Participation: Myths, realities and prognosis

Long-term outcomes of stroke rehabilitation: patients and informal caregivers

“…This requires patient involvement (Brownlea, 1987) which is acknowledged implicitly (Lenze, Munin, et al, 2004a) and explicitly (Kortte, et al, 2007;Lequerica, et al, 2006) by all authors. In principle, motivation is considered of major importance.…”

“…Patient participation enhances the individual's responsibility for his or her own health while increasing the patient's motivation, satisfaction and quality of life. Patients who are informed and aware of treatment consequences may have a better understanding and better control of their symptoms (Brownlea, 1987;Haidet, et al, 2006;Hämäläinen, Perälä, Poussa, & Pelkonen, 2003;Sahlsten, Larsson, Sjöström, Lindencrona, & Plos, 2007). Therefore, it would be interesting to analyze whether the goals set (and possible reached) during rehabilitation are related to outcomes such as independent living or integration into normal life.…”

“…Patient participation has been discussed (Cahill, 1998;Pritchard, 1981) and advocated (Brownlea, 1987;Haidet, Kroll, & Sharf, 2006;Mansell, Poses, Kazis, & Duefield, 2000;Sahlsten, Larsson, Sjöström, Lindencrona, & Plos, 2007) To capture all relevant publications, additional searches were conducted using the authors" names or the instrument titles. Furthermore, reference lists in the retrieved articles were scanned for relevant publications.…”

Editorial: Taking Consumer Participation Seriously

“…Despite our best intentions and some significant progress, the impediments of "entrenched medical dominance, antagonistic bureaucratic cultures, a centralist supremacy, an intractable political economy of health, (and) inhibitory professional paradigms", which Brownlea (1987) noted 20 years ago, remain alive and well.…”

Talking about mental health nursing: a qualitative analysis of nurses’ and service users’ accounts

“…Patient involvement in decision-making ensures people have a voice about care decisions (Godolphin, 2009), whilst patient participation in decision making is more about access to information, so people can obtain answers about the problem being addressed (Brownlea, 1987). In addition, the opportunities for patient choice, for people to have increased control of circumstances and to achieve desired goals (Anthony & Crawford, 2000) are also major elements of service user involvement in nursing processes.…”