Parents’ Experience When Present During a Child’s Resuscitation: An Integrative Review

Stewart, Stephanie A.

doi:10.1177/0193945918822479

Cited by 12 publications

(9 citation statements)

References 38 publications

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“…Similarly, there is scarce evidence regarding communication with families during resuscitations. Although parental presence remains controversial, [18][19][20][21][22][23][24] the mother is inevitably physically present at birth (although sometimes under general anesthesia) and the father is often there. The communication scores during the resuscitation were the lowest.…”

Section: Discussionmentioning

confidence: 99%

Techniques to Communicate Better With Parents During End-of-Life Scenarios in Neonatology

et al. 2020

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BACKGROUND AND OBJECTIVES: Clinicians are urged to optimize communication with families, generally without empirical practical recommendations. The objective of this study was to identify core behaviors associated with good communication during and after an unsuccessful resuscitation, including parental perspectives. METHODS: Clinicians from different backgrounds participated in a standardized, videotaped, simulated neonatal resuscitation in the presence of parent actors. The infant remained pulseless; participants communicated with the parent actors before, during, and after discontinuing resuscitation. Twenty-one evaluators with varying expertise (including 6 bereaved parents) viewed the videos. They were asked to score clinician-parent communication and identify the top communicators. In open-ended questions, they were asked to describe 3 aspects that were well done and 3 that were not. Answers to open-ended questions were coded for easily reproducible behaviors. All the videos were then independently reviewed to evaluate whether these behaviors were present. RESULTS: Thirty-one participants' videos were examined by 21 evaluators (651 evaluations). Parents and actors agreed with clinicians 81% of the time about what constituted optimal communication. Good communicators were more likely to introduce themselves, use the infant's name, acknowledge parental presence, prepare the parents (for the resuscitation, then death), stop resuscitation without asking parents, clearly mention death, provide or enable proximity (clinician-parent, infant-parent, clinician-infant, mother-father), sit down, decrease guilt, permit silence, and have knowledge about procedures after death. Consistently, clinicians who displayed such behaviors had evaluations .9 out of 10 and were all ranked top 10 communicators. CONCLUSIONS: During a neonatal end-of-life scenario, many simple behaviors, identified by parents and providers, can optimize clinician-parent communication. * P , .05 ** P , .01. Dr Zao contributed to the acquisition of data, interpretation of data (behavior coding), and critically revised the article for important intellectual content; Dr Lachance contributed to the acquisition of data, interpretation of data (quantitative portion), and critically revised the article for important intellectual content; and all authors contributed to the conception and design of the study, ensure that questions relating to accuracy or integrity of any part of the work are appropriately investigated and resolved, agree to be accountable for all aspects of the work, and approved the final version of the article as submitted.

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Section: Discussionmentioning

confidence: 99%

Techniques to Communicate Better With Parents During End-of-Life Scenarios in Neonatology

et al. 2020

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“…25 26 A major concern of parental presence during the resuscitation of their child is the lack of communication to parents. 3 Providing parents with information during an emergency procedure can be complex, time-consuming and challenging, and even when medical information is provided, highly distressed parents may not be receptive to provided information. 24 In our study, parents reported that due to the timing of the review, they could be more receptive to the provided information and that they highly valued the communication during the review.…”

Section: Original Researchmentioning

confidence: 99%

“…Various studies showed that parental presence during neonatal resuscitation can be beneficial. [3][4][5][6][7][8][9][10][11][12] International guidelines on neonatal resuscitation recommend parental presence during neonatal resuscitation where possible. 13 14 At our NICU, we encourage partners to be present during neonatal resuscitation, but mothers often cannot be present as resuscitation normally is not performed in the delivery room.…”

Section: Introductionmentioning

confidence: 99%

Reviewing recordings of neonatal resuscitation with parents

Boer

Houtlosser

Witlox

et al. 2021

Arch Dis Child Fetal Neonatal Ed

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BackgroundRecording of neonatal resuscitation, including video and respiratory parameters, was implemented for research and quality purposes at the neonatal intensive care unit (NICU) of the Leiden University Medical Center, and parents were offered to review the recording of their infant together with a neonatal care provider. We aimed to provide insight in parental experiences with reviewing the recording of the neonatal resuscitation of their premature infant.MethodsThis study combined participant observations during parental review of recordings with retrospective qualitative interviews with parents.ResultsParental review of recordings of neonatal resuscitation was observed on 20 occasions, reviewing recordings of 31 children (12 singletons, 8 twins and 1 triplet), of whom 4 died during admission. Median (range) gestational age at birth was 27+5 (24+5–30+3) weeks. Subsequently, 25 parents (13 mothers and 12 fathers) were interviewed.Parents reported many positive experiences, with special emphasis on the value for getting hold of the start of their infant’s life and coping with the trauma of neonatal resuscitation. Reviewing recordings of neonatal resuscitation frequently resulted in appreciation for the child, the father and the medical team. Timing and set-up of the review contributed to positive experiences. Parents considered screenshots/copies of the recording of the resuscitation of their infant as valuable keepsakes of their NICU story and reported that having the screenshots/video comforted them, especially when their child died during admission.ConclusionParents consider reviewing recordings of neonatal resuscitation as valuable. These positive parental experiences could allay concerns about sharing recordings of neonatal resuscitation with parents.

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“…Parents and carers will undoubtedly be in shock, it is important to ensure that appropriate and timely information is shared. They will understand the urgency, and can often help if included and receive simple instructions (Stewart, 2019).…”

Section: Points For Good Practicementioning

confidence: 99%

Basic life support for the child and infant

Rosengarten

Ban

2019

Br J Nurs

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The majority of cardiorespiratory arrests in children and infants are caused by respiratory insufficiency rather than cardiac problems; therefore, the order of delivering resuscitation is different to the delivery of basic life support to adults. The Nursing and Midwifery Council has stated that all nurses must be able to provide basic life support. This article will explain the process for recognising the need for, and delivering, basic life support to infants and children.

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Parents’ Experience When Present During a Child’s Resuscitation: An Integrative Review

Cited by 12 publications

References 38 publications

Techniques to Communicate Better With Parents During End-of-Life Scenarios in Neonatology

Techniques to Communicate Better With Parents During End-of-Life Scenarios in Neonatology

Reviewing recordings of neonatal resuscitation with parents

Basic life support for the child and infant

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