Participation and risk‐taking behaviour in sports in children with haemophilia

Koiter, J.; Genderen, Frank R. Van; Brons, Paul; Sanden, Maria W. G. Nijhuis-van der

doi:10.1111/j.1365-2516.2009.02006.x

Cited by 24 publications

(55 citation statements)

References 21 publications

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“…Tiktinsky et al [2009] suggest that participation in a resistance training program may reduce the frequency of bleeding from 3 to 2 times per week or may even eliminate spontaneous bleeding events (5). Köiter et al [2009] in their study noted similar results, specifically that there was no association between athletic participation and an increased risk of © Translational Pediatrics. All rights reserved.…”

Section: Sport Participation and Risk Of Injury In Patients With Hemosupporting

confidence: 66%

“…Their work evaluated 99 pediatric hemophilia patients who participated in sports on an average of 5 times per week; the five most common sports activities in this group were soccer, swimming, tennis, gymnastics, and a cardio/fitness program (8). In the course of the study, no children developed a joint motion limitation (8).…”

Section: Sport Participation and Risk Of Injury In Patients With Hemomentioning

confidence: 99%

“…Transl Pediatr 2017;6(3):174-180 tp.amegroups.com injury, even in those children with increased frequency or duration of participation (8). Their work evaluated 99 pediatric hemophilia patients who participated in sports on an average of 5 times per week; the five most common sports activities in this group were soccer, swimming, tennis, gymnastics, and a cardio/fitness program (8).…”

Section: Sport Participation and Risk Of Injury In Patients With Hemomentioning

confidence: 99%

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Sports participation recommendations for patients with bleeding disorders

Howell¹,

Scott²,

Patel³

2017

Transl. Pediatr.

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There are several sets of guidelines recommending sports participation for patients with bleeding disorders. Though there is a perceived risk of injury and the associated bleeding complications, several studies have been done in this patient population and have found no increased risk. In addition, there are many other benefits to participation including improvement in physical fitness status, better health outcomes, improvement in quality of life, and the development of increased flexibility, gait coordination, and muscular strength, which may actually reduce the risk of subsequent injury. With adequate pre-participation preparation and surveillance, patients with hemophilia have few restrictions in their choice of activity. In the United States, the National Hemophilia Foundation (NHF) proposes stratification of activities into safe, safe-to-moderate, moderate, moderate-to-dangerous, and dangerous risk groups. The safe through moderate categories can be routinely recommended with the proper preparation. Though hematologists often use these recommendations when counseling their patients, these guidelines may not be as accessible for primary care and sports medicine providers. This article is to serve as a review of the related literature, specifically on the benefits of physical activity without an increased risk of injury in hemophilia patients, and will summarize a set of recommendations regarding safe athletic participation for individuals with bleeding disorders from both individual studies and from health regulatory bodies like the NHF.

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Section: Sport Participation and Risk Of Injury In Patients With Hemosupporting

confidence: 66%

Section: Sport Participation and Risk Of Injury In Patients With Hemomentioning

confidence: 99%

Section: Sport Participation and Risk Of Injury In Patients With Hemomentioning

confidence: 99%

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Sports participation recommendations for patients with bleeding disorders

Howell¹,

Scott²,

Patel³

2017

Transl. Pediatr.

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“…Sin embargo, otros estudios confirman niveles similares, tanto de capacidad aeróbica 60,61 , de fuerza 55,62 o de ambas 63,64 . Hoy en día, y a diferencia de los adultos, los niños hemofílicos que disfrutan de los beneficios del tratamiento hematológico tienen un buen equilibrio y propiocepción, además de disfrutar de una buena salud articular 55,59,61,62 . Respecto a la coordinación, poco hay escrito sobre esta capacidad, y el único estudio encontrado habla de una menor coordinación, teniendo en cuenta los valores de referencia para la población infantil 59 .…”

Section: La Condición Física Del Paciente Hemofílicounclassified

“…Para los niños y jóvenes hemofílicos, el deporte y el ejercicio físico juegan un papel más importante que para los adultos 66,67 . Aun así, a pesar de que hay estudios que afirman que la participación deportiva y el tiempo dedicado a realizar actividad física por parte de los niños y adolescentes hemofílicos es similar, e incluso superior, respecto de sus pares de comparación, también señalan que esta dedicación es insuficiente ya que no cumple con las recomendaciones mínimas de actividad física para estas edades 61,62,68 . Este hecho concuerda con la tendencia de la sociedad actual al sedentarismo, tanto en países desarrollados como en vías de desarrollo 48 .…”

