact of recent discoveries. Related to this reconceptualization of autism, are the countervailing forces signaling a shift in the research "agenda" where individuals with ASD are part of the research process-and offer an understanding of autism beyond bench science and traditional scholarship. Although many interpretations of autism remain grounded in the biomedical paradigm, individuals with autism, through narrative self-representations and activities are changing the perspective of autism transforming it from "cure to community. " The involvement of individuals with ASD, along with their families, and school and workplace representatives moves research closer to a "communityengaged" endeavor and helps to build a stronger science that is translational and sustainable. This paper examines the role of both community-based participatory research (CBPR) and participatory action research (PAR) in the study of autism issues via the trends analyzed by Scopus in journal publications within an established time-frame of publication dates and specific search analytics. An example of using an ecological model to explore the use of CBPR and PAR in autism research is presented. The goal of this review is to determine trends in publications in these domains and to assist scholars and future researchers to consider identified publications as a part of their plans to use CBPR or PAR designs and ecological models when designing their community engaged research methodology.

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“…In this framework, various psychological variables such as self-efficacy perceptions (Al-Kandari & Al-Qashan, 2010;Hastings & Brown, 2002), successful parenting skills (Algood & Harris, 2013), family functions (Özşenol, Işıkhan, Ünay, Aydın, Akın & Gökçay, 2003), life satisfactions (Akandere, Acar & Başbuğ, 2009), social support perceptions (Coşkun & Akkaş, 2009), constant stress (Glenn, Cunningham, Poole, Reeves & Weindling 2008) and life styles (Witcher, 1987) have been the subjects of these studies.…”

Section: Introductionmentioning

confidence: 99%

A Holistic Approach to Cope with Depression and Hopelessness for Parents of Special Needs Children

Akdoğan¹

2016

INT-JECSE

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This study aims to identify psychological difficulties the parents (n=24) of children with various handicaps from their opinions through a holistic perspective; and reveal the effectiveness of group counseling based on eclectic approach to cope with these difficulties. Study was conducted in two successive steps. During the first step, the data related to the experiences of parents based on having a handicapped child were collected through a structured interview form. As for the second step, a group counseling program which formed within the light of qualitative data gathered in first step was applied, and the effect of the program on depression and hopelessness levels of parents was examined through an experimental design of 2x2. Findings of the study showed that the program had a significant effect on decreasing depression and hopelessness levels of the parents.

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Parenting Success and Challenges for Families of Children with Disabilities: An Ecological Systems Analysis

Cited by 59 publications

References 64 publications

The experience of sole mothers balancing paid work with care for a child with a disability

The experience of sole mothers balancing paid work with care for a child with a disability

Autism spectrum disorder and the applied collaborative approach: a review of community based participatory research and participatory action research

A Holistic Approach to Cope with Depression and Hopelessness for Parents of Special Needs Children

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