Abstract:Aim
Bronchiolitis is the leading cause of hospitalisation in infants, but parental experiences have not been well described. This study explored parents’ experiences and asked them how they wanted to receive information.
Methods
A qualitative study was conducted in a tertiary paediatric hospital in Québec, Canada. It consisted of semi‐structured interviews with 15 parents of 13 children with bronchiolitis. The interview guide was constructed by a multidisciplinary team that included a parent. The interviews, w… Show more
“…Prior to the implementation of the project, knowledge about bronchiolitis was limited across all stakeholder groups (apart from the Core Team) and many stakeholders had either not heard of bronchiolitis or information was not contemporary. As seen in other studies, parents wanted information about bronchiolitis, including knowledge of what to look for and how to interpret the severity of symptoms [ 15 , 17 ] and knowing what actions to take when they became aware of symptoms and signs of bronchiolitis. Lack of knowledge about bronchiolitis has been shown to contribute to parental anxiety when their child has bronchiolitis [ 17 ].…”
Section: Discussionmentioning
confidence: 99%
“…As seen in other studies, parents wanted information about bronchiolitis, including knowledge of what to look for and how to interpret the severity of symptoms [ 15 , 17 ] and knowing what actions to take when they became aware of symptoms and signs of bronchiolitis. Lack of knowledge about bronchiolitis has been shown to contribute to parental anxiety when their child has bronchiolitis [ 17 ]. A systematic review reported that most information is oriented to parents whose child has been hospitalised with limited information focused on parents caring for their child at home [ 16 ]; this is clearly a gap that the PCC project was trying to address.…”
Section: Discussionmentioning
confidence: 99%
“…Better education of health care professionals and public health measures such as reducing second-hand smoke exposure [ 14 ] and health promotion advice (e.g., hand washing, social distancing) that have been effective in inhibiting the spread of infectious disease during the COVID-19 pandemic [ 5 , 6 ] could contribute to reducing the spread and impact of bronchiolitis. There is limited evidence for the benefits of empowering parents through information to address knowledge deficits [ 15 ] prior to their child contracting bronchiolitis [ 16 ], during any subsequent hospitalisation [ 17 ] and as well as follow-up post hospitalisation [ 18 ]. However, there are recommendations that key safety information should be given to parents looking after their baby with bronchiolitis at home [ 19 ].…”
Background: Bronchiolitis is a seasonal, global acute lower respiratory tract infection caused by respiratory syncytial virus (RSV) and is a leading cause of hospital admission in young children. A peer-led (parents to parents) intervention was implemented to empower parents of children at risk of bronchiolitis and reduce hospital admissions. This paper reported the evaluation that aimed to gain the perspectives and experiences of five key stakeholder groups. Methods: A qualitative remote interview-based design, informed by Appreciative Inquiry was used. Thematic analysis was used. Results: Sixty-five stakeholders participated: parents (n = 43; mothers, n = 42), Parent Champions (n = 9), Children’s Centre Managers (n = 8), Children’s Centre Group Leaders (n = 11), and Core Team (n = 4). An overarching theme ‘Parents reaching out to parents’ was supported by five sub-themes (Raising awareness and sharing knowledge; Creating connection, trust, and confidence; Flourishing in their role as a Parent Champion; Rising to the challenges; and Knowledge is power, prevention is key: the government needs to know this.) Conclusions: Parent-to-parent peer support via the Parent Champions was perceived positively by parents who wanted to learn and improve the lives and health of their children. Parent Champions were successful in delivering information. Considering the socioeconomic burden of bronchiolitis to services and families, the potential for an upstream, relatively low cost, high-reach innovative intervention, as evidenced in this project, seems a valuable opportunity for improving children’s respiratory health.
“…Prior to the implementation of the project, knowledge about bronchiolitis was limited across all stakeholder groups (apart from the Core Team) and many stakeholders had either not heard of bronchiolitis or information was not contemporary. As seen in other studies, parents wanted information about bronchiolitis, including knowledge of what to look for and how to interpret the severity of symptoms [ 15 , 17 ] and knowing what actions to take when they became aware of symptoms and signs of bronchiolitis. Lack of knowledge about bronchiolitis has been shown to contribute to parental anxiety when their child has bronchiolitis [ 17 ].…”
Section: Discussionmentioning
confidence: 99%
“…As seen in other studies, parents wanted information about bronchiolitis, including knowledge of what to look for and how to interpret the severity of symptoms [ 15 , 17 ] and knowing what actions to take when they became aware of symptoms and signs of bronchiolitis. Lack of knowledge about bronchiolitis has been shown to contribute to parental anxiety when their child has bronchiolitis [ 17 ]. A systematic review reported that most information is oriented to parents whose child has been hospitalised with limited information focused on parents caring for their child at home [ 16 ]; this is clearly a gap that the PCC project was trying to address.…”
Section: Discussionmentioning
confidence: 99%
“…Better education of health care professionals and public health measures such as reducing second-hand smoke exposure [ 14 ] and health promotion advice (e.g., hand washing, social distancing) that have been effective in inhibiting the spread of infectious disease during the COVID-19 pandemic [ 5 , 6 ] could contribute to reducing the spread and impact of bronchiolitis. There is limited evidence for the benefits of empowering parents through information to address knowledge deficits [ 15 ] prior to their child contracting bronchiolitis [ 16 ], during any subsequent hospitalisation [ 17 ] and as well as follow-up post hospitalisation [ 18 ]. However, there are recommendations that key safety information should be given to parents looking after their baby with bronchiolitis at home [ 19 ].…”
Background: Bronchiolitis is a seasonal, global acute lower respiratory tract infection caused by respiratory syncytial virus (RSV) and is a leading cause of hospital admission in young children. A peer-led (parents to parents) intervention was implemented to empower parents of children at risk of bronchiolitis and reduce hospital admissions. This paper reported the evaluation that aimed to gain the perspectives and experiences of five key stakeholder groups. Methods: A qualitative remote interview-based design, informed by Appreciative Inquiry was used. Thematic analysis was used. Results: Sixty-five stakeholders participated: parents (n = 43; mothers, n = 42), Parent Champions (n = 9), Children’s Centre Managers (n = 8), Children’s Centre Group Leaders (n = 11), and Core Team (n = 4). An overarching theme ‘Parents reaching out to parents’ was supported by five sub-themes (Raising awareness and sharing knowledge; Creating connection, trust, and confidence; Flourishing in their role as a Parent Champion; Rising to the challenges; and Knowledge is power, prevention is key: the government needs to know this.) Conclusions: Parent-to-parent peer support via the Parent Champions was perceived positively by parents who wanted to learn and improve the lives and health of their children. Parent Champions were successful in delivering information. Considering the socioeconomic burden of bronchiolitis to services and families, the potential for an upstream, relatively low cost, high-reach innovative intervention, as evidenced in this project, seems a valuable opportunity for improving children’s respiratory health.
“…They report that four of the five models showed superior performance to logistic regression. Piché‐Renaud et al 9 studied the experiences of parents of children with bronchiolitis in a hospital in Quebec and concluded that parental knowledge was low and that standardised educational tools were useful, but insufficient. Meanwhile, Korppi et al 10 report that Interleukin‐1 receptor‐associated kinase‐4 gene variations may increase post‐bronchiolitis asthma risks.…”
Section: Exploring Hospital Stays For Acute Bronchiolitis Parental Knowledge and Genetic Variationsmentioning
“…spectives, information needs and healthcare preferences when consulting for their children with bronchiolitis: A qualitative study'. 2 We want to express our thanks to Perry and Singh for their interest in our article.…”
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
