Parents of adult children with long-term mental disorder: Their experiences of the mental health professionals' approach and feelings of alienation – A cross sectional study

A survey study of family members' encounters with healthcare services within the care of older people, psychiatric care, palliative care and diabetes care

“…Despite these results being confirmed in a study over two decades ago [19], this still seems to be an area of development in both research and in the clinical setting. Recent studies in the context of psychiatric care [20,21], palliative care [22,23], care of older people [24,25] and diabetes care [26] have also focused on the need for more attention to be given to the relationship between nurses and family members. Furthermore, a previous study in the context of psychiatric care found an association between how the family members experience the approach of the healthcare professionals and their feeling of being alienated from the care provided [20].…”

“…Recent studies in the context of psychiatric care [20,21], palliative care [22,23], care of older people [24,25] and diabetes care [26] have also focused on the need for more attention to be given to the relationship between nurses and family members. Furthermore, a previous study in the context of psychiatric care found an association between how the family members experience the approach of the healthcare professionals and their feeling of being alienated from the care provided [20]. In that study, the concept alienation refers to feelings of being socially isolated or rejected from the care being provided.…”

Family Members’ Experiences with the Healthcare Professionals in Nursing Homes – A Survey Study

“…The assessments in the FIAQ-R are subjective and the data consists of ordered categories. As in previous studies using the FIAQ or the FIAQ-R [10][11][12][17][18][19] data were analyzed using rank-based, non-parametric statistical methods. 20 The median level (Md) and quartiles (Q 1 ;Q 3 ) were used to describe the response profiles.…”

“…This concept has been studied among family members in the context of psychiatric care. [10][11][12] These studies showed that being approached positively by the health care professionals was associated with a lower level of feeling of alienation. To our knowledge, there has been no research concerning alienation among family members in the context of the care of older people.…”

“…This is contrary to studies performed in the context of psychiatric care, which show higher levels of alienation. [10][11][12] This could be due to the compulsory nature of the care, 10 and also the patient not always wanting the family to be involved. 25 Such a situation can lead to dilemmas in the healthcare professionals' meetings with the family members.…”