Parents' accounts: Factors considered when deciding how far to involve their son/daughter with learning disabilities in choice-making

Mitchell, Wendy

doi:10.1016/j.childyouth.2012.04.009

Cited by 16 publications

(46 citation statements)

References 36 publications

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“…Of the 18 articles, 15 were original research papers from Australia (Dew et al . ), Finland (Eriksson ), New Zealand (Espiner & Hartnett ), Germany (Junne & Huber ), the United Kingdom (Mitchell ,b,c, ,b, Kendall & Cameron ) and the United States of America (Heller et al . , Gross et al .…”

Section: Resultsmentioning

confidence: 99%

“…Three of the research papers included perspectives of family members or caregivers (Heller et al . , Mitchell , Timberlake et al . ); one included the perspectives of a combination of family members or caregivers and service providers (Dew et al .…”

Section: Resultsmentioning

confidence: 99%

“…). Six of the eleven research articles (Mitchell ,b,c, ,b, Timberlake et al . ) focused specifically on self‐directed policy for young people with disability.…”

Section: Resultsmentioning

confidence: 99%

“…, Gross et al . , Eriksson ), three for people with learning disabilities (Mitchell , Harkes et al . , Sims & Cabrita Gulyurtlu ), three for people with disabilities with degenerative conditions (Mitchell , ,b), seven for groups with a variety of disabilities (Mitchell , Crozier et al .…”

Section: Resultsmentioning

confidence: 99%

“…Mitchell () suggested that service providers and practitioners need to develop an understanding of the distinct family and support structures available for each service user and be clear about the roles and obligations of each person involved in the self‐direction process. The literature provides examples of ways to encourage cultural shifts in organisations and among providers’ practices.…”

Section: Resultsmentioning

confidence: 99%

See 4 more Smart Citations

Perspectives of self-direction: a systematic review of key areas contributing to service users’ engagement and choice-making in self-directed disability services and supports

Lakhani

McDonald

Zeeman

2016

Health Soc Care Community

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Self-directed disability support policies aim to encourage greater choice and control for service users in terms of the health and social care they receive. The proliferation of self-directed disability support policies throughout the developed world has resulted in a growing amount of research exploring the outcomes for service users, and their families and carers. Our understanding of the issues faced by people with disabilities, particularly how they make health and social care decisions and the key areas that determine their engagement with service providers within a self-directed environment is limited. A synthesis of research is timely and can provide knowledge for service users and health and social care support providers to ensure their successful participation. A systematic review guided by the PRISMA approach explored (i) the key areas determining service users' engagement with self-directed disability services and supports, and (ii) how service users make informed decisions about providers. In October 2014 and April 2016, three databases - MEDLINE, CINAHL and Web of Science - were searched for research and review articles. Eighteen sources met the search criteria. Findings were mapped into either: key areas determining service user engagement, or service users' informed decision-making. Findings concerning key areas determining engagement fell into three themes - personal responsibility for budgeting, personalised approaches, and a cultural shift in practice and delivery among service providers. Findings about decision-making yielded two themes - supporting informed decision-making and inhibiting informed decision-making. Literature suggests that self-directed models of care may provide service users with increased control over the services that they receive. Increased control for some service users and their families requires independent external decision-making support, particularly around the domains of budgeting, planning and hiring. Future research must continue to investigate the perspectives of service users pertaining to their engagement, as their participation is central to the effectiveness of the approach.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…). Six of the eleven research articles (Mitchell ,b,c, ,b, Timberlake et al . ) focused specifically on self‐directed policy for young people with disability.…”

Section: Resultsmentioning

confidence: 99%