Parents’ Perceptions About Their Child’s Illness in Pediatric Cancer: Links with Caregiving Burden and Quality of Life

Salvador, Ágata; Crespo, Carla; Martins, Ana Rita; Santos, Susana; Canavarro, Maria Cristina

doi:10.1007/s10826-014-9921-8

Cited by 59 publications

(37 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Taking care of the sick child during this stage, is associated with lots of complications. Learning about medicine and their side effects, knowing about treatment conditions and stages, attempting to avoid the child being infected, managing the child's exhaustion, pain and nutrition, facing unpredictable incidents during treatment and hospitalization may cause many challenges for children's parents, among which is care burden (Santo et al, 2011;Dambi et al, 2015;Salvador et al, 2015). Family empowerment can decrease the burden level through improving physical and mental function, and increase the self-ability (Karian et al, 1998;Saeui et al, 2009).…”

Section: Introductionmentioning

confidence: 99%

The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer

Shoghi

Shahbazi

Seyedfatemi

2019

Asian Pac J Cancer Prev

View full text Add to dashboard Cite

Parents not only constantly reconstruct their roles, functions, interactive and communicative patterns, inside and outside the family, but are also in charge of many caring responsibilities as a result of being the member of the treatment team (Crespo et al., 2016). Clearly, parents not only should tolerate emotional and mental pressure, but also accomplish their medical tasks, parental supervision and all their roles and responsibilities (McGrath, 2002; Grinyer, 2006; Da Silva et al., 2010). Parents of children with cancer usually report more physical and psychological problems, and visit physicians more frequently than others

show abstract

Section: Introductionmentioning

confidence: 99%

The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer

Shoghi

Shahbazi

Seyedfatemi

2019

Asian Pac J Cancer Prev

View full text Add to dashboard Cite

show abstract

“…Caregivers of children with cancer also face significant challenges to their psychological well-being with research, indicating that caregivers of children with cancer are at far greater risk of psychological distress than caregivers of healthy children or caregivers of children with other forms of illness (Salvador et al, 2015). For example, Boman et al (2004) found that parents of children with cancer experienced greater uncertainty along with a greater and constant fear of losing their child as compared to parents of children with pediatric diabetes.…”

Section: Introductionmentioning

confidence: 99%

Factors associated with caregiver burden for mothers of children undergoing Acute Lymphocytic Leukemia (ALL) treatment

et al. 2019

View full text Add to dashboard Cite

Objective The present study examined the extent to which social support (SS) availability and satisfaction could predict the extent of caregiver burden (CB) among mothers of children with Acute Lymphocytic Leukemia (ALL). Method The study was a cross-sectional, descriptive-correlative study. It was conducted on a sample of 117 mothers whose children were undergoing treatment in a public hospital in Bam, Iran. The Norbeck Social Support Scale and the Caregiver Burden Scale were used to measuring study variables. The data were analyzed using Pearson's correlations, t-tests, ANOVAs, and linear regressions. Results Significant correlations were observed between CB and SS availability (r = −0.499, p < 0.001), SS satisfaction (r = −0.543, p < 0.001), the age of the child with cancer (r = −0.22, p = 0.01), and duration of treatment (r = 0.336, p < 0.001). Married mothers experienced less CB than those that were widowed or divorced. Within the regression equation, SS satisfaction, SS availability, marital status, and duration of treatment were the predictors of CB. Significance of results Based on the results of the current study, mothers who have less SS, especially those who are single mothers, with younger children, and who have taken care of their child for an extended duration should be given special attention. Furthermore, it appears that there are distinct cultural variations amongst Iranian mothers which suggest that culture may impact upon SS availability. Results also suggest a need for interventions that enhance nurses' ability to provide support to caregivers and the broader family unit as a whole. Nurses in cancer care need to have psychological competencies to help family members of cancer patients especially mothers and more so those that are single mothers. As integral members of the patient care experience, nurses may be uniquely positioned to provide this needed psychosocial support.

show abstract

“…[4,5,6,7] Therefore, the diagnosis of cancer in children negatively affects both the children and their parents emotionally, socially, mentally, and spiritually, apart from the physical effects of cancer. [3,8] Although the causes of childhood cancer are not known with certainty, some structural and environmental risk factors that play a role in the development of cancer have been identified. These include congenital or genetic anomalies, immunodeficiency syndromes, virus infections, exposure to radiation or some chemicals [such as benzene or pesticides], and some medicines used during pregnancy.…”

Section: Methodsmentioning

confidence: 99%

“…[14,18] Positive compliance of parents with the treatment contributes to the children's adherence to the disease and treatment process along with their development. [8,13,14,19] Determining the parents' causal attributions for their children's cancer could be guide pediatric nurses to plan family-oriented interventions and ensure the compliance of children and their parents with treatment. This study aims to determine parents' causal attributions for their children's illness and differences according to sociodemographic factors.…”

Section: Introductionmentioning

confidence: 99%

Causal Perceptions in Turkish Parents of Children with Cancer

Esenay¹

2018

TJ Oncol

View full text Add to dashboard Cite

To more fully explore how the parents of childhood cancer patients perceive the causes of their disease. METHODS This cross-sectional study included 229 parents of children with cancer who were admitted at one of the largest children's hematology and oncology clinics in Ankara, Turkey. The parents completed the causal representations subscale of the Illness Perception Questionnaire. Analyses of variance and other descriptive tests were performed. RESULTS The most common causal attributions were a function of the Risk Factors Subscale (M=2.94) pertaining to diet and eating disorders. The answers to the open-ended questions indicated that the most significant issue in their children's disease was faith-based, the will of God, and the "evil eye" (43.9%). The mean scores on the subscale did not vary by parental, marital, educational status, region of residence, or time of diagnosis; there was only a significant difference based on income level and age. CONCLUSION Parents responding in a self-report on the causal representations subscale suggested that most risk factors involved more fatalistic views, which were due to societal differences. This is important for clinicians, who plan and implement education and treatment, to better understand parents' perceptions regarding cancer. Our findings highlight the need for more attention to these cultural matters in cancer care.

show abstract

Parents’ Perceptions About Their Child’s Illness in Pediatric Cancer: Links with Caregiving Burden and Quality of Life

Cited by 59 publications

References 38 publications

The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer

The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer

Factors associated with caregiver burden for mothers of children undergoing Acute Lymphocytic Leukemia (ALL) treatment

Causal Perceptions in Turkish Parents of Children with Cancer

Contact Info

Product

Resources

About