Parents' Distress & Demands for Children with Cancer-Related Cognitive Impairment in Western China: A qualitative study 

Abstract

Cancer-related Cognitive impairment is one of the common complications in children with cancer, yet our understanding of their experience with cognitive deficits remains limited.From the perspective of parents, this study aims to understand the distress and demands faced by children with cancer-related cognitive dysfunction, in order to provide references for developing targeted intervention strategies for these children.This study used a purposeful sampling method to conduct semi-structured interviews with the parents of 18 children with cancer-related cognitive impairment. The transcripts were analyzed using Colaizzi's method. Three categories and 11 subcategories were obtained from the data analysis.(a)Parents face multiple distressing symptoms of cognitive in children,including speech communication difficulties, impaired executive function,attention deficit, and intellectual disability.(b)Presistent negative emotions,including anxiety and worry,complaints and resentment,negative avoidance and positive experiences after psychological adjustment.(c)Multiple needs, including the need for disease information, the need for professional management, and an urgent need for more external support.Parents of children with cancer-related cognitive impairments are faced with the burden of multiple symptoms, coupled with significant confusion and demands regarding the symptoms of cognitive dysfunction. It is imperative for medical professionals to strengthen the dissemination of information related to cancer-associated cognitive impairments, while promptly recognizing and intervening in related symptoms. Rational allocation of resources, establishment of targeted support systems, and enhancing social acceptance are strategies that policymakers may consider.These efforts hold immense significance, as they play a pivotal role in elevating the cognitive capabilities and enhancing the overall quality of life for children afflicted with cancer.