Parents of children with physical disabilities perceive that characteristics of home exercise programs and physiotherapists’ teaching styles influence adherence: a qualitative study

Abstract

Parents perceive that their children's adherence to home-based exercises, which are supervised by the parents, is more successful when the physiotherapist's style and the content of the exercise program are positively experienced. These findings reveal which issues should be considered when prescribing home exercise programs to children with physical disabilities. [Lillo-Navarro C, Medina-Mirapeix F, Escolar-Reina P, Montilla-Herrador J, Gomez-Arnaldos F, Oliveira-Sousa SL (2015) Parents of children with physical disabilities perceive that characteristics of home exercise programs and physiotherapists' teaching styles influence adherence: a qualitative study.Journal of Physiotherapy61: 81-86].

Experiences of children and parents in MiYoga, an embodied mindfulness yoga program for cerebral palsy: A mixed method study

“…Parents reported, however, that mindfulness practice (separate from physical yoga postures) and integrating mindfulness strategies into everyday life was less challenging and more manageable. The self-reported low adherence to home yoga practice is similar to the low adherence reported within rehabilitative programs for children with disabilities [28,29].…”

“…Adherence can be influenced by the style of home practice and the therapists teaching style [29], parental stress levels [30] or their emotional state [31], family problems [30], and a child's GMFCS level [31].…”

Toward Evaluation of The Subjective Experience of A General Class of User-Controlled, Robot-Mediated Rehabilitation Technologies for Children with Neuromotor Disability

“…[5,11,12] Compliance is difficult to maintain and children often do not receive the level of care needed. [13,14] The challenge optimal intervention presents, both in terms of clinic scheduling and travel time on the part of the child and family/caregiver, could be lessened through leverage of a home-based robotic platform that delivers stretching and strengthening exercises in proper form, at frequency and intensity most appropriate to the child with CP. The positive effect [15,16] of robot-mediated ankle maneuvers on gait therapeutic targets has been demonstrated, as has the feasibility of the transfer of the technology from lab to clinic [17] and home.…”

Evaluating the effectiveness of home exercise programmes using an online exercise prescription tool in children with cerebral palsy: protocol for a randomised controlled trial

“…Several challenges in the effective use of home exercise programmes among children with CP have been identified in the literature, in particular adherence to exercise programmes, with researchers investigating parental experience and recommending strategies to address adherence issues. 8–11 Some of the recommended strategies include but are not limited to: developing individualised programmes, respecting family preferences and routines, providing feedback to build confidence, using a collaborative decision-making process, prescribing a small number of exercises, provision of required equipment and educating parents in providing emotional and physical support. 8–11 However, there is a paucity of research on the effectiveness of these recommendations.…”

“… 8–11 Some of the recommended strategies include but are not limited to: developing individualised programmes, respecting family preferences and routines, providing feedback to build confidence, using a collaborative decision-making process, prescribing a small number of exercises, provision of required equipment and educating parents in providing emotional and physical support. 8–11 However, there is a paucity of research on the effectiveness of these recommendations.…”