Parents' and service providers' perceptions of family‐centred practice in a community‐based, paediatric disability service in Australia

Abstract

The findings suggest that parents and service providers perceive FCP as positive at Novita, with some areas for improvement. The MPOC-20 and MPOC-SP can be used to measure FCP and to identify service delivery gaps, which warrant further exploration.

Involving Parents in Managing Their Child's Long-Term Condition—A Concept Synthesis of Family-Centered Care and Partnership-in-Care

“…Valuing parents' knowledge and experiences  Know the family and developing effective parent-professional relationship (Davies, 2012;Murphy & Fealy, 2007)  Collaborate and share decisions about child's care (Coyne, 2011;MacLean et al 2007)  Effective communication skills (MacKean et al 2005)  Build trust, listen to parent concerns, value parents knowledge of their child (Fereday, et al 2010;Ford, 2011)  Respecting and being sensitive to individual family's context (Raghavendra, et al 2007) Supporting parents in their role as care giver  Provide opportunities for information sharing (Bruce, et al 2002;Coyne, 2011;Coyne, 2013b;Holm, et al 2003;Koller, 2006;)  Facilitate parents to involved in the child care; clarify and negotiate roles (Coyne, 2011;Holm, et al 2003;Hughes, 2007)  Professionals have and share specialised knowledge to support family (Davies, 2012)  Design services round the child and family needs (Bruce, et al 2002)  Maintain contact and going support (Coyne & Cowley, 2007;Ford, 2011)  Mutual exchange of information about the child's specific health issues (Ford, 2011;Lam, et al 2006;Lee, 2007) Incorporating parents' expertise into clinical and psychosocial care…”

Caracterização dos cuidados centrados na família em oncologia pediátrica em Portugal

“…Os valores médios nas duas dimensões dos CCF (Serviços e Informação Geral), considerados elevados, sugerem que os pais de crianças acompanhadas nas unidades de oncologia pediátrica da região Norte de Portugal avaliam os cuidados como centrados na família. A média das classificações na subescala de Informação Geral foi mais baixa, um resultado igualmente encontrado em estudos prévios (Klassen et al, 2011;Raghavendra et al, 2007). Auxiliando os pais no desempenho do seu papel de cuidadores (Young, Dixon-Woods, Findlay, & Heney, 2002) …”

“…Os resultados relativos à idade da criança são ainda pouco esclarecedores. Alguns estudos sugerem que os pais de crianças mais novas avaliam os cuidados como mais centrados na família (Raghavendra, Murchland, Bentley, Wake-Dyster, & Lyons, 2007;Strickland et al, 2004). Contudo, outros estudos não encontraram associações entre a perceção parental dos CCF e a idade da criança (Bethell, Reuland, Halfon, & Schor, 2004;Dix et al, 2009;King et al, 2004).…”

Partnerships in Early Childhood Education and Care: Empowering Parents or Empowering Practitioners

“…It is underpinned by the philosophy that families should be empowered decision makers for their children, in partnership with the professionals (Brown et al, 1993;Dunst & Trivette, 1996;Allen & Petr, 1998;Raghavendra et al, 2007). The key characteristics of family-centred practice reflect those of a broader partnership theory; however, it is the notion of professionals supporting families to be empowered which sets this model as distinct when examining it in a broader partnership context.…”

“…It is built on a concept that parents come to the relationship from a position of disempowerment, seeking help from the professionals to access services to assist them in caring for their child at home (Dunst & Trivette, 1996;Dunst & Dempsey, 2007;Dunst, 2010). It was seen as a role of the professional working with the family to empower them as key partners in decisionmaking regarding care and intervention for their child, and in identifying and accessing necessary services (Brown et al, 1993;Dunst & Trivette, 1996;Allen & Petr, 1998;Raghavendra et al, 2007). Professionals are usually highly qualified and experienced health or specialist practitioners and, in the context of family-centred practice, are described as 'help-givers', while the families are seen as 'help-seekers' (Dunst & Trivette, 1996;Davis et al, 2002;Dunst & Dempsey, 2007;Dunst, 2010).…”