Parents' asthma information needs and preferences for school-based asthma support

Aloola, Noha Al; Nissen, Lisa; Alewairdhi, Huda Abdullaziz; Faryan, Nawaf Al; Saini, Bandana

doi:10.1080/02770903.2017.1281296

Cited by 15 publications

(8 citation statements)

References 37 publications

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“… 12–15 18 19 24 The costs and difficulties in obtaining days off-work for caregivers were also mentioned in this study by both HCPs and caregivers, and this issue has been raised frequently in previous studies. 10 13–15 17 20 21 26 Caregivers’ beliefs, a mistrust in hospitals and doctors, combined with advice from non-HCPs, caused many to prefer the use of natural remedies over prescribed drugs. This was also the case for ethnic minority caregivers in the UK.…”

Section: Discussionmentioning

confidence: 99%

“…7 These phases have been used in a systematic review to classify reported barriers and facilitators to healthcare access for any disease, 8 and could be applied also to asthma healthcare. Several studies have investigated barriers and facilitators to health and home care access for children with asthma from the caregivers' perspective, [9][10][11][12][13][14][15][16][17][18][19][20][21][22][23][24][25] but only a few from the perspective of healthcare professionals' (HCPs). 26 27 Most such studies have been done in the USA and Europe.…”

Section: Key Messagesmentioning

confidence: 99%

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Caregivers’ and healthcare professionals’ perspective of barriers and facilitators to health service access for asthmatic children: a qualitative study

et al. 2021

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BackgroundThere is a high burden of asthma morbidity and mortality in Latin America. It has been proposed that this relates to limited access to diagnostic tests, asthma medications and specialised doctors. However, little is known of what caregivers of asthmatic children and healthcare professionals (HCPs) perceive as barriers and facilitators to adequate care. We aimed to explore the barriers and facilitators to asthma care access from caregivers’ and HCP’s perspective in an Ecuadorian low-resource setting.MethodsIn 2017, we conducted 5 focus group discussions (FGD) with 20 caregivers of asthmatic children and 12 in-depth interviews with 3 paediatricians, 6 general doctors and 3 respiratory therapists in Esmeraldas city, Ecuador. FGDs and interviews were digitally recorded, transcribed, open-coded in QDA Miner, categorised using an interpretative phenomenological approach and analysed thematically. Barriers and facilitators were classified into availability, accessibility, acceptability and contact of healthcare services, based on Tanahashi model of health service access.ResultsLimited resources, use of alternative medicines, fear of medication side-effects and lack of specific training for doctors and knowledge in families were common barriers for both caregivers and HCPs. Caregivers and HCPs proposed the implementation of public health asthma-focused programmes that would include close community-based follow-up of people with asthma, educational sessions for their families and public engagement activities. HCPs also suggested implementing training programmes on asthma management for general doctors.ConclusionMultiple barriers identified by caregivers and HCPs referred to economic and health service organisational issues, fear of side effects of medication or ineffective self-management. Increasing caregivers and HCPs’ asthma knowledge, as well as HCPs’ communication skills to establish a patient-centred approach with a shared decision-making process could improve asthma care in this setting.

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Section: Discussionmentioning

confidence: 99%

Section: Key Messagesmentioning

confidence: 99%

Caregivers’ and healthcare professionals’ perspective of barriers and facilitators to health service access for asthmatic children: a qualitative study

et al. 2021

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“…20,21,25 In studies of the experiences of families, the families having child with asthma, emphasized the lack of training and psychological support provided by healthcare professionals. 19,[33][34][35] Moreover, in previous studies, it was reported that families had problems with school personnel concerning managing asthma and that many families did not send their children to school during periods of exacerbations. 36 The mothers are generally the primary caregivers of children, and many mothers feel alone in managing asthma.…”

Section: Discussionmentioning

confidence: 99%

The experiences, perceptions and challenges of mothers managing asthma in their children: a qualitative study

Pars¹,

Soyer²,

Şekerel³

2020

Turk J Pediatr

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Asthma may decrease quality of life in children as it affects their physical, mental, social, and emotional development. 1,2 If asthma is uncontrolled, children may experience frequent emergency department admissions and hospitalizations along with many attrition from school and limitations in their daily activities such as playing, extracurricular activities, and doing sports. Parents have a critical role in the management of the disease, however, this situation may have a serious psychological effect on parents which, can lead to feelings of inadequacy, helplessness and depression. 3,4 Families' adaptation to the disease and difficulties in asthma management may influence asthma control. Previous studies in other countries have reported that parents may have insufficient knowledge on triggers, insufficient information for the care and difficulties on the recognition of asthma symptoms. 5-7 Parents' attitudes towards diseases are, to a certain extent, a

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“…Qualitative evaluations of community-based programs for children with asthma are limited (6). Some qualitative literature sought general feedback from parents/caregivers, healthcare providers and community stakeholders about caring for children with asthma (7)(8)(9)(10), but no qualitative evaluations were identified that have obtained feedback and suggestions from parents and family members who participated in an asthma home-visiting program.…”

Section: The Community Asthma Initiative Has a Quality Improvement Mo...mentioning

confidence: 99%

Parent experiences with a nurse-supervised community health worker asthma home-visiting program

et al. 2018

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Objective: This study seeks to identify helpful components of a nurse-supervised Community Health Worker asthma home-visiting program, obtain feedback from parents and families about their experiences, and receive suggestions for new services that the program could provide. Methods:Likert scale ratings and semi-structured qualitative interviews were conducted with parents who were selected from a representative sample and previously participated in the program. Five-point Likert scale ratings from 1 (not helpful) to 5 (very helpful) were obtained for 11 program components. Interviews were analyzed using a grounded theory participatory approach. Data were analyzed and themes were identified by two different coders using Dedoose software.Results: 22 participants were enrolled and 20 participants completed Likert scale ratings and qualitative interviews. Likert scale ratings (mean, [SD]) show that program strengths include asthma education (4.75, [0.55]), supplies (4.65, [0.99]), help with housing conditions (3.94 [1.56], pest management (3.79, [1.69]) and greater access to community resources (3.70, [1.30]). The ratings suggest that families need more help with other social determinants of health, such as school, lack of enough money or food, and mental health and behavioral concerns (3.05, [1.78]). Interviews echoed these ratings and revealed several themes about family and parental stress, children's activity limitations, desire for outreach after the 12-month intervention, a need for help with other social determinants and more emotional support. Conclusions:This study shows that the program was well received and reveals the importance of addressing social determinants of health and behavioral health concerns.

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Parents' asthma information needs and preferences for school-based asthma support

Abstract: This research clearly describes a need for school-based asthma support, including asthma-related policies, procedures and education on asthma and first aid in Saudi primary schools.

Cited by 15 publications

References 37 publications

Caregivers’ and healthcare professionals’ perspective of barriers and facilitators to health service access for asthmatic children: a qualitative study

Caregivers’ and healthcare professionals’ perspective of barriers and facilitators to health service access for asthmatic children: a qualitative study

The experiences, perceptions and challenges of mothers managing asthma in their children: a qualitative study

Parent experiences with a nurse-supervised community health worker asthma home-visiting program

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