Parkinson’s from inside out: emerging and unexpected benefits of a long-term partnership

Sullivan, Matthew; Poliakoff, Ellen

doi:10.14324/rfa.07.1.01

Cited by 2 publications

(1 citation statement)

References 19 publications

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“…A strength of this study was the involvement of an individual with a CP in the research development who provided feedback that enhanced the presentation of the experiment and improved the overall experience of the participants during the experimental session. Public involvement became a more common practice in recent research studies in the cognitive neuroscience field (Sullivan and Poliakoff 2023 ). Additionally, participants from both groups evaluated the words used in the experiment revealing that they found the words to be highly appropriate.…”

Section: Discussionmentioning

confidence: 99%

Investigating attention toward pain-related cues in an Arabic-speaking population with and without chronic pain

Abudoush,

Poliakoff,

Panagioti

et al. 2024

Exp Brain Res

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There is some evidence for attentional biases in individuals with chronic pain (CP). Cultural and linguistic differences might affect the manifestation of these processes across populations. However, such attentional biases have not been explored in the Arabic-speaking population. The current study investigated these attentional biases and possible associations with resilience. Two matched groups of Arabic-speaking participants with (58) and without (58) CP were recruited from Jordan and the United Kingdom. They completed emotionally modified versions of the Posner cueing and Stroop tasks, alongside questionnaires. Significant group differences were found for the Posner task, with the CP group exhibiting disengagement revealed by the inhibition of return (IOR) effect for sensory pain-related cues compared to delayed disengagement for the other cue types. The control group showed IOR across cue types. No group differences were found on the Stroop task. The CP group had lower resilience scores than healthy controls, and resilience moderated performance on the Posner task. The study provides preliminary evidence about the attentional processes in the Arabic population; the speed of disengagement is affected in the CP group with early disengagement for sensory pain-related information compared to affect pain and neutral stimuli. Furthermore, resilience levels in the CP and control group moderated the performance on the Posner task, suggesting that it influences attentional allocation. This study can help in understanding how the phenomenon of attention bias intertwines with the cultural and linguistic factors. Future research should further explore attentional dynamics across different time points in this population and the modulatory effect of resilience.

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Section: Discussionmentioning

confidence: 99%

Investigating attention toward pain-related cues in an Arabic-speaking population with and without chronic pain

Abudoush,

Poliakoff,

Panagioti

et al. 2024

Exp Brain Res

Self Cite

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Better conversations with Parkinson’s: co-production of a novel speech and language therapy intervention with people living with Parkinson’s

Clay,

Walton,

Malin

et al. 2024

Research for All

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Effective engagement with stakeholders is key in health-care research and intervention development. There is currently a lack of evidence relating to the involvement of co-producers with Parkinson’s-related communication difficulties. This article provides a critical reflection on co-producing a novel speech and language therapy intervention (Better Conversations with Parkinson’s) with people living with Parkinson’s who have an interest in, or lived experience of, communication difficulties. Evaluation is based on qualitative comments and survey responses from patient and public involvement group members, documentation and outputs from the patient and public involvement group, and reflection using the Public Involvement Impact Assessment Framework. The co-production group, research team and organisation highly valued the expertise and collaboration as equal partners gained through co-production. Key enablers included skilled facilitation and adequate time and funding. Consideration should be given to the format of participation (online or face-to-face), recruitment strategies and the role of patient and public involvement, in order to improve access to underserved groups and strengthen the voice of public and patient involvement members. Co-production with people living with Parkinson’s and communication difficulties allowed the creation of a more credible, relevant intervention which responds to the needs of key stakeholders, and it was a positive experience with personal benefits for those involved. We propose offering a flexible choice of co-production methods to accommodate the differing experiences of patient and public involvement members with Parkinson’s and communication difficulties.

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Parkinson’s from inside out: emerging and unexpected benefits of a long-term partnership

Cited by 2 publications

References 19 publications

Investigating attention toward pain-related cues in an Arabic-speaking population with and without chronic pain

Investigating attention toward pain-related cues in an Arabic-speaking population with and without chronic pain

Better conversations with Parkinson’s: co-production of a novel speech and language therapy intervention with people living with Parkinson’s

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