Participation in physical and social activities among home-dwelling persons with dementia &amp;ndash; experiences of next of kin

Söderhamn, Ulrika; Landmark, Bjørg Th.; Eriksen, Sissel H.; Söderhamn, Olle

doi:10.2147/prbm.s46334

Cited by 12 publications

(8 citation statements)

References 19 publications

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“…This study, which obtained the perspectives of persons living with dementia, is part of an evaluation of the activity center. The evaluation also includes earlier studies, ie, one study pertaining to the relatives’ perspective 12 and another about the volunteers’ experiences of helping at the center. 13 …”

Section: Methodsmentioning

confidence: 99%

Attending an activity center: positive experiences of a group of home-dwelling persons with early-stage dementia

Söderhamn¹,

Aasgaard²,

Landmark³

2014

CIA

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BackgroundIn Norway, there is a focus on home-dwelling people with dementia receiving the opportunity to participate in organized meaningful activities. The aim of this study was to elucidate the experiences of home-dwelling persons with early-stage dementia who attend an activity center and participate in adapted physical and social activities delivered by nurses and volunteers.MethodsThe study adopted a qualitative approach, with individual interviews conducted among eight people diagnosed with early-stage dementia. The interview texts were analyzed using manifest and latent content analysis.ResultsFour categories, ie, “appreciated activities”, “praised nurses and volunteers”, “being more active”, and “being included in a fellowship”, as well as the overall theme “participation in appreciated activities and a sense of feeling included in a fellowship may have a positive influence on health and well-being” emerged in the analysis. The informants appreciated the adapted physical and social activities and expressed their enjoyment and gratitude. They found the physical activities useful, and they felt themselves to be included in a fellowship through cheerful nurses and volunteers. The nurses were able to create a good atmosphere and spread joy in the center together with the volunteers. The informants felt themselves valued as the persons they were. These findings indicated that such activities may have had a positive influence on the informants’ health and well-being.ConclusionIn order to succeed with this kind of activity center, it is decisive that the nurses are able to tailor meaningful activities and create an environment where the persons with dementia can feel that they are respected and valued. The municipality health care service should implement such activity centers with specialist nurses in dementia care together with volunteers.

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Section: Methodsmentioning

confidence: 99%

Attending an activity center: positive experiences of a group of home-dwelling persons with early-stage dementia

Söderhamn¹,

Aasgaard²,

Landmark³

2014

CIA

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“…Therefore, it is important that support for the care-giver also aims at reducing care-giver burden (Adelman et al 2014). It is notable, for instance, that care-givers are relieved when the people they care for participate in activities outside the home (Soderhamn et al 2013).…”

Section: Introductionmentioning

confidence: 99%

Social participation perspectives of people with cognitive problems and their care-givers: a descriptive qualitative study

et al. 2018

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The aim of this study is to explore how community-dwelling older people with cognitive problems and their care-givers (dyads) perceive their own social participation, how care-givers evaluate the social participation of the people they care for and what factors they perceive as influential. In this qualitative study, we performed 13 semi-structured, in-depth interviews with dyads who participated in the Social Fitness Programme. We used content analysis to analyse the interviews thematically. Social participation perceptions include changes over time and a discrepancy in perspectives. All the people with cognitive problems and most care-givers perceived a decreased social participation. Most people with cognitive problems answered that they were satisfied, in contrast to most care-givers who were dissatisfied with the decreased social participation of the people they cared for. Analysing the influencing factors resulted in five themes: behavioural, physical, social environmental, physical environmental and activity-related. People with cognitive problems and their care-givers displayed a discrepancy in social participation perspectives. This becomes a major dilemma, especially for younger care-givers. A key element is a sometimes deliberate choice of people with cognitive problems to refrain from social participation to protect themselves from the consequences of cognitive problems and from encounters with others. This highlights the dynamics of social participation as an interaction between personal factors and the social and physical environment in which social participation occurs.

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“…In Norway, about half of the total population of PWDs live in their own home (Lystrup, Lillesveen, Nuygård, & Engedal, 2006) and the most frequent unmet need for home-dwelling PWDs are daytime activities (Miranda-Castillo et al., 2010). DCCs are established to provide meaningful activities for home-dwelling PWDs and, at the same time, provide relief to family carers (Norwegian Ministry of Health and Care Services, 2015; Söderhamn, Aasgaard, & Landmark, 2014; Söderhamn, Landmark, Eriksen, & Söderhamn, 2013). About 20% of the dementia population in Norway who live at home attend a DCC once or twice a week (Vossius et al., 2015).…”

Section: Introductionmentioning

confidence: 99%

Engagement in elderly persons with dementia attending animal-assisted group activity

et al. 2016

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The need for meaningful activities that enhance engagement is very important among persons with dementia (PWDs), both for PWDs still living at home, as well as for PWDs admitted to a nursing home (NH). In this study, we systematically registered behaviours related to engagement in a group animal-assisted activity (AAA) intervention for 21 PWDs in NHs and among 28 home-dwelling PWDs attending a day care centre. The participants interacted with a dog and its handler for 30 minutes, twice a week for 12 weeks. Video-recordings were carried out early (week 2) and late (week 10) during the intervention period and behaviours were categorized by the use of an ethogram. AAA seems to create engagement in PWDs, and might be a suitable and health promoting intervention for both NH residents and participants of a day care centre. Degree of dementia should be considered when planning individual or group based AAA.

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Participation in physical and social activities among home-dwelling persons with dementia – experiences of next of kin

Cited by 12 publications

References 19 publications

Attending an activity center: positive experiences of a group of home-dwelling persons with early-stage dementia

Attending an activity center: positive experiences of a group of home-dwelling persons with early-stage dementia

Social participation perspectives of people with cognitive problems and their care-givers: a descriptive qualitative study

Engagement in elderly persons with dementia attending animal-assisted group activity

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