2023
DOI: 10.1136/archdischild-2022-324548
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Parents’ Experiences of Communication in Neonatal Care (PEC): a neonatal survey refined for real-time parent feedback

Abstract: ObjectiveAssessing parent experiences of neonatal services can help improve quality of care; however, there is no formally evaluated UK instrument available to assess this prospectively. Our objective was to refine an existing retrospective survey for ‘real-time’ feedback.MethodsCo-led by a parent representative, we recruited a convenience sample of parents of infants in a London tertiary neonatal unit. Our steering group selected questions from the existing retrospective 61-question Picker survey (2014), adde… Show more

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Cited by 2 publications
(1 citation statement)
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“…A validated parental communication survey [82] was used as an outcome measure to assess the impact of the intervention, containing questions on (i) the sharing of information, (ii) relationships with doctors and allied health professionals, (iii) making decisions, (iv) dealing with uncertainty, (iv) taking care of your child, (v) attention to your emotions, (vi) providing validation, and (vii) supporting hope.…”
Section: Outcome Measuresmentioning
confidence: 99%
“…A validated parental communication survey [82] was used as an outcome measure to assess the impact of the intervention, containing questions on (i) the sharing of information, (ii) relationships with doctors and allied health professionals, (iii) making decisions, (iv) dealing with uncertainty, (iv) taking care of your child, (v) attention to your emotions, (vi) providing validation, and (vii) supporting hope.…”
Section: Outcome Measuresmentioning
confidence: 99%