Parents’ experience of a follow-up meeting after a child's death in the Paediatric Intensive Care Unit

Brink, Helle L; Thomsen, A.; Lærkner, Eva

doi:10.1016/j.iccn.2016.06.006

Cited by 5 publications

(54 citation statements)

References 23 publications

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“…Consistent with previous studies on parental experiences of child death in PICU (Brink, Thomsen, & Laerkner, 2017; Butler et al, 2015; Macnab et al, 2003; Meert et al, 2009; Meert et al, 2007; Meert et al, 2005; Yorke, 2011), most parents in our study desired extension of the parent–health care provider relationship into the bereavement period. Typically, parents wanted more intensive contact earlier in their bereavement, with support gradually tapered off over a period of approximately 12 months.…”

Section: Discussionsupporting

confidence: 88%

Gradually Disengaging: Parent–Health care Provider Relationships After a Child’s Death in the Pediatric Intensive Care Unit

2018

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When a child dies in the intensive care unit, many bereaved parents want relationships with their child's health care staff to continue in the form of follow-up care. However, the nature of these relationships and how they change across the parents' bereavement journey is currently unknown. This article explores early and ongoing relationships between parents and health care staff when a child dies in intensive care. Constructivist grounded theory methods were used to recruit 26 bereaved parents from four Australian pediatric intensive care units into the study. Data were collected via audio-recorded, semistructured interviews and analyzed using the constant comparative methods and theoretical memoing. Findings show that these relationships focus on Gradually disengaging, commonly moving through three phases after the child dies: Saying goodbye, Going home, and Seeking supports. These findings provide guidance to health care staff on what families need as they leave the intensive care unit and move through bereavement.

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Section: Discussionsupporting

confidence: 88%

Gradually Disengaging: Parent–Health care Provider Relationships After a Child’s Death in the Pediatric Intensive Care Unit

2018

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“…Twelve articles represented empirical data drawn from the interventions of bereavement care programmes. Of these, four represented quantitative studies [40][41][42][43], six represented qualitative studies [44][45][46][47][48][49], and two represented studies which included both quantitative and qualitative outcomes [50,51]. Nine articles were descriptive in nature [52][53][54][55][56][57][58][59][60].…”

Section: Resultsmentioning

confidence: 99%

“…Parents value ongoing contact with the hospital staff, since the hospital staff know the child and many parents developed a bond with them over time [45][46][47]. When parents feel that the HCPs remember their child, this is felt as an acknowledgement of the child's identity, and a validation that their child has made an impact and mattered [45,46]. This acknowledgement results in positive reappraisal processes and adds positive meaning to the past events.…”

Section: Follow-up Contactmentioning

confidence: 99%

“…During follow-up contacts, HCPs can offer parents an explanation of the course of treatment and the rationale for certain decisions that were made. This is important as parents often describe being in a haze during the end-of-life period of their child [44,46]. Furthermore, autopsy results are often shared in order to clarify the physical illness [53,54].…”

Section: Follow-up Contactmentioning

confidence: 99%

“…HCPs also have the opportunity to reassure parents that there is nothing that they could have done differently [58]. This helps parents to make sense of the preceding events and to clarify the memories surrounding the death of their child [46,53]. This clarification, in turn, aids reappraisal of the situation and past events, and provides parents with a form of closure.…”

Section: Follow-up Contactmentioning

confidence: 99%

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When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories

et al. 2020

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Background: The availability of interventions for bereaved parents have increased. However, most are practice based. To enhance the implementation of bereavement care for parents, an overview of interventions which are replicable and evidence-based are needed. The aim of this review is to provide an overview of well-defined bereavement interventions, focused on the parents, and delivered by regular health care professionals. Also, we explore the alignment between the interventions identified and the concepts contained in theories on grief in order to determine their theoretical evidence base. Method: A systematic review was conducted using the methods PALETTE and PRISMA. The search was conducted in MEDLINE, Embase, and CINAHL. We included articles containing well-defined, replicable, paediatric bereavement interventions, focused on the parent, and performed by regular health care professionals. We excluded interventions on pathological grief, or interventions performed by healthcare professionals specialised in bereavement care. Quality appraisal was evaluated using the risk of bias, adapted risk of bias, or COREQ. In order to facilitate the evaluation of any theoretical foundation, a synthesis of ten theories about grief and loss was developed showing five key concepts: anticipatory grief, working models or plans, appraisal processes, coping, and continuing bonds. Results: Twenty-one articles were included, describing fifteen interventions. Five overarching components of intervention were identified covering the content of all interventions. These were: the acknowledgement of parenthood and the child's life; establishing keepsakes; follow-up contact; education and information, and; remembrance activities. The studies reported mainly on how to conduct, and experiences with, the interventions, but not on their effectiveness. Since most interventions lacked empirical evidence, they were evaluated against the key theoretical concepts which showed that all the components of intervention had a theoretical base.

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Parents’ experiences during and after their child’s stay in the paediatric intensive care unit – A qualitative interview study

Jakobsen

Kristensen

Lærkner

2021

Intensive and Critical Care Nursing

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Parents’ experience of a follow-up meeting after a child's death in the Paediatric Intensive Care Unit

Cited by 5 publications

References 23 publications

Gradually Disengaging: Parent–Health care Provider Relationships After a Child’s Death in the Pediatric Intensive Care Unit

Gradually Disengaging: Parent–Health care Provider Relationships After a Child’s Death in the Pediatric Intensive Care Unit

When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories

Parents’ experiences during and after their child’s stay in the paediatric intensive care unit – A qualitative interview study

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