Participation and quality of life in persons living with spinal cord injury in Norway

Abstract

Objectives To describe the association between sociodemographic and spinal cord injury characteristics, of people living with spinal cord injury, and participation and quality of life, and to study the association between participation and quality of life in this group of people. Design Persons registered in the Norwegian Spinal Cord Injury Registry after post-acute rehabilitation between 2011 and 2017 were invited to participate in a survey in 2019 when they were in a community setting. Subjects A total of 339 people living with spinal cord injury. Methods The Frequency scale and Restrictions scale of the Utrecht Scale for Evaluation of Rehabilitation-Participation were used to measure participation. Quality of life was measured as life satisfaction with the World Health Organization Quality of life assessment (WHOQoL-5) and mental health was measured using the Mental Health subscale (MHI-5). Results Overall, sociodemographic characteristics were more prominently associated with quality of life and participation than were spinal cord injury characteristics. Currently working as main activity and having a family income in the highest quartile were associated with higher scores on all 4 measures of participation and quality of life. There was a strong gradient between higher level of participation (frequency and restrictions) and better quality of life. Conclusion Participation was strongly associated with life satisfaction and mental health in people living with spinal cord injury. This indicates that participation issues should be given greater priority during post-acute rehabilitation, follow-up and subsequent care efforts provided in the community. LAY ABSTRACT Having paid work, leisure-time activities and good relationships with other people is important for one’s quality of life. For people living with spinal cord injury, it may be more difficult to participate in such activities than it is for people without health problems. A survey on participation problems was carried out among Norwegians living with spinal cord injury. Sociodemographic factors, such as family income and education, were found to have a greater impact on quality of life and participation, than the severity of the injury itself. Participation was strongly associated with life satisfaction and mental health. This indicates that participation issues should be given greater priority.

Caregiving, Participation, and Quality of Life of Closest Next of Kin of Persons Living with Spinal Cord Injury in Norway

“…Quality of life. QoL was measured, using 2 constructs, as described in the literature (25)(26)(27); life satisfaction and mental health. Life satisfaction was measured with a selection of 5 items from the World Health Organization Quality of life assesment-BREF (WHOQOL-BREF) assessment covering satisfaction with overall QoL, health, daily activities, relationships, and living conditions (World Health Organization Quality of life assessment; WHOQOL-5) (28).…”

Labour market participation after spinal cord injury. A register-based cohort study

“…Consequently, persons with higher education post-SCI tend to have more career opportunities open to them [ 27 ]. Thus, promoting vocational re-training towards jobs requiring higher education is likely to be a valid approach to increase the level of labour market participation [ 27 – 29 ].…”

Protocol for a single group, mixed methods study investigating the efficacy of photovoice to improve self-efficacy related to balance and falls for spinal cord injury

“… 39 If participation is increased, self-reported quality of life may increase as well, as higher levels of participation are associated with greater life satisfaction among community-dwelling individuals with SCI. 40 Thus, a photovoice intervention may address a number of the negative sequelae of falls and fall risk after SCI.…”