Section: La Condición Física Del Paciente Hemofílicounclassified

Hemofilia: ejercicio y deporte

Querol

Pérez‐Alenda

Gallach

et al. 2011

Apunts. Medicina de l'Esport

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Resumen El ejercicio físico y el deporte constituyen uno de los pilares básicos en el tratamiento de la hemofilia. Este trabajo describe un resumen de las características de la hemofilia y, a través de una exhaustiva revisión bibliográfica, se analiza la importancia de la condición física, en relación con la prevención y el tratamiento de las lesiones musculoesqueléticas en el paciente hemofílico.La hemofilia es una enfermedad hematológica hereditaria, con lesiones ortopédicas características. Afecta a individuos varones y presenta un déficit de factores de la coagulación que provoca hemorragias incluso espontáneas (en pacientes graves sin tratamiento). Las lesiones más frecuentes son: hemartrosis, sinovitis, hematomas musculares y artropatía hemofílica. La condición física del paciente hemofílico, instrumentada mediante terapia sustitutiva de factores de la coagulación, es fundamental y requiere fisioterapia, ejercicio físico y deporte.Basándonos en las recomendaciones de los comités de expertos de la Federación Mundial de Hemofilia (WFH) y utilizando las principales bases de datos, mediante estrategias de búsqueda con palabras clave, se obtuvieron 756 referencias, de las que tan sólo 74 superaron los criterios de inclusión.Las publicaciones se agruparon por áreas temáticas, diferenciando artículos de revisión, trabajos observacionales y experiencias clínicas, estudios experimentales y actuaciones intervencionistas sobre parámetros concretos de la condición física.Se concluye con la evidencia de la importancia de la recomendación del ejercicio físico y deporte en la hemofilia, el consenso en su idoneidad para el bienestar físico, psíquico y social de los pacientes, y la necesidad de incrementar los trabajos científicos al respecto. © 2010 Consell Català de l'Esport. Abstract Physical exercise and sports is one of the basic foundations in the treatment of haemophilia. This article gives a brief description of the characteristics of haemophilia, and through an exhaustive literature review, the importance of the physical condition, as regards prevention and treatment of musculoskeletal lesions in the haemophilic patient, is also analysed.Haemophilia is a hereditary haematological disease, characteristic orthopaedic lesions. It affects males and has a deficiency of clotting factors which causes haemorrhages, including spontaneous (in severe patients without treatment). The most common lesions are: haemarthrosis, synovitis, muscle haematomas and haemophilic arthritis. The physical condition of the haemophilic patient, controlled by clotting factor replacement therapy, is fundamental and requires physiotherapy, physical exercise and sport.Based on the recommendations by expert committees of the World Haemophilia Foundation (WFH) and using major data bases and search strategies with key words, 756 references were obtained, of which on 74 passed the inclusion criteria.The publications were grouped by subject area, differentiating review articles, observational studies and clinical experiences, experimental studies and ...

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Motor performance in children with Noonan syndrome

Croonen

Essink

Burgt

et al. 2017

American J of Med Genetics Pt A

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Although problems with motor performance in daily life are frequently mentioned in Noonan syndrome, the motor performance profile has never been systematically investigated. The aim of this study was to examine whether a specific profile in motor performance in children with Noonan syndrome was seen using valid norm-referenced tests. The study assessed motor performance in 19 children with Noonan syndrome (12 females, mean age 9 years 4 months, range 6 years 1 month to 11 years and 11 months, SDS 1 year and 11 months). More than 60% of the parents of the children reported pain, decreased muscle strength, reduced endurance, and/or clumsiness in daily functioning. The mean standard scores on the Visual Motor Integration (VMI) test and Movement Assessment Battery for Children 2, Dutch version (MABC-2-NL) items differed significantly from the reference scores. Grip strength, muscle force, and 6 min Walking Test (6 MWT) walking distance were significantly lower, and the presence of generalized hypermobility was significantly higher. All MABC-2-NL scores (except manual dexterity) correlated significantly with almost all muscle strength tests, VMI total score, and VMI visual perception score. The 6 MWT was only significantly correlated to grip strength. This is the first study that confirms that motor performance, strength, and endurance are significantly impaired in children with Noonan syndrome. Decreased functional motor performance seems to be related to decreased visual perception and reduced muscle strength. Research on causal relationships and the effectiveness of interventions is needed. Physical and/or occupational therapy guidance should be considered to enhance participation in daily life.

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Participation and risk‐taking behaviour in sports in children with haemophilia

Cited by 24 publications

References 21 publications

Sports participation recommendations for patients with bleeding disorders

Sports participation recommendations for patients with bleeding disorders

Hemofilia: ejercicio y deporte

Motor performance in children with Noonan syndrome

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