Parkinson’s Nurses Are Crucial for the Management of Parkinson’s Disease: 2007–2024

Abstract

Background: The role of the Parkinson's nurse specialist (PNS) has grown significantly over the last three decades and in the UK now recognized as pivotal in the delivery of services to people with Parkinson's (PwP). Objective/Methods: The goal of this study was to evaluate the PNS role and the evidence base for its value in managing Parkinson's through a review of the available literature. Results: PNS are valued by patients, families, and other professionals, and while westernized countries have embraced these nurses as an essential part of Parkinson's management, low-and middle-income countries do not have the resources to develop posts. Conclusions:The common theme through the small number of studies that exist about the PNS is that the role has clinical benefits but there is little evidence, particularly from a service management perspective, of economic value. Lower income countries also have other health priorities that may overshadow development. More studies are required to establish a solid evidence base for the value of PNS roles.