Parents or Caregiver's Perception on Menstrual Care in Individuals with Down Syndrome

Yaacob, Norjaudah; Nasir, Nafiza Mat; Jalil, Siti Nadiah; Ahmad, Rizal; Rahim, Nur Azirah Raidah Abd.; Yusof, Aimi Nadia Mohd; Ghani, Nur Azurah Abdul

doi:10.1016/j.sbspro.2012.03.015

Cited by 6 publications

(7 citation statements)

References 7 publications

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“…Interestingly, we found that parents/guardians with lower family income were significantly more aware of getting help regarding menstrual suppression compared to the higher family income group. This was a totally opposite result compared to a previous study [ 5 ]. This may be related to the availability of information on menstrual care in the Internet that the parents/guardians with higher income did not seek help.…”

Section: Discussioncontrasting

confidence: 99%

“…Degree of functional status such as physical incapability which requires assistance in activities of daily living such as feeding, dressing, toileting, and menstrual care has been proven to be strongly correlated with parents/guardians wiliness to seek advice regarding menstrual management [ 4 , 5 ]. We found that the impact of menstruation on parents/guardians and on the girls themselves was not that alarming among the respondents.…”

Section: Discussionmentioning

confidence: 99%

“…Although the impact of menstruation on the girls and their caretakers is significant, not many of them come forward to seek medical help regarding menstrual management. Most of them perceived that their daughter's menses problem does not affect their daily activities [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

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Management of Menstrual Disorder in Adolescent Girls with Intellectual Disabilities: A Blessing or a Curse?

Nurkhairulnisa

Chew

Zainudin

et al. 2018

Obstetrics and Gynecology International

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Objective This study aims to describe the menstrual pattern and menstrual care of girls with intellectual disabilities and to evaluate the impact of menstruation and awareness of parents/guardians on girls with intellectual disabilities. Methodology Parents/guardians of girls aged 9–17 years with known intellectual disabilities who attended a scheduled public forum and Paediatrics and Adolescent Gynaecology Clinic (PAC) were recruited in a questionnaire-based study. Results A total of 123 parents/guardians with a mean age of 41.83 ± 5.45 years completed the questionnaire. The mean age of girls with intellectual disabilities was 12.28 ± 2.78 years, and the mean menarcheal age was 11.12 ± 1.76 years. Only 53 (43.1%) parents/guardians were aware of availability of menstrual suppression. Parents/guardians with lower family income (OR = 0.00; 95% CI = 0.00–0.20), unable to manage menses (OR = 0.03; 95% CI = 0.00–0.61), and moderate severity of menses (OR = 0.01; 95% CI = 0.00–1.21), were associated with seeking medical help on menstrual suppression. The factors associated with parents/guardians requesting for sterilization were lower family income (OR = 0.02; 95% CI = 0.00–0.36) and concern about sexual abuse (OR = 0.25; 95% CI = 0.06–0.39). Conclusion Menstrual pattern in girls with intellectual disabilities is similar to those without disabilities. Parents/guardians' knowledge and awareness on menstrual suppression were still lacking.

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Section: Discussioncontrasting

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Management of Menstrual Disorder in Adolescent Girls with Intellectual Disabilities: A Blessing or a Curse?

Nurkhairulnisa

Chew

Zainudin

et al. 2018

Obstetrics and Gynecology International

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“…Screening varied from 7 to 103 symptoms taken from the DSM-IV, American College of Obstetricians and Gynecologists, personal experience and existing diagnostic questionnaires (Quint et al, 1999;Kyrkou, 2005;Obaydi and Puri, 2008;Hamilton et al, 2012;Yaacob et al, 2012;Dempster-Rivett and Smalldridge, 2016;Kaskowitz et al, 2016).…”

Section: Diagnosis Of Pmsmentioning

confidence: 99%

“…Questionnaires were adopted by 40 per cent (n ¼ 4) of studies (Kyrkou, 2005;Hamilton et al, 2012;Yaacob et al, 2012;Kaskowitz et al, 2016) however these varied in content and were not standard across all studies. Quint et al (1999) implemented a three-month subjective symptom calendar filled in by carers, with behaviour mapped alongside menses, whilst Obaydi and Puri ( 2008) used a standardised rating scale adapted for diagnosis of PMS in patients with specific communication needs.…”

Section: Diagnosis Of Pmsmentioning

confidence: 99%

Current evidence for the identification and management of premenstrual syndrome in women with intellectual disabilities: a systematic review

Cooper

Nair²,

Egan

et al. 2019

AMHID

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Purpose Intellectual disability (ID) is prevalent in 1 per cent of the population. Premenstrual syndrome (PMS) affects up to 5 per cent of the general population of adult women. Identification of PMS is challenging in women with ID due to differences in communication. Management of PMS in the ID population requires careful consideration of baseline function, co-existing mental and physical health problems, drug interactions as well as complex ethical considerations. The paper aims to discuss this issue. Design/methodology/approach Prospero-registered systematic review (CRD42019119398) of papers exploring the diagnosis and management of patients with PMS and ID (n=414). In total, 35 relevant titles were identified and 27 full text papers were assessed for eligibility, resulting in 10 studies for final qualitative analysis. Findings Ten original research papers were included. There are no standardised symptom criteria for diagnosis of PMS in women with ID. Studies relied on observer-reported data. All papers demonstrated higher rates of PMS in women with ID compared with the general adult population. Management was not standardised and varied between centres. Mainstays of treatment included non-steroidal anti-inflammatories, combined oral contraceptive pills and intramuscular progesterone. Newer evidence suggests levonorgestrel intrauterine systems may be appropriate. There was no quantitative method of establishing success of management. Practical implications A modified symptom diary should be used for diagnosis in this population. Differentiation between cyclical behavioural change due to pain vs mood disturbance remains challenging. Conservative, psychological and medical management should be the mainstay of treatment, with surgery considered in exceptional cases. Originality/value This paper demonstrates the current limited evidence for the management of PMS in women with a diagnosis of ID and offers an overview of the current options for managing these patients’ symptoms.

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Personal Hygiene

Mattson¹,

Roth²,

Sevlever³

2016

Evidence-Based Practices in Behavioral Health

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Parents or Caregiver's Perception on Menstrual Care in Individuals with Down Syndrome

Cited by 6 publications

References 7 publications

Management of Menstrual Disorder in Adolescent Girls with Intellectual Disabilities: A Blessing or a Curse?

Management of Menstrual Disorder in Adolescent Girls with Intellectual Disabilities: A Blessing or a Curse?

Current evidence for the identification and management of premenstrual syndrome in women with intellectual disabilities: a systematic review

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