Participation and Satisfaction with Surgical Treatment Decision-Making in Breast Cancer Among Chinese Women

Abstract

Most Chinese women want shared TDM and to know their surgeon's treatment preference. Over-involved women are at greater risk of difficulties and doubts in TDM and under-involved women perceive a lack of time and information to make their decision.

Collaborative/active participationper se does not decrease anxiety in breast cancer

“…1,[6][7][8][9][10][11][12][13][17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35] The patients' expectations also depend on the type of the disease, 15,20 or the type of the malignancy. 13,15,19,25 Most of the literature data on the attitude of breast cancer patients towards being informed, and participation in treatment decision come from Canada, 15,17,18,26,32 the US, 7,10,25,[27][28][29][30][31]34 Australia, 6,9,…”

“…26 Among Chinese women, 59% wanted a shared decision-making for surgery, and 80% succeeded to participate as much as desired; older age predicted a passive role. 24 Maly et al found that active decision-making on the type of breast surgery among women older than 55 years did not depend on age, but was promoted by special solicitation of the patients' preferences. 28 Among American women, higher education was significantly related to the patient's activity.…”

Sharing vs. caring—The relative impact of sharing decisions versus managing emotions on patient outcomes

“…However, research indicates that SDM accounts for only a small amount of variance in some of these outcomes [7], and is not always practical, or desired by patients [8,9].…”

Enhancing Health Communication Outcomes Among Ethnic Minority Patients: The Effects of the Match Between Participation Preferences and Perceptions and Doctor–Patient Concordance

“…Previous studies have indeed shown that pressuring patients to be more involved than they want in the decision-making process provokes anxiety (Hack, Degner, & Dyck, 1994), lower satisfaction with care and decisional regret (Lantz et al, 2005), and less confidence in having made the correct treatment choice (Lam, Fielding, Chan, Chow, & Ho, 2003). Instead of advocating patient participation as such, a more fruitful approach might be to establish a good match between patients' preferred levels of participation and their actual levels of participation.…”