Parents' early healthcare transition experiences with preterm and acutely ill infants: a scoping review

Ballantyne, Marilyn; Orava, Taryn; Bernardo, Stephanie; McPherson, Amy C.; Church, Paige

doi:10.1111/cch.12458

Cited by 54 publications

(74 citation statements)

References 35 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…There are, for example, several US studies about neonatal transfer from the 1990s (Kenner et al., ; Kolotylo, Parker, & Chapman, ; Kuhnly & Freston, ; Page & Lunyk‐Child, ; Slattery, Flanagan, Cronenwett, Meade, & Chase, ). During that decade, US and Canadian researchers seemed especially interested in parents’ perceptions of neonatal back‐transfer (Ballantyne et al., ). Kolotylo et al.…”

Section: Discussionmentioning

confidence: 99%

“…Ballantyne et al. (), in a scoping review including the above studies from the 1990s, emphasized parental stress and need of support during transfer. This might surely be the case.…”

Section: Discussionmentioning

confidence: 99%

“…We are aware that investigating theories, methods, and findings from other angles would present other results. There are, for example, several US studies about neonatal Thus, a meta-study that included research from the 1990s might have given more details of theories and methods as they have evolved and stronger evidence of parents' perceptions of neonatal transfer Ballantyne et al (2017),. in a scoping review including the above studies from the 1990s, emphasized parental stress and need of support during transfer.…”

mentioning

confidence: 99%

See 2 more Smart Citations

Parents’ experiences of neonatal transfer. A meta‐study of qualitative research 2000–2017

et al. 2018

View full text Add to dashboard Cite

Transfers of critically ill neonates are frequent phenomena. Even though parents' participation is regarded as crucial in neonatal care, a transfer often means that parents and neonates are separated. A systematic review of the parents' experiences of neonatal transfer is lacking. This paper describes a meta-study addressing qualitative research about parents' experiences of neonatal transfer. Through deconstruction and reflections of theories, methods, and empirical data, the aim was to achieve a deeper understanding of theoretical, empirical, contextual, historical, and methodological issues of qualitative studies concerning parents' experiences of neonatal transfer over the course of this meta-study (2000-2017). Meta-theory and meta-method analyses showed that caring, transition, and family-centered care were main theoretical frames applied and that interviewing with a small number of participants was the preferred data collection method. The meta-data-analysis showed that transfer was a scary, unfamiliar, and threatening experience for the parents; they were losing familiar context, were separated from their neonate, and could feel their parenthood disrupted. We identified 'wavering and wandering' as a metaphoric representation of the parents' experiences. The findings add knowledge about meta-study as an approach for comprehensive qualitative research and point at the value of meta-theory and meta-method analyses.

show abstract

Section: Discussionmentioning

confidence: 99%

“…Ballantyne et al. (), in a scoping review including the above studies from the 1990s, emphasized parental stress and need of support during transfer. This might surely be the case.…”

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

See 1 more Smart Citation

Parents’ experiences of neonatal transfer. A meta‐study of qualitative research 2000–2017

et al. 2018

View full text Add to dashboard Cite

show abstract

“…The parents views on the neonatal environment as having a significant impact on their experience were consistent with various authors (Cleveland, ; Hall & Brinchmann, ; Williams et al, ); certainly, providing an environment that encourages proximity and avoids physical barriers was seen to be a source of comfort, in line with the term “emotional closeness” stated by Flacking, Thomson, and Axelin (). For transitions within neonatal care, parents voiced mixed emotions commonplace through the trajectory of neonatal care (Ballantyne et al, ), and regarding going home, persistent accounts of emotional stress have been reported in relation to both the very premature (Petty, Whiting, Green, & Fowler, ) and the late premature baby (Premji et al, ).…”

Section: Discussionmentioning

confidence: 99%

“…Raising staff awareness of these significant moments in the parent's journey is required so that they can focus on opportunities to improve parents’ early transition experiences. As Ballantyne et al () acknowledge, this includes ensuring staff–parent engagement, communication, information‐sharing and decision‐making is shared between both parties, continuing through the whole “illness‐health trajectory” (p. 783). In addition, these authors highlight the importance of a focus on early transition strategies to nurture parent confidence, competence in the parenting role and ongoing closeness to their babies.…”

Section: Discussionmentioning

confidence: 99%

Understanding parents’ emotional experiences for neonatal education: A narrative, interpretive approach

Petty

Jarvis

2019

Journal of Clinical Nursing

View full text Add to dashboard Cite

Aims and objectives To explore the emotional experiences of parents who have had premature babies to inform and educate neonatal nurses and health professionals in this field. Background Parents find the neonatal unit a daunting and unfamiliar place leading to anxiety, uncertainty and fear about the future of their baby. Parents have significant emotional needs in relation to assisting them to cope with their neonatal experience. In line with a family‐centred approach to neonatal education, it is essential to teach health professionals about the emotional impact of neonatal care based on an appreciation of the parent experience. Design A narrative‐based, interpretive approach was undertaken in line with constructivist learning theory. Methods Twenty narrative interviews took place, with a total of 23 parents of premature babies. Following core story creation to create coherent stories from the raw transcripts, thematic analysis of the narrative constructs using the principles of Braun and Clarke's, International Journal of Qualitative Studies on Health and Well‐Being, 2014, 9, 1, framework was undertaken. The study methods were compliant with the consolidated criteria for reporting qualitative research (COREQ). Findings Thematic analysis revealed key themes relating to the following: parents’ emotions through the whole neonatal experience, feelings towards the baby, the environment, the staff and the transitions through the different phases of neonatal care. Both negative and positive experiences were reported. Conclusion Understanding the emotional experience from the parent's perspective, following birth of their premature baby, informs empathic, family‐centred teaching and learning within the neonatal education arena. Relevance to clinical practice Students and health professionals alike can learn what is important in the delivery of care that addresses the emotional needs of parents and families. Educators can use narratives and key messages from parents, both negative and positive, to teach family‐centred principles to nurses and health professionals as a core component of a narrative curricula and potentially to enhance empathy.

show abstract

Preterm infants with severe brain injury demonstrate unstable physiological responses during maternal singing with music therapy: a randomized controlled study

et al. 2020

View full text Add to dashboard Cite

Parents' early healthcare transition experiences with preterm and acutely ill infants: a scoping review

Cited by 54 publications

References 35 publications

Parents’ experiences of neonatal transfer. A meta‐study of qualitative research 2000–2017

Parents’ experiences of neonatal transfer. A meta‐study of qualitative research 2000–2017

Understanding parents’ emotional experiences for neonatal education: A narrative, interpretive approach

Preterm infants with severe brain injury demonstrate unstable physiological responses during maternal singing with music therapy: a randomized controlled study

Contact Info

Product

Resources

